Ethnic inequalities in health: Findings from the London Health Observatory Dr. Jenny Mindell Deputy director London Health Observatory www.lho.org.uk.
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Ethnic inequalities in health: Findings from the London Health Observatory Dr. Jenny Mindell Deputy director London Health Observatory www.lho.org.uk Using ethnicity data • Why is ethnicity important to health? • Key ethnic differences in health in London • What we know • What we don’t know • Filling the gaps Ethnic Differences in Health Outcomes: Mortality By Country Of Birth Scotland Ireland Eastern Africa Rest of Africa Caribbean & West Indies England & Wales Bangladesh Pakistan Eastern Europe India Other South Asia Middle East Other Western Europe South East Asia Rest of World 0 20 40 60 80 100 120 140 160 Standardised Mortality Ratio (ages 20 - 69) Bardsley et al‘ Developing Health Assessment for Black and Minority Ethnic Groups’ Health of Londoners Project/ London NHS 2000 180 Persons Reporting their Health as "Not Good" in the last 12 months - aged 50+ ALL PEOPLE White: British White: Irish White: Other White Mixed: White and Black Caribbean Mixed: White and Black African ethnic group Mixed: White and Asian Mixed: Other Mixed Asian or Asian British: Indian Asian or Asian British: Pakistani Asian or Asian British: Bangladeshi Asian or Asian British: Other Asian Black or Black British: Black Caribbean Black or Black British: Black African Black or Black British: Other Black Chinese or Other Ethnic Group: Chinese Chinese or Other Ethnic Group: Other Ethnic Group 0 10 20 30 40 50 % reporting 'not good' health aged 50 to 64 aged 65 and over 60 70 Ethnic Differences in Access to Effective Healthcare (Heart surgery) Source: HES Using ethnicity data Determinants of health Age Sex Genetics Income Employment Education Housing Social Networks Mobility and migration Environment Prevalence of ill health and health behaviour Prevalence of specific diseases e.g. diabetes, renal failure, cardiovascular disease Limiting long term illness Healthy behaviour and lifestyles Service use Health services: hospitals, primary care and community services Social Services Voluntary and private sectors Health and service outcomes Mortality Health status Satisfaction Determinants of health: risks low income poor quality housing ethnicity age social class unemployment low educational attainment geography disability gender Landmarks 1991 - Census baseline ethnic data collected 1995 - Compulsory recording for NHS (01/04/1995, InPatients only) 2001 - Census new groups 2002 - Collection Targets in ‘Ethnic Monitoring Reports’ (London only) LONDON: Ethnic composition at Census 1991 2001 40% 21% 79% 60% LONDON: Ethnic composition at 2001 Census LONDON: Ethnic composition at 2001 Census 1.1 5.3 0.8 1.6 4.8 1.9 2.2 2.0 6.1 0.9 0.8 0.5 59.8 1.0 8.3 3.1 White British Irish Other White White and Black Caribbean White and Black African White and Asian Other Mixed Indian Pakistani Bangladeshi Other Asian Caribbean African Other Black Chinese Other ethnic group The Cycle of Invisibility DATA NOT COLLECTED DATA COLLECTED / ANALYSED BUT DOESN’T FULLY REFLECT LONDON’S DIVERSE COMMUNITIES SOME DATA COLLECTED – BUT UNHELPFUL / OUTDATED INVISIBLE ETHNIC INEQUALITIES DATA ANALYSED BUT NEEDS MORE RESEARCH DATA COLLECTED BUT INCOMPLETE DATA COLLECTED BUT NOT ANALYSED / USED Ethnicity and Health Dimensions of ethnicity Health issues: • • • • • • • • • • • • • • nationality birthplace skin colour language religion ‘race’ migration experience culture infectious disease diabetes coronary heart disease stroke lung cancer prostate cancer Country of birth versus ethnic group in London Non-direct, complex relationship • People from minority ethnic groups born in the UK • People from ethnic groups other than BME born abroad • People from secondary migrant groups – e.g. Asians born in East Africa - 22% of Londoners classified as Indian at the 1991 census were born in East Africa Percentage of all hospital admissions 1996/97 to 2000/01 coded to different options for Ethnic Group 1996/67 White 35.6 Black Caribbean 2.3 Black African 1.9 Black Other 0.9 Indian 2.5 Pakistani 0.8 Bangladeshi 