CAB Steering Group Feedback
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Transcript CAB Steering Group Feedback
CAB Steering Group
Feedback
Mark McPherson
What, why and who…
What: A representative group of people from
within the CAB with an interest in the future of
this group
Why: To increase the number of people
involved in preparing this meeting, reducing
work for some and adding difference
perspectives
Who: At the moment we are: Ben Cromarty,
Robert James, Carmen Tarrades, Brian
West….also with us in spirit were Badru Male
and Fiona Pettitt
What did we do?
Looked at what the CAB has done to date
Discussed its strengths
Looked for opportunities
Planned this meeting
What do we want to do today
Feedback what we did
Get ideas for future events
Get ideas about the future role
Get ideas about how the group should be run
Aims of the UK CAB
To provide a specialist treatment training
programme
3 speakers and a network sessions
Speakers include researchers and companies as
well as group members
To strengthen the network of treatment
workers and advocates
Discussing issues and advances
Community representation (eg BHIVA guidelines)
What has the CAB been up
to?
Established in 2002
This is the 15th meeting
Past meetings have included: Trail Design;
Resistance and Salvage Therapy; Pregnancy,
Fertility and Sperm Washing; Access to
Services for Refugees and Asylum Seekers;
Statistics; Immunology and Children
They have been delivered in the style of
meetings and training events
We have an active web based discussions
group
How do we compare?
ECAB - more focused on drug trial
design and linkage to the
pharmaceutical industry
French and German CABs - more
activist based in a traditional sense
involved with demonstrations etc.
Strengths
Diverse and Representative
Delivers accessible information - without
oversimplifying it.
Provides contact nationally (often where
treatment maybe sub-optimal)
Affords community involvement in other policy
forums
Opportunities
Increase involvement in trials
Seek greater representation (pro-actively seeking key players to
attend)
Create clearer policy lines and actions based on e-mail
discussion
Be pro-active in the development of patient involvement across
all Strategic Health Authority Regions
Take a view and lobby on issues regarding standard of care
delivery as well as treatment efficacy
What we will do next?
Have another steering group meeting
after this one to plan the next CAB
Plan how to take forward your feedback
Look at how the next steering group
should be formed
Key Questions
Have you ideas for future events?
Have you ideas about the future role?
Have you ideas about how the group
should be run?