Transcript CAB Steering Group Feedback

CAB Steering Group
Feedback
Mark McPherson
What, why and who…
 What: A representative group of people from
within the CAB with an interest in the future of
this group
 Why: To increase the number of people
involved in preparing this meeting, reducing
work for some and adding difference
perspectives
 Who: At the moment we are: Ben Cromarty,
Robert James, Carmen Tarrades, Brian
West….also with us in spirit were Badru Male
and Fiona Pettitt
What did we do?
 Looked at what the CAB has done to date
 Discussed its strengths
 Looked for opportunities
 Planned this meeting
What do we want to do today
 Feedback what we did
 Get ideas for future events
 Get ideas about the future role
 Get ideas about how the group should be run
Aims of the UK CAB
 To provide a specialist treatment training
programme
 3 speakers and a network sessions
 Speakers include researchers and companies as
well as group members
 To strengthen the network of treatment
workers and advocates
 Discussing issues and advances
 Community representation (eg BHIVA guidelines)
What has the CAB been up
to?
 Established in 2002
 This is the 15th meeting
 Past meetings have included: Trail Design;
Resistance and Salvage Therapy; Pregnancy,
Fertility and Sperm Washing; Access to
Services for Refugees and Asylum Seekers;
Statistics; Immunology and Children
 They have been delivered in the style of
meetings and training events
 We have an active web based discussions
group
How do we compare?
 ECAB - more focused on drug trial
design and linkage to the
pharmaceutical industry
 French and German CABs - more
activist based in a traditional sense
involved with demonstrations etc.
Strengths
 Diverse and Representative
 Delivers accessible information - without
oversimplifying it.
 Provides contact nationally (often where
treatment maybe sub-optimal)
 Affords community involvement in other policy
forums
Opportunities
 Increase involvement in trials
 Seek greater representation (pro-actively seeking key players to
attend)
 Create clearer policy lines and actions based on e-mail
discussion
 Be pro-active in the development of patient involvement across
all Strategic Health Authority Regions
 Take a view and lobby on issues regarding standard of care
delivery as well as treatment efficacy
What we will do next?
 Have another steering group meeting
after this one to plan the next CAB
 Plan how to take forward your feedback
 Look at how the next steering group
should be formed
Key Questions
 Have you ideas for future events?
 Have you ideas about the future role?
 Have you ideas about how the group
should be run?