1.1 Chinese 0.2 Other 3.1 Not known 51.7 1997/98 42.3 2.9 2.7 4.7 3.1 1.0 1.2 0.3 4.6 37.2 1998/99 45.9 2.8 2.6 1.2 3.1 1.0 1.2 0.3 4.6 38.5 1999/00 44.0 2.8 2.8 1.3 3.0 1.0 1.3 0.8 4.9 38.5 2000/01 44.7 2.8 2.9 1.4 3.0 1.0 1.3 0.3 5.3 37.2 0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 Percentages Valid Ethnic Coding Completed London Providers, 2001/02 100 90 80 70 60 50 40 30 20 10 Providers Hospital admissions for cardiovascular disease, London residents, 1997/98 to 2000/01 by ethnic group and sex Males Females 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1998/99 1999/00 2000/01 1997/98 1998/99 1999/00 2000/01 White Black Caribbean Black African Black Other White Black Caribbean Black African Black Other Indian Pakistani Chinese Indian Pakistani Chinese Other not known Other not known Bangladeshi Bangladeshi Hospital admissions for coronary heart disease, London residents, 1997/98 to 2000/01 by ethnic group and sex Males Females 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1997/98 1998/99 1999/00 2000/01 White 1998/99 1999/00 2000/01 Black Caribbean Black African Black Other White Black Caribbean Black African Black Other Indian Pakistani Indian Pakistani Chinese Other not known Other not known Bangladeshi Chinese Bangladeshi Hospital admissions for myocardial infarction, London residents, 1997/98 to 2000/01 by ethnic group and sex Males Females 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1998/99 1999/00 White Black Caribbean Black African Indian Pakistani Other not known Bangladeshi 2000/01 1997/98 1998/99 1999/00 2000/01 Black Other White Black Caribbean Black African Black Other Chinese Indian Pakistani Chinese Other not known Bangladeshi Hospital admissions for heart failure, London residents, 1997/98 to 2000/01 by ethnic group and sex Males Females 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1998/99 1999/00 2000/01 1997/98 1998/99 1999/00 2000/01 White Black Caribbean Black African Black Other White Black Caribbean Black African Black Other Indian Pakistani Chinese Indian Pakistani Chinese Other not known Other not known Bangladeshi Bangladeshi Hospital admissions for dysrhythmia, London residents, 1997/98 to 2000/01 by ethnic group and sex Males Females 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1998/99 1999/00 1997/98 2000/01 1998/99 1999/00 2000/01 White Black Caribbean Black African Black Other White Black Caribbean Black African Black Other Indian Pakistani Chinese Indian Pakistani Chinese Other not known Other not known Bangladeshi Bangladeshi Hospital admissions for hypertensive disease, London residents, 1997/98 to 2000/01 by ethnic group and sex Females Males 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1998/99 1999/00 2000/01 1997/98 1998/99 1999/00 White Black Caribbean Black African Black Other White Black Caribbean Black African Indian Pakistani Chinese Indian Pakistani Other not known Other not known Bangladeshi Bangladeshi 2000/01 Black Other Chinese Hospital admissions for stroke, London residents, 1997/98 to 2000/01 by ethnic group and sex Males Females 100% 100% 80% 80% 60% 60% 40% 40% 20% 20% 0% 0% 1997/98 1998/99 1999/00 White Black Caribbean Black African Indian Pakistani Other not known Bangladeshi 2000/01 1997/98 1998/99 1999/00 2000/01 Black Other White Black Caribbean Black African Black Other Chinese Indian Pakistani Chinese Other not known Bangladeshi “Diversity Counts” - The LHO Ethnic Health Intelligence Programme More “one stop” access to information Census consortium SKIL programme Mapping ethnicity data sources Hospital Episode Statistics (HES) Analysis of existing data New methods to overcome missing NHS Direct Injury datasets Mapping Inequalities data Proportional admissions ratios Mapping care pathways Refugee estimates Briefings/events dissemination Sickle cell disease Thalassemia Advocacy for ethnicity recording Modernising Civil Registration Lessons Learned • Use what is already there • Work in partnership to enable wider access to information and its analysis • Don’t make assumptions without careful interpretation • Make findings well known • Campaign rather than complain for modernising data collection on ethnicity