Transcript Slide 1
Open Membership Meeting and Leadership Forum
June 5, 2011 St. Paul, Minnesota
AAIDD Open Membership Meeting and Leadership Forum
June 5, 2011 St. Paul, Minnesota Margaret A. Nygren, EdD, Executive Director
A Couple of Things About AAIDD
•
Mission
AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities .
• • •
Goals
Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.
Participate in the development of a society that fully includes individuals with intellectual and developmental disabilities.
Build an effective, responsive, well-managed, responsibly-governed, and sustainable organization.
Structure
• • • • AAIDD is a membership organization Governed by a Board of Directors elected by the membership Standing and ad-hoc committees of the Board Supported by 12 staff, a number of contractors, and numerous volunteer leaders • • • Components are: Geographical units, of regional, state, provincial, and student Chapters. Professional groups, including divisions, action groups, SIGs, and task forces Fellows
Major Functions
The major functions of the Association are to • Support its members’ leadership in activities that affect people with intellectual and developmental disabilities. • Publish and promote cutting edge research, tools, and materials that inform policy and practice.
• Develop and implement educational opportunities for professionals, policy makers, and others; and • Engage in activities that promote progressive public policy.
Reviewing the past 12 months and projecting into the future on
THE WORK OF THE ASSOCIATION
Activities over the past 12 months
• • • • Change in membership structure to allow differing benefit packages at costs tied to the package Introduction of 2 new member benefits: – weekly Member Update eblast – monthly Field Notes Investment in a new association management software platform Staffing changes to support membership goals
Current AAIDD Membership by Type
Basic ($75) Classic ($125)
Type
Standard ($175) Premium ($250) International Electronic ($50) Emeritus
Total: %
34% 10% 36% 5% 2% 13% 100% Students receive a 20% discount on any membership category
Planned activities for the coming year
• • • • Build membership through targeted outreach – regional targets – partnership targets – Professional interest targets Development of new member benefits: – additional monthly electronic publication – discounts on new educational offerings Build partnerships with other national organizations that advance membership goals Delegations – Cuba in 2011 – Brazil in 2012
Education
Activities over the past 12 months
• • • • Held webinars at about the rate of 1 per month on a variety of topics Provided 2-day trainings on Positive Behavioral Supports and Supervisor Training Launched new online learning program on the Essential Learning platform Developed 2011 conference
Planned activities for the coming year
• • • • • • Build the content and capacity of the online learning platform Continue to host webinars at least monthly Continue our current educational partnership with The Arc through its Autism NOW project Provide a full day symposium at the 2012 IASSID conference Develop 2012 AAIDD conference Co-sponsor the Coleman Institute and the ANCOR Technology conferences
Publications
Activities over the past 12 months
• • • Maintained strong journals program Managed international translations and publishing program Released two titles –
End-of -Life Care for Children and Adults
with Intellectual and Developmental Disabilities, edited by Sandra Friedman and David Helm – Supervisor Training Curriculum and Trainee Guide by Dennis Reid, Marsha Parsons, and Carolyn Green
Planned activities for the coming year
• Journals – Transition to new editor of IDD – Transition to Highwire platform for journals access • Books Released at this conference!
–
Forging a Federal/State Partnership
by Robert Gettings – 2011 update to the State of the States by David Braddock et al
Assessment Tools
Activities over the past 12 months
• • Supports Intensity Scale (SIS) – Staffing changes to support program goals – Refresh of the tool underway – SIS for Children being normed Diagnostic Adaptive Behavior Scale (DABS) – Tool developed, final testing underway
SIS ® in North America In Use State Wide In Use at the County or Provider Level Under Consideration for State Wide Use
SIS ® Worldwide Andorra Argentina Australia Belgium Brazil Canada Chile Columbia China France Iceland Ireland Israel Czech Republic Italy Japan Mexico Netherlands Portugal South Korea In Use State Wide In Use at the County or Provider Level Under Consideration for State Wide Use Spain Taiwan United States
Planned activities for the coming year
• • Supports Intensity Scale (SIS) – Release of refreshed SIS in late 2012 – Release of SIS for Children in 2013 – Ongoing translation, training, and state adoption efforts Diagnostic Adaptive Behavior Scale (DABS) – Release in early 2012
Policy
Activities over the past 12 months
• • • • • • Active member of the Consortium for Citizens with Disabilities (CCD) Co-sponsored the annual Disability Policy Seminar with 5 other national organizations Submitted Amicus briefs on Atkins cases Contributed to joint policy statements with The Arc Submitted comments on Rosa’s law legislation, plans to add a “wandering” code to the ICD-9-CM, others Contributed to the popular press on disability issues
•
Environmental Health Initiative
Chemical Policy Reform – Legislative reform efforts included sign on letters, participation in Congressional hearings and briefings, and commentary on draft legislation – Executive branch efforts included meetings with key federal staff to advance reform efforts and commentary on proposed rules.
• Education and Outreach – Hosted 4 Research and Science webinars and 6 Policy webinars (archived on the website) – Ongoing work with other national and state organizations to advance reform goals – – – Co-hosted Health Advocacy meeting in DC in January Contributed to the popular press on issues of environmental health Holding a post conference workshop on the science, policy, and economics of environmental exposures and the health of people with disabilities.
Planned activities for the coming year
• • Continue all ongoing policy activities Continue to provide comments on draft legislation, proposed rule making, and other federal activities that affect people with intellectual disabilities and their families
Finances
2010 REVENUE, GAINS, AND OTHER SUPPORT $3,433,120
Miscellaneous $39,367 Sales of Books & Assessment Tools $1,346,833 Reprints & Royalties $62,144 Journal Subscriptions $707,723 Investment Income $122,737 Grants, Awards, & Donations $245,117 Fees $411,937 Membership Dues $497,262 (14%)
Taxes $491 Inventory Adjustments $5,959 Advertising $10,174 Insurance $28,031 Depreciation $35,990 Conferences & Meetings $72,248 Travel $134,815
2010 EXPENSES $3,220,157
Salaries & Benefits $1,109,596 Fees for Services $656,106 Information Technology $478,498 Occupancy $309,632 Office Expenses $378,607
Finances
Planned activities for the coming year
• We will – Adhere to a conservative budget for 2011 and plan for modest growth in 2012 – Invest in activities that support goals for membership, education, publications, assessments, and policy – Seek out new funding sources through grants and partnerships
UPCOMING CONFERENCES & EVENTS
Alliance for Full Participation November 17-18, 2011 (Washington, DC) AAIDD Cuba Delegation October 16-21, 2011 (Havana and TBD) Disability Policy Seminar April 23-26, 2012 (Washington, DC) AAIDD Annual Meeting June 2012 (Charlotte, NC) IASSID World Congress July 9-14, 2012 (Halifax, Nova Scotia) AAIDD Brazil Delegation October 20-28, 2012 (Sao Paulo & Rio de Janeiro)