Transcript Document
To Share or Not to Share? IGR 16th October 2013 Janet Davies, Director of Nursing & Service Delivery Information Focus on Patients Essential for Care Rules and Guidance Critical for Governance Can restrict good practice Citizens Said Powerful stories reinforcing what the Future Forum heard Strong support for – more sharing of information to support their care – anonymous data to be used “for the public good” – research but plea to be asked before information is used Antipathy to their identifiable information being used for other purposes No surprises and the complex area when carers are involved Organisations Said Anxious about sharing Concerns about organisations’ reputation Causes: – The Caldicott principles especially number 4 – Large fines from ICO for data breaches – Greater awareness of data protection – More care pathways cross organisational boundaries Increased caution among health & care professionals Nurses Said Prevented from communicating with patients using technology of choice Concerns about sharing information between health and social care causing problems where teams interface Sharing with independent/third sector problematic Families are treated differently in health and social care Rules and Guidance are all different – and creating confusion Training not fit for purpose for all Rules go beyond Caldicott principles Challenge To make recommendations that change the culture while staying within the law and maintaining focus on good IG practice The Final Report - Purpose Enhance trust Better balance the risks of failure to maintain confidentiality, and failure to share Simplify information governance, and for it to be seen as more closely aligned to clinical governance, not as a technical issue 14 Chapters 26 Recommendations A new Principle The duty to share information can be as important as the duty to protect patient confidentiality THE GOVERNMENT RESPONSE ISOG – take forward work IIGOP – Oversee activity NEW RULES HSCIC: Treating confidential information with respect Rule 2: Members of the Care team should share confidential information when it is needed for the safe and effective care of an individual