Transcript Carole Dixon - Together for Short Lives

St Oswald’s Hospice Gosforth
My boss said ...... “do you fancy a day out in London?”
When she really meant..........
Carole
To The
Child
 Minnie born November 2010
 Parents : Donald – Teacher
 Sister:
Daisy – Teacher
Maisie born 2006
 Minnie suffered from severe hypoglycaemia in the
neonatal period
Diagnosis/Problems
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Brain Damage
Visual Problems – registered partially sighted
Epilepsy
Constipation
Gastrostomy
Professionals Involved -1
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GP
Consultant Paediatrician
Consultant Community Paediatrician
Consultant Neurologist
Consultant Gastroenterologist
Consultant Ophthalmologist
Health Visitor
Children’s Community Nurse
School Nurse
Epilepsy Nurse Specialist
Professionals Involved -2
 Social Worker
 Sensory Support Staff
 Key Worker Private Nursery
 Teaching Staff
 Physiotherapist
 Occupational Therapist
 Speech and Language Therapist
 Dietician
Continuing Care Assessment
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Behaviour
Communication
Mobility
Nutrition
Continence
Skin
Psychological / Emotional
Breathing
Medication
Seizures
Sleep
Play
Support
• CAF through Child Development Team
• Initial Support through Sure Start groups
• Private Nursery
• Family Issues
• Ongoing Pressures
• Pathway to St Oswald’s
• Outcomes
Need to see the whole picture!