Consumer Advocacy The strength of a Network: moving beyond talk to action Amanda Winiata Community Programs Manager Breast Cancer Network Australia BCNA’s mission That every Australian diagnosed.
Download ReportTranscript Consumer Advocacy The strength of a Network: moving beyond talk to action Amanda Winiata Community Programs Manager Breast Cancer Network Australia BCNA’s mission That every Australian diagnosed.
Slide 1
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 2
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 3
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 4
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 5
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 6
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 7
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 8
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 9
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 10
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 2
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 3
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 4
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 5
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 6
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 7
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 8
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 9
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement
Slide 10
Consumer Advocacy
The strength of a Network:
moving beyond talk to action
Amanda Winiata
Community Programs Manager
Breast Cancer Network Australia
BCNA’s mission
That every Australian diagnosed with
breast cancer receives the best
information, treatment, care and support,
no matter who she is or where she
lives
Over 60,000 members across Australia
What helps to effectively work
together
•
•
•
•
•
•
Clear expectations
Open communication
Knowledge to represent BCNA
Common understanding
Feedback
Share experiences
BCNA offers women two
opportunities for advocacy roles
Community
Liaison
• Sharing personal experiences
• Community promotion activities
• Strengthening local networks
• Influencing decision making
• Involved in all types of
Consumer Rep committees
• Promoting value of consumer
involvement
Community
Liaisons
Forums
1. Recruitment
Website
Networks
Community events
2. Screening
3. Training
4. Feedback &
ongoing support
5. Evaluation
Consumer
Representative
Website
Community Liaison
Networks
Experience of BC
Experience of BC
Community networks
Understanding of BC
Public speaking
Raising issues
Comm. skills
BCNA resources
Knowledge of BC
Action plan
Advocacy skills
Health system
Basic science &
clinical m’gement
Resources
Briefings
Networking
Conferences
Refresher training
Teleconferences
Online Network
Mentoring
Pre & post training
Number activities
Impact analysis
Case studies
Community Liaison highlights
Influencing decision making
leading to improved outcomes
‘Chemoprevention’
‘Risk-reducing
medication’
Key factors for a successful
program
•
•
•
•
•
•
•
•
Processes to determine suitability for the role
Ongoing engagement with women
Communication about expectations
Sophisticated database of women
Dedicated resources
Opportunities to develop capability
Engagement with requesting organisations
Evaluation and continuous improvement