Transcript Slide 1

LOOKING TO THE FUTURE…
COUNCIL OF INTELLECTUAL DISABILITY
AGENCIES
WWW.CIDA.ORG.AU
• Peak body representing nongovernment, not-for-profit agencies
which provide services to Victorians with
intellectual disabilities.
• 100 members throughout Victoria
• Established in 1954
The services we establish both
reflect and confirm society’s belief
at the time about what ‘they’ need
and deserve.
Managing for Inclusion,
Scottish Human Services
• SHIFT FROM EMPHASIS ON NEEDS TO
EMPHASIS ON RIGHTS AND
REQUIREMENTS FOR EXERCISING RIGHTS.
HUMAN RIGHTS NOT SPECIAL NEEDS
• SHIFT TO EMPHASIS ON CHANGING
SOCIETY NOT SIMPLY
ADAPTING/ADJUSTING THE INDIVIDUAL
• FROM COMMUNITY PRESENCE TO
COMMUNITY INCLUSION
• ACCESS TO GENERIC SERVICES,
FACILITIES, ENTITLEMENTS
• RE-SHAPE GENERIC SERVICES /
FACILITIES TO REFLECT COMMUNITY
DIVERSITY
• WHOLE OF GOVERNMENT / WHOLE
OF COMMUNITY APPROACH
•SHIFT MINDSET FROM
PROVISION OF SERVICES TO
PROVISION OF SUPPORT TO LIVE
‘REAL’ LIVES
•CHOICE ABOUT THE KIND OF
LIFE A PERSON WANTS AND THE
KINDS OF SUPPORT THEY WANT
REAL LIVES INCLUDE:
‘…Living in a house in a street, being
known by the neighbours or the person
in the corner shop, having people visit,
going to concerts, taking a trip on a
canal boat, visiting restaurants.’
Kellaway and Burton
IMPORTANCE OF
COMMUNITY
Reciprocity, belonging and being
important to someone are perhaps the
things that help us to be fully human. It is
difficult to see how these can exist if
people are isolated and segregated. Our
work…emphasises the centrality of
assisting people to lead real lives in real
communities.
Kellaway and Burton.
SOCIAL NETWORKS
• Information on 500 adults with intellectual
disability receiving different types of
residential support
• Median size of social networks (excluding
staff) - 2
• Professor Eric Emerson and colleagues, UK
CHANGING ROLE FOR
SPECIALIST SERVICES
• From programs to person centred planning
and individualised suites of support
• From overcoming individual deficits to
supporting quality of life and inclusion
• From providers of programs to agents of
social change and community developers /
connectors / bridge builders
• More flexible
• Changes in funding
FROM MAKE BELIEVE TO
THE REAL WORLD
‘We are on a journey: from the artificial
world we have created for people with
learning [intellectual] disabilities towards
the real world where we dream of
supporting them in ordinary lives in
inclusive communities.’
Changing Days Project
‘We have become quite
sophisticated in helping people
with daily living skills but have
given a great deal more attention to
bed making and budgeting than
befriending. We are helping people
to be competent but they are still
alone.’
Changing Days Project
From tourists to participants in
community:
‘We need to create opportunities for
relationships not just activities.
Shopping malls are great places to
observe people but not great places
for meeting people’
Changing Days Project
Where are we now?
• Most people go to a day centre
• Centres have changed over the years they
now support people to do things in the
community but people still spend a lot of time
in centres and travelling to them.
PRESENT
FUTURE
What would we expect in a
modern day service?
• Small, local bases
• More work opportunities
• More one to one support for joining in community
activities
• Ways for people of all
ages to get into learning and training
Things to get good at...
• Building social supports
around people
• Planning ‘with’ people not
‘for’ them
• Identifying and
developing ‘natural
supports’
• Working with other
people in the community
10 flats, each in walking distance of the others. Each person is the
ordinary tenant of their own flat – may choose to share with friends.
Kim, a KeyRing Network resident,
welcomes visitors to her flat in Bristol.
The new direction
NOW
FUTURE
People often required to fit their
lives into services
People choose and develop
supports
Prescriptive, service driven
planning processes
Person-directed planning
Focus on $’s as solution to
people’s needs
Focus on personal networks and
community
Accountability based on inputs
and outputs
Accountability also based on
personal outcomes
Growth funding – IP&S Process
Diagram Stages 1-3
Stage 1
Identify, Prioritise
and Target
Identify individuals
based on priority
indicators
Formal disability
supports
Stage 2
Planning
Information
gathering
(assessment)
Develop
individual
plan
Independent planner
Stage 3
Verify and Approve
Refine and
verify plan
Approve
funding
Regional DHS panel
Other formal
supports
Informal
supports
INTERNATIONAL SHIFT
• UK – VALUING PEOPLE WHITE PAPER
• USA
• CANADA
– BRITISH COLUMBIA
DAY SERVICES MODERNISATION
TOOL KIT
PART ONE
Vision
Children and adults with
developmental disabilities, supported
by family members and friends, will
have the opportunities and supports
needed to pursue their goals and
participate as full and valued
citizens in their communities.
Community Living British Columbia Interim Authority
Princeton
Penticton
Individuals, Families
and Communities
OsoyoosIndividuals
Community
Service Providers
and families sometimes need support to meet their needs and
achieve their goals. CLBC will have a variety of responsibilities,
Kelowna Community
including:
Living
Centre
• Policy development
• Determining eligibility
Community Living Centres and Facilitators will provide information, advice,
• Approving
and providing
funding
community
servicesneeds
and and to
and practical
assistance
to families
of for
children
with special
supports
adults who
have a developmental disability, their families and friends.
• Working
partnershipwith,
withbut
service
Facilitators
will in
collaborate
workproviders
independently from, providers
• Working
in partnership
with families
and those
making
funding decisions.
• Providing independent planning support
• Establishing safeguards for individuals and families and ensuring
they are followed by service providers
Board of Directors
Community Living British Columbia
Independent Planning Support:
A key element of change
Facilitators will provide information,
advice and practical assistance to
eligible individuals and families,
independent from service providers and
funding decisions, to assist them to
develop and implement personal support
plans.
Community Living British Columbia Interim Authority
Fort Nelson
Fort St. John
Dawson Creek
Terrace
Smithers
Prince Rupert
Kitimat
Burns Lake
Community
Living Centres
and Communitybased Staff
Prince George
Vanderhoof
Quesnel
Willia ms Lake
100 Mile House
Revelstoke
Kamloops
Port Hardy
Salmon Arm
Golden
Armstrong
Vernon Fernie/Sparwood
Powell River
Merritt
Cra nbrook
Squamish
Kelowna
Sechelt Mission Penticton
Nelson
Courtena y/Comox
Hope
North Shore
Creston
Castle gar
Princeton
Parksville
Abbotsford
Trail
Port Alberni
Oliver/Osoyos
Chilliwack
Community Living Centers
Surrey East & West
Nanaimo
Duncan
Burnaby/New Westminster
Community Based Staff
Vancouver/Richmond
Victoria
Campbell River
It’s my life!
‘Person centred’ means doing
things in a way that the person
wants and which helps them
to be part of their community.
If someone is in the centre of
something, they are the most
important person.
What does person centred planning
mean?
It means putting the person at the centre
of planning for their lives.
Person centred planning is
about:
•Listening to and learning about
what people want from their lives
•Helping people to think about what
they want now and in the future
Family, friends, professionals and
services working together with the
person to make this happen
“Person centred planning means
that I get to plan my life the way I
want. It doesn’t mean that I have
to do it on my own. It means that
other people who I like and trust
help me – on my terms”
CIRCLE OF SUPPORT
• A group of people who meet together on a
regular basis to help a friend or family
member who needs some extra support to
accomplish their personal goals in life.
• an informal network of associates, friends and
family
• acts as a community around the 'focus person'
• pools skills and resources and shares ideas and
tasks to achieve a set of objectives derived from
what the focus person perceives as progression
towards a fuller life
BUILDING INCLUSIVE AND
SUPPORTIVE COMMUNITIES

