JDRF Advocacy: Turning Type One Into Type None JESSICA ROTH Senior Director, Health Policy, JDRF.

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Transcript JDRF Advocacy: Turning Type One Into Type None JESSICA ROTH Senior Director, Health Policy, JDRF.

JDRF Advocacy: Turning Type
One Into Type None
JESSICA ROTH
Senior Director, Health Policy, JDRF
JDRF Advocacy:
Advancing LifeChanging Therapies
Jessica Roth
Senior Director, Health Policy
JDRF Advocacy
Turning TypeOne to
Both Research and Advocacy Critical to
Driving Progress through the Pipeline
As JDRF Evolves, Role of Advocacy Growing
We WERE the Juvenile Diabetes
Research Foundation
Now We ARE JDRF

Singularly focused on a cure and
identified only with children

Expanding reach to include adults and
therapies that cure, treat and prevent
T1D for all ages at all stages

Focused simply on funding research

Seeking to dramatically increase
research we fund while influencing
government, industry, and others to
invest in T1D

Focused mostly on basic research in an
academic setting

Increasing emphasis on translational
research and removing obstacles at FDA
and elsewhere to enable new, innovative
therapies delivered to people with T1D
Advocacy Raises Public Funds for R&D
Funding for R&D in JDRF
Priority Areas
JDRF Helped Secure More Than $2 Billion in
Special Diabetes Program Funds Alone
Special Diabetes Program T1D Funding 1998–2015
150 150 150 150 150 150 150 150 150 150 150 150
70
70
100
30
30
30
30
30
1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015
Public Law 105-33
Public Law 106-554
Public Law 107-360
Public Law 110-173
Public Law 110-275
Public Law 111-309
Public Law 112-240
Public Law 113-93
JDRF Engages NIH to Ensure SDP Research
Funds Used for JDRF Priority Areas (FY13)
Kidney
Trial
$24.3 M
TEDDY
Prevention
Study
$29 M
Other
Causes
Complications
Artificial
Pancreas
$25.8 M
Prevent/
Reverse
Management
Cell
Human Islet
Research
$17.3 M
Advocacy Helps Advance Regulatory
Pathways
Regulatory
Pathways
JDRF Advocacy Has Reduced Regulatory
Barriers for Artificial Pancreas
Result:
More Reasonable Pathway for R&D Progress
Advocacy Helped Advance Health Reimbursement
Health Plan Coverage &
Adoption
JDRF CGM Campaign Achieved Health Plan
Coverage and Clinical Guidelines
JDRF Developing Heath Policy Strategies for
All Priority T1D Therapies
Artificial Pancreas
Smart Insulin
Encapsulation
Prevention
Restoration
Complications
Health Policy Strategic Planning Underway
JDRF Goal:

To ensure patient access to
life-changing T1D therapies
There are three central challenges to obtaining this goal:
1. Therapies must be accessible and affordable for people
with T1D
2. Therapies must be attractive enough to companies that
they will invest in product development
3. Therapies must meet insurers’ increasingly high demands
for clinical evidence, as well as justification for cost of
therapy
Current Advocacy Issues
Special Diabetes Program (SDP) Renewal

Secure at least a one-year renewal of the SDP
before the program expires this September
Medicare Coverage of CGMs

Build support in Congress for the Medicare CGM
Access Act
Appropriations for NIH & FDA

Advocate for strong annual funding for each
agency to advance T1D research and therapies

Note: SDP is not appropriations
JDRF 2015 Children’s Congress
Promise to Remember Me Campaign
How You Can Help!
 Sign up to be a JDRF advocate!
 Go to www.jdrf.org/action or
 Text Action to 53731 (JDRF1)
 Respond to action alerts and join in meetings with Members
of Congress
 Encourage friends, family, co-workers and others to become
advocates.