Transcript Sponsorship Basics and Keys to Success

Florida Chapter
2010 Mission
Success
236,802
The answer is – ALL of
them!
• Every year since 2007, every baby in Florida has been
screened shortly after birth for more than 30 metabolic
conditions that can cause disability or death if left
undiagnosed and untreated -- Since almost 240,000 babies
are born each year in Florida, that’s nearly a million babies!
• This expanded newborn screening happened because of
the passion of our volunteers, who worked tirelessly to
expand newborn screening from 9 tests per baby to more
than 30. Nearly a quarter of a million Florida babies benefit
every year from the work of the March of Dimes network of
volunteers.
We do more in your community than “just” grants. . .
We have touched the lives of every baby:
• Folic acid education
• Advocacy to protect health care access for moms and babies
• Supporting the state birth defects registry
• Instrumental in expanding newborn screening to 35 tests for every baby born in Florida
• Statewide education initiatives, including Vitagrant, the “Brain Card”, Healthy Babies Healthy
Business, and others
• Mobile prenatal care services
• Continuous public awareness and education on issues affecting maternal and infant health
• Perinatal Quality Improvement initiatives
• Innovative preconception health programs
• Support for families in the NICU
4
Preterm Birth Rates by Gestational Age
U. S., 1990, 2000, 2005, 2006, 2007*, 2008*
Percent
*provisional
Source: National Vital Statistics Reports Vol. 58, Number 16 April 2010.
Preterm Birth in Florida
Preterm is less than 37 completed weeks gestation.
Source: National Center for Health Statistics, final natality data; 2007-8
preliminary data. Prepared by March of Dimes Perinatal Data Center,
2008
2006-2008: US Preterm
Birth Rate Continues to Fall
•
•
•
•
US 2006 preterm birth rate was 12.8%
US 2008 preterm birth rate was 12.3%
In 92% (n=46) of states the rate decreased
The preterm birth rate in Florida DID NOT
CHANGE: 13.8% in 2006 to 13.8% in 2008
Cost of Preterm Birth
• The direct health care costs to employers for a
premature baby, from birth to first year of life,
averages $49,033 (almost 11 times higher than for
a healthy baby).
• Cost to employers for maternal health care,
including prenatal care, delivery and postpartum
care, increases 75% with a diagnosis of
prematurity (an
$8,000 difference).
Prematurity Awareness
• Prematurity Awareness Month/Day is
celebrated statewide every year. Some
examples of 2009 activities include:
– Proclamations from the mayors of cities
– Awareness activities in schools, led by
Chain Reaction
– Awareness messages in programs and
promotions of all fall special events
– Interviews with parents of preemies in local
media
Prematurity Awareness
– Recognition of NICU families and NICU
staff in hospitals statewide
– Distribution of 5000+ prematurity
awareness message cards, attached to
purple awareness bands, on the University
of FL campus
– Billboards and banners strategically placed
in high traffic areas
– Participation of Houses of Worship
– Building lightings
Program Spotlight –NICU Family
Support®
March of Dimes NICU Family Support ® is a family-centered hospitalbased program that provides help and comfort to families whose babies
are in the neonatal intensive care unit. The NICU Family Support ®
Center is a web based center where parents can access the latest
medical information and share their experiences in online support
communities.
• 100 locations throughout the United States helps 40,000 families each
year
Progress in Serving
Families
NICU Family Support®
is now in 14 Florida
hospitals (soon to be 15)
reaching more than
12,000 families annually.
13 of these hospitals have
NICU Centers and one, at
Shands Hospital @ the
University of Florida in
Gainesville, has the full
NICU Family Support®
program.
NICU Family Support®
In Gainesville in 2009,
• 1,347 family members participated in NICU Family Support®
activities, including parent education hours, weekly lunches,
twice weekly crafts sessions and special holiday recognitions,
such as the annual Thanksgiving Morning Brunch.
• 693 families received customized Parent Care Kits with helpful
educational materials and practical gifts, such as disposable
cameras and March of Dimes bears for the babies.
• A NICU Family Support Specialist is on-site at the hospital,
interacting with families on a daily basis.
• 10 trained graduate parents provide one-on-one support.
NICU Family Support®
What parents are saying….
• “I want to thank the March of Dimes for this wonderful
program. You have touched many families like mine who
will never forget your generosity and your care for us. “
• “The March of Dimes NICU Family Support program at the
University of Florida played an invaluable role in my
family’s life. The 128 days of our son’s NICU stay would not
have been survivable without the kind words, activities,
pictures, fellowship opportunities and meals that the March
of Dimes provided. “
• “ I was so lost, not knowing where to turn. Then, the March
of Dimes NICU specialist came with a caring smile, offering
encouragement, information and a place to be. I will be
forever grateful for this wonderful program.”
NICU Family Support®
What NICU staff members are saying…
• ”The NICU Family Support volunteers and staff are an asset to
Shands and to the Gainesville community. Thank you for the
time and energy you put into providing comfort and support to
our families. The March of Dimes is making the world a better
place!” --NICU Social Worker
• “I can’t tell you what a wonderful addition NICU Family Support
has been to our unit. It is so important for parents to have
someone to talk to who is not a part of the medical staff. You
have provided that for them. And it is so important for them to
have activities that get them out of the high-stress environment
of the NICU. When they go to a family activity, they come
back as better parents.” --NICU nurse
• “NICU Family Support is making it easier for parents to be
parents.” NICU educator
--
NICU Centers
• Information Centers (kiosks) are in 13 FL
hospitals with Level II or III NICUs
• They provide materials , in English and Spanish,
that NICU parents can take home
• There is a built-in computer where parents can
access MOD on-line resources
• Most NICU Centers in Florida were funded by a
$300,000 two-year grant from Wal-Mart secured
by the Florida Chapter
• Newest Center funded by a gift from Craig
Technologies
16
The Big 5 Idea
• What are the unique opportunities for the
Big 5 States to accomplish something
significant...
Big 5 States
•
Births
Preterm Births
C-Sections
California
562,440
57,681
10.7%
176,057
31.3%
Texas
399,603
54,612
13.7%
132,528
33.2%
Florida
236,802
32,612
13.8%
85,259
36.1%
New York
250,104
30,946
12.4%
81,055
32.6%
Illinois
180,572
23,955
13.3%
53,119
29.6%
Big 5 States - Total
• Together, the Big 5 States account for:
•
•
•
•
•
•
Births
38.2%
Hispanic Births
64.0%
Non-Hispanic Black Births
32.9%
Preterm Births
36.8%
Late Preterm Births
36.8%
• C-Sections
40.0%
•
Source: National Center for Health Statistics
85,259
Definitions based on the Last Menstrual Period
• Preterm: live birth between 20 weeks and before
• 37 completed weeks of gestation (140-259 days)
– Late Preterm: preterm birth at 34 weeks 0/7 days
to 36 weeks 6/7 days (239-259 days)
• Term: live birth between 37 weeks 0/7 days to
• 41 weeks 6/7 days (260-294 days)
• Post-term: live birth from 42 weeks 0/7 days
• (295+ days)
•
Engle WE. Semin Perinatol 30:2-6, 2006
Infant Mortality among Late Preterm and Term
Singletons, United States, 1995 - 2002
Rate per 1,000 live births
10
9.5
8.9
8.7
8.3
8
7.8
8.1
7.6
7.9
6
4
3.0
2.9
2.8
2.7
2.6
2.6
2.5
2.4
1995
1996
1997
1998
1999
2000
2001
2002
2
0
Late-Preterm Infants
Term Infants
Late preterm is between 34 and 36 weeks gestation
Source: National Center for Health Statistics, period linked birth/infant death data
Prepared by March of Dimes Perinatal Data Center, 2007
Terminology
Late Preterm
Early Term
First day of
LMP
Week #
0
20 0/7
340/7
Preterm
37 0/7 39 0/7
Term
416/7
Post term
Modified from Drawing courtesy of William Engle, MD, Indiana University
Raju TNK. Pediatrics , 2006;118 1207. Oshiro BT Obstet Gynecol 2009;113:804
Big 5 Data Driven QI
12/08 – Today
 Formal Leadership Circle established
 Webinars held to educate and outline how a state
can roll out a population-based data driven QI
initiative
 States have assessed capacities to rollout datadriven QI
 Big 5 portal developed
 State Teams redefined and grown
 Interest expressed by AMCHP and CDC
Big 5 Hospital Network
• Goal: To eliminate non-medically indicated






deliveries <39 weeks in network hospitals piloting
the toolkit.
A minimum of one hospital from each Big 5 state
will be recruited to pilot the <39 week toolkit
Hospital QI teams will lead policy and procedure
changes within their institution
Hospital teams will participate on monthly
conference calls
Data will be collected and analyzed
Tools and lessons learned will be shared
Network Timeline 9/1/2010 – 12/2011
FPQC
Florida Perinatal
Quality Collaborative
Promoting better outcomes for our mothers and babies
Leadership:
Dr. John Curran -- Chair, Florida Perinatal Quality
Collaborative
Dr. Bill Sappenfield – Co-chair, March of Dimes “Big 5”
Perinatal Quality Improvement Committee
FPQC – VISION
Improve Florida’s maternal and infant health
outcomes through assuring quality perinatal care
for all of Florida’s women and infants.
Purpose: To improve the understanding of possible root
causes of adverse birth and infant outcomes for Florida
residents.
Measure infant/birth outcomes and the effect of generated
perinatal interventions to address those outcomes.
Supporting Perinatal QI
• The Florida Chapter Program Services Committee
voted to make perinatal quality improvement one of
our priorities for grant funding for 2010-2012
• In 2010, Florida Chapter Grant funds will provide
$100,000 for the this program, along with a $25,000
grant from our National Office
• The grants will fund the 5 hospital pilot sites, plus
provide technical support for hospitals and
infrastructure for the Florida Perinatal Quality
Collaborative
• The State of Florida was able to leverage these funds
with an additional $400,000 (which makes our
$125,000 investment go a long way!)
And so. . .We had a Party!
Mission Successes!
RESEARCH
March of Dimes research has contributed in life-saving
treatments and preventative interventions for babies
worldwide. March of Dimes funded more than $112 million
nationwide in active research grants in 2008.
Between 2008 and 2010, more than $900,000 has been
invested in Florida. These studies will ultimately increase
the number of healthy births in Florida and the US.
More on Community Grants
• From 2008-2010, the March of Dimes has invested more
than $1.6 million dollars into Florida Chapter Grants.
• This money has been used to further the Prematurity
Campaign by funding community grants providing
enhanced prenatal education, preconception education,
risk reduction and professional development.
• Grants have been awarded in all seven FL Chapter
Divisions and are active in 2010 in more than half of
Florida’s 67 counties.
• By the end of these 3 years, an estimated 30,000 + pregnant
women, families and professionals will have received direct
services and education from March of Dimes community
grants.
Interconception Care Pilots
• The Florida Chapter PSC developed a plan to reach out to
women who have already had a baby born preterm, or with
other health problems, to help reduce the chance that
problems could reoccur in subsequent pregnancies.
• Projects reach out to women while their babies are still in
the NICU (or after a fetal or infant loss) to assist them in
taking steps to improve their overall health and reduce
risks.
• Moms receive education, support, referrals, and learn how
to address issues like poor nutrition and lack of exercise
• Three Florida sites: ICC in Hillsborough County,
Empowering Women for Wellness in Broward County, and
the Camellia Project in Duval County.
Community Awards
• Community awards are grants in amounts of
$3000 or less
• 10% of the Chapter’s overall grant line was set
aside to provide support in communities
throughout the state ($53,400)
• 25 Community grants were awarded in 2010, with
projects supported in every Division
• Along with other chapter grants, we have grantfunded projects in more than half of Florida
counties.
MOMmobile –Prenatal Medical Mobile Unit
History of Success and collaboration 1992-2010
Since 1992, the MOMmobile clinic has provided geographically accessible, free
prenatal care, screenings, health education, nutritional counseling and postpartum care
to over 34,000 uninsured or underinsured women in South Miami preventing thousands
of poor pregnancy outcomes.
The Miami-Dade County Health Department operates and staff’s the clinic with an
experienced team of health professionals.
