Transcript Slide 1
A Training Intervention Wednesday 9 October 2013 Available to over 1.1 million Women aged 25 to 60 National Cancer Screening Service • BreastCheck – February 2000 (50-64 yrs) • CervicalCheck – September 2008 (25-60 yrs) • BowelScreen – November 2012 (55-74 yrs) • Diabetic RetinaScreen – February 2013 (12+) Eligible Population: > 2 million individuals Aim: To reduce incidence and /or mortality in the screened population. Cervical cancer in Ireland • 358 newly diagnosed cases of invasive cervical cancer. • 93 deaths in 2009. • Average age diagnosis – 46 years • Average age death – 56 years Survival in Ireland is slightly lower than the European average • The trends in mortality since 1978 show an increase of 1.5% p.a. • 36% of women with cervical cancer die from the disease • within 5 years of diagnosis •Source: NCRI, 2011. •Source: Connor, et al, 2009. 4 CervicalCheck • The overall aim of CervicalCheck is to reduce the incidence and the death rate from cervical cancer in Ireland. • CervicalCheck provides free smear tests - through the primary care setting - to 1.1 million women - aged 25 - 60 years, eligible for screening • Free Cervical Smear Test – 25 – 44 3 yearly 45 – 60 5 yearly • A successful national programme in Ireland has the potential to cut current mortality rates from cervical cancer by up to 80%. Access Officer • The Access Officer acts as a point of contact for people with disabilities wishing to access information and services. • Arranges & co-ordinates the provision of assistance and guidance to people with disabilities in accessing screening • Commitment to Supporting Disability • CervicalCheck Access Officer Fiona Treacy 061 406560 or by email to [email protected]. • BreastCheck Access Officer Aoife Collins 021 4649720 or by email to [email protected] Cervical Screening for Women with Disability • National Cancer Screening Services (NCSS) identified that women from minority groups had difficulties in accessing screening services, specifically in the area of intellectual disability (ID) where consent to screening is a barrier for these women. • Women within this group vary widely in their degree of ID and in their ability to understand, reason and communicate. • While many women with ID will be capable of making decisions and giving informed consent and in this context, it is important that each woman should be assessed with regard to her ability of making an informed choice. Workshop Cancer Screening and Early Detection • The National Cancer Screening Service (NCSS) in conjunction with the National Cancer Control Programme (NCCP) offered a free one-day training workshop on cancer screening and early detection to staff working with clients with intellectual disabilities. • The session focused on the national populationbased cancer screening programmes in Ireland BreastCheck and CervicalCheck. Training Programme The aim of the training is to enable attendees to support facilitators working with clients with intellectual disability to make informed choices about participating in screening programmes. Training Programme • Cancer Screening and Early Detection • Requirement for Screening • Eligibility • Consent • Access to Services Representation of support agencies at training programmes Reflections of the attendees on the training programme. “Review current policies and practices in light of national guidelines.” “Provide information for service users in easy to use language.” “Look at individuals in my centre who are eligible for screening&check they are registered. Communicate this information to my colleagues.” As a result of this Training, I will: “Feedback positive aspects in relation to breast/cervical/prostat e/melanoma cancer to service users and colleagues”. “Be more aware of the need for screening in the age groups. Disseminate this information to other points of the service.” “Consult with my CEO to develop specific strategy to focus on educating people we support in being aware of it. Have to talk to training office in regards to teaching about subject”. Reflections of the attendees on the training programme. “Thank you so much. It was the best training I’ve attended in a long time.” “The importance of awareness & increasing my understanding of doing the right thing, like explaining procedures and answering peoples concerns.” “That a forum could be set up to involve people with an ID, where they could ask questions directly and discuss their own fears.” The things I found most useful from this training are: “The ways in which I can offer support and help service users who may need to go through the screening process.” Distinguishing screening programmes – consent issues, opt-out clause available.” “ “I learned a lot today and feel confident and motivated to promote screening in my organisation.” “Update in screening including PSA issues.” Outcome of training: • Attendees commitment to disseminate & cascade information • Review current policies and practices • Ensure that all eligible women in support agencies are supported appropriately - Registration - Consent - Access Further Developments • The NCSS extending this training and plan to roll out training Nationally 2013. Training Schedule 2013 • Free One Day Workshop Cancer Screening and Early Detection Galway Cork Dublin – 15 October 2013 – 12 November 2013 – 20 November 2013