EDUCATION AND INFORMATION

CAPACITY BUILDING
•
COMMUNITY DEVELOPMENT AND
BRIDGE BUILDING
Is there room in
your workplace
for someone like
me?
When I was young they
put people like me in
institutions not in
jobs…Today I have a job
that I really love and my
boss is happy too
because I am good at my
work. People called
mentally handicapped can
do a lot of jobs really well
when someone gives
them a chance.
Barry Smith,
Usher
Her Disability
shouldn’t
exclude
her!
You wouldn’t
want to be held
back by an
outdated label.
Neither did we.
INVOLVING ALL NEIGHBORS
Building inclusive communities
in Seattle
Project of the City of Seattle Department of
Neighbourhoods
People who know a lot about their
neighbourhood and / or are involved in
civic associations - assist in connecting a
person with an intellectual disability with
associations or activities that match their
interests.
Implications for staff role and identity
•
Staff can expect to work with more autonomy and
flexibility, but less comfort
•
Staff expected to work in other people’s homes and
workplaces - loss of territory
•
Staff expected to be on tap, not on top - developing
adult:adult relationships
•
Staff practice open to view by the public - more
ambiguity and risk to manage
•
Staff role more about connecting, less about
correcting
Managing for Inclusion, Scottish Human Services
Community Support Facilitator
Job Profile
Job Purpose
To enable men and women with learning disabilities to have
more control over their lives through person centred
approaches, which maximise community inclusion and
participation and are responsive to the needs and wishes of
the individual.
To act on behalf of the Social Services Department in
fulfilling statutory obligations under relevant legislation,
providing a safe, flexible and responsive service, when and
where needed by service users and their carers.
•Giving practical, personal and emotional support to enable
service users and their carers to meet their assessed need
by maintaining and promoting their health, physical and
mental well being and social development.
•Adopting a service co-ordination role, working in
partnership with wider systems, to ensure a person centred
approach, whilst enabling the delivery of a flexible and
responsive care plan based on outcomes.
•Enabling people to lead full lives and develop a range of
relations through community networking and community
building to promote individual inclusion and participation,
whilst ensuring that men and women with learning
disabilities lead lives that are safe from harm and abuse.
• Maximising the involvement of men and women
with learning disabilities and their carers in
evaluating, monitoring and reviewing the
services they receive.
• Seeking clarity about the responses needed to
promote independence, identifying and
minimising any risk through the process of Risk
Assessment and Risk Management.
• Working as part of a team or as an individual in
a range of community and domiciliary settings,
involving a good knowledge of Health and
Safety and personal safety issues.
• Keeping abreast of practice development and
demonstrating a commitment to personal
development through formal and informal
training opportunities.
• Administering medications in keeping with the
xxxxx County Council Administration of
Medication and Related Tasks policy.
• Taking responsibility for and dealing
appropriately with any emergencies that may
arise, including adherence to the Protection of
Vulnerable Adults from Abuse policy.
• Developing relevant strategies to facilitate wider
communication skills and opportunities for men
and women with learning disabilities, e.g. Total
Communication systems.
2005 CIDA CONFERENCE
TOOLS FOR THE TWENTY-FIRST CENTURY:
Modernising supports for people with
disabilities
Thursday, 12th and Friday, 13th May
Melbourne Park Function Centre
(03) 8415 0155
[email protected]
www.cida.org.au