Transcript Document

The power of information
Putting all of us in control of the health
and care information we need
the vision: people first
• Joined up systems and shared data standards will facilitate and drive integration
within and between organisations and care settings to ensure that care is focused
around the person and their health and care needs. This is why the strategy spans the
NHS, public health and social care.
• Getting the right information to the right people at the right time – in a form they can
understand, engage with and contribute to – will help individuals take control of their
own care, improving self-management, shared decision making, and more informed
choices.
• Needs support and advocacy to help people in all
sectors of society to make meaningful use of it,
harnessing modern technology where that is helpful.
2
the vision: care records - a core source of data
the information strategy: main ambitions
• Information used to drive integrated care
across the entire health and social care sector
• Information regarded as a health and care service in its own right –
with appropriate support in using information available for those who need it, so that
information benefits everyone and helps reduce inequalities
• A change in culture and mindset, in which our health and care professionals,
organisations and systems recognise that information in our own care records is
fundamentally about us - so it becomes normal for us to access our own records
• Information recorded once, at our first contact with professional staff,
and shared securely between those providing our care – supported by consistent use
of information standards that enable data to flow between systems whilst keeping our
confidential information safe and secure
the information strategy: main ambitions
• Our electronic care records become the source for core information
used to improve our care, improve services and to inform research, etc. – reducing
bureaucratic data collections and enabling us to measure quality
• A culture of transparency
where access to high-quality, evidence-based information about services and the
quality of care held by Government and health and care services is openly and easily
available to us all
• An information-led culture where all health and care professionals take
responsibility for recording, sharing and using information to improve care
• The widespread use of modern technology
to make health and care services more convenient, accessible and efficient
• An information system built on innovative and integrated solutions and
local decision-making, within a framework of national standards that ensure
information can move freely, safely, and securely around the system
the vision: how we’ll get there
The strategy includes a number of central and local level actions all require partnership working
Centrally
Locally
• A standards ‘route map’ will be
developed
• A comprehensive online ‘portal’ will
bring together the best of the relevant
information on health, public health,
care and support
• All nationally held clinical datasets
will be published by 2014, but not at
a level which allows identification of
patients
• Central bodies (the CQC, Monitor,
the NHS CB) will consider how they
can incentivise the vision in this
strategy
• An independent review of
information governance will be led
by Dame Fiona Caldicott
• Organisations will seek and respond to
patient and service user feedback
• Procurement decisions will be made in
line with the information standards
roadmap
• Support for interpreting information
will be provided to those who need it
• Electronic transactions will be made
available to patients
• There will be better use of
pharmaceuticals
• The informatics profession will be
developed
• Online professional access to records
will allow the sharing of records
• Patients will, in time, have access to
records beyond general practice
accessing help and information
In future there will be just three key ways for patients and service users to
access help and information at the national level across healthcare, public
health and care and support:
• 999 as the telephone service for emergencies;
• NHS 111 as the telephone service for health and care advice and services;
• a comprehensive online ‘portal’ – bringing together the best of the
relevant information and online services currently provided by the existing
national web services”
a single set of authoritative information
Central Government or other national bodies will retain responsibility
across some core areas where public accountability, clinical safety or
simple pragmatic reasons, mean a single set of authoritative or trusted
information is required nationally, for example:
• public health emergencies & health protection
• high quality evidence and guidance information to support high quality
standards of care – such as that provided by NICE;
• managing symptoms, common everyday conditions and treatment
choices;
• national public health campaigns and guidelines on health
improvement – for instance Change4Life;
• directories of services;
• health and social care rights and entitlements
• consistent core information on the safety and quality of services and
providers
space to innovate
• While Government should provide a core set of this information, it
cannot try to provide everything to everyone.
• Within specific areas, there are already organisations, often in the
voluntary sector, which can provide better-targeted information. The
Government will be clear about what will need to be provided centrally,
giving others space to innovate.
• Beyond this core information provided nationally by Government and
creating the right environment to support the development of an
information market, the state will not intervene in the information
market unless it is necessary to prevent a significant negative impact on
outcomes, equalities or efficiency
ensuring information quality
• Responses to the Information Revolution consultation confirmed the
view that we want to be reassured about the quality of content (written
and visual information on health and care topics).
• The national online portal will signpost organisations that provide
more detailed, specialised information. The portal will not provide links
to organisations that do not comply with requirements for accuracy and
quality of information. The endorsement of a link from the national
portal, and the volumes of our user visits that this will create, will provide
a powerful incentive for maintaining standards.
• During 2012/13, Government will continue to support ‘The
Information Standard’ an independent voluntary scheme that
accredits providers of information on treatments, conditions,
symptoms and disability.
the strategy online: aimed at real people
• online version includes sections on
“what the strategy means for me” using
a wide range of case studies
• easy-read developed in partnership with
CHANGE, a learning disability
organisation
• equality impact assessment coproduced by the Department of Health
with 13 other organisations
• extensive partnership working with
Intellect, Royal College of GPs and many
others
www.informationstrategy.dh.gov.uk
for real people: modern convenient information
1. Accessing your GP record
online will give you more control
over your care
4. You’ll have less paperwork in
your life when your healthcare
letters are available online
7. You won’t have to repeat yourself
when your information is shared
between health and care professionals
2. Booking appointments will
be quicker when you can do it
online
5. You’ll know where to go for
health and care information when
there is one trusted website
8. You’ll be confident that your
feedback is being listened to and
helping to improve services
3. You’ll need fewer phone calls
when you can communicate with
professional teams electronically
6. Services will do more to offer you
support you use and understand
information if and when you need it.
9. You will have more information to
help you choose the best services
and treatments for you