Transcript Document
Health information for children & young people Claire Murray Joint Head of Operations Patient Information Forum www.pifonline.org.uk Promoting improvement in the quality of health and social care Patient Information Forum (PiF) • 550 members: NHS, voluntary, academic, commercial • Improve quality and access to health information = improve outcomes and experience of services • Guide to Producing Health Information for Children & Young People Why health info for children & young people? • Policy & legal drivers • • • • UN Convention GMC Guidance CMO Consent • Improved outcomes • • PiF Case for Information Report Asthma UK • Communication needs • • • • • Adult vs child, 4 year old vs 11 year old Capacity Language Format Engagement Good communication • Barriers include: • • • • • Staff talking to parents instead of the child or young people Jargon A lack of respect from professionals Not being involved in decisions Care settings that are unwelcoming or not age appropriate • It is important to: • • • • • • Establish what children and young people want and need to know Listen to them and respect their views Provide information appropriate to their age and maturity Use language they can understand Consider the impact of surroundings and non-verbal communication Involve their parents or carers • Take a holistic approach Creating information ‘with’ rather than ‘for’ • Working with children and young people to create health information = • • • • Your information is relevant, and therefore more likely to be used Offer new insights for professionals Help young people learn more about their own health Builds confidence and self-esteem • Meaningful & inclusive engagement • Evaluating impact Creating health information with… Sharing information • Information needs change • Look at other resources that have been developed for your target audience • Possibilities provided by technology • Top tips for writing In summary… • To be effective health information support should be created with and specifically designed for children and young people • www.pifonline.org.uk/resources • [email protected] • Any questions?