Transcript Komen Tri

SUSAN G. KOMEN FOR THE CURE®
TRI-CITIES AFFILIATE
COMMUNITY NEEDS ASSESSMENT
AND
BUILDING
PARTNERSHIPS
CHERYL YOULAND, EXECUTIVE DIRECTOR
GRACE EKUA GHANSAH, MPH, CHES
TONI HERRING BOUNDS, PHD, MPH
COLLEGE OF PUBLIC HEALTH
EAST TENNESSEE STATE UNIVERSITY
APRIL 23, 2009
Introduction
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Susan G. Komen for the Cure, Tri-Cities®
The Tri-Cities Affiliate of Susan G. Komen for the
Cure® was established in 2005 to serve 22 counties
in Southwest VA (9), Northeast TN(8), and Western
NC(5).
http://www.komentricities.org
Background
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The goal of the Tri-Cities Affiliate is to provide
breast cancer education, mammograms, early
detection and treatment options through its
Grantees to women who are under-served or underinsured in the service region.
To effectively fulfill its goal of service delivery, the
affiliate completes a community needs assessment
every two-three years.
Background
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Komen Tri-Cities contracted with researchers at the
College of Public Health at East Tennessee State
University (ETSU) to provide epidemiologic support and
community participatory research assistance with the
data collection and analysis phase of the community
assessment.
A team consisting of Affiliate board members and the
ETSU researchers was formed.
Sources of Data
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Data provided by Susan G. Komen for the Cure®
State Cancer Registries
Local health departments/districts
Cancer control programs
Centers for Disease Control and Prevention (CDC)
Surveillance Epidemiology and End Results (SEER)
US Census data
Behavioral Risk Factor Surveillance System (BRFSS)
Appalachian Regional Commission (ARC)
Factors of Interest
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Breast cancer incidence rates
Breast cancer mortality rates
Demographics (age, race, income)
ARC economic classification status
Mammography use
Insurance status
Roundtable Meetings
Partnerships
County Selection for Roundtables
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From the data compiled by ETSU, 6 counties (2 from
each of the 3 states) were selected to participate in
local community qualitative data collection.
The counties selected from TN: Hawkins (rural) and
Sullivan (urban)
Grant Funding
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To help fund discussions in the 6 counties, the Team
responded to a Request for Proposal from the
Office of Rural and Community Health &
Community Partnerships at ETSU.
The team was granted $2500 to support the
community roundtable discussions.
Roundtable Discussions
Listening to the Community Voices
Roundtable Discussions
COUNTY
COMMUNITY
SESSION DATE
Big Stone Gap
NUMBER OF
PARTICIPANTS
14
Wise
Washington
Abingdon
13
January 15, 2009
Hawkins
Rogersville
11
January 21, 2009
Sullivan
Blountville
15
January 22, 2009
Madison
Marshall
13
February 10, 2009
Avery
Linville
16
February 11, 2009
January 14, 2009
Roundtable Attendees
82 people participated in the discussions
 Participants represented:
- State Cancer Registries
- State Cancer Control Programs
- Local health departments
- Breast cancer survivors
- Clergy/Nurses/Medical Staff
- American Cancer Society (ACS)
-Other local cancer-related organizations
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Roundtable Agenda
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Grant-required pre-survey
Presentation about the mission and goal of Susan G.
Komen for the Cure® and Komen Tri-Cities.
Presentation of state and county level breast cancer
statistics
Presentation of state cancer plan/state coalition
Roundtable Discussions
Grant-required post-survey
Discussion Topics
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The discussions included 3 broad topics:
- Barriers to accessing breast cancer services
- Solutions to those barriers
- Best practices
Major Themes
Results of Discussions
Barriers, Solutions, and Best Practices
Major Themes
Barriers
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Lack of Transportation to screening & treatment
No/inadequate insurance- high deductibles
Lack of knowledge about available
resources/services
Do not want to know status/fear of the unknown
No time; too busy
Lack of Education
Lack of financial support
Major Themes
Solutions
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Knowledge of existing programs
Grants for support
Financial help
Patient navigator
Support groups
Breast Health Education
Relate to culture/Storytelling
Major Themes
Best Practices
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Cancer Resource Center
Good patient navigation
Physicians keep tract of patients
Rural health initiative
Rural health grants
BCCEDP/Komen/ACS grants
Education – middle school & high school
Pink day/Pink nails
Family caregiver program
School/Parish nurses
Go where they are
ACS programs for patients
Conclusion (Roundtable)
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The following emerged from all community roundtable
discussions, as major themes that could be addressed by
Komen Tri-Cities:
- Access to screening and treatment
- Transportation, free/low-cost mammograms, etc.
- Comprehensive breast health education
- Community, providers, physicians, women, etc.
- Access to and knowledge of existing resources
- Support groups, patient navigators, story telling, etc.
Reference
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Appalachian Regional Commission Can be found at http://www.arc.gov/index
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Cancer Control P.L.A.N.E.T Can be found at http://cancercontrolplanet.cancer.gov/
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Centers for Disease Control and Prevention (CDC). http://www.cdc.gov/cancer/breast/statistics/state.htm
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Centers for Disease Control and Prevention (CDC). Behavioral Risk Factor Surveillance System Survey Data. Atlanta, Georgia: U.S. Department of Health
and Human Services, Centers for Disease Control and Prevention, 2008. http://www.cdc.gov/BRFSS/
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http://statecancerprofiles.cancer.gov/cgi-bin/quickprofiles/profile
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http://www.komentricities.org/AboutUs
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http://www.komentricities.org/komenhistory
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http://www.komentricities.org/UserImages/Pictures%20149.jpg
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http://www.thomsonreuters.com
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National Cancer Institute Can be found at http://www.cancer.gov/
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North Carolina Central Cancer Registry. Can be found at www.schs.state.nc.us/SCHS/CCR
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North Carolina Comprehensive Cancer Program. Can be found at http://www.nccancer.com/
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State of Tennessee Comprehensive Cancer Control Plan 2009-2012 Can be found at http://health.state.tn.us/CCCP/TCCC_Plan.pdf
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Surveillance Epidemiology and End Results. Can be found at http://seer.cancer.gov/statistics
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Tennessee Cancer Registry. Can be found at http://health.state.tn.us/TCR
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Tennessee Comprehensive Cancer Control Coalition. Can be found at http://health.state.tn.us/cccp/index.htm
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U.S. Cancer Statistics Working Group. United States Cancer Statistics: 1999–2005 Incidence and Mortality Web-based Report. Atlanta: U.S. Department
of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute; 2009. Available at: www.cdc.gov/uscs
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US Census Bureau. Can be found at http://www.census.gov/
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Virginia Department of Health Cancer Plan 2008. Can be found at http://www.vahealth.org/cdpc/cancerprevention/
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Virginia Cancer Registry Can be found at http://www.vahealth.org/cdpc/cancerregistry
Questions/comments?
Thank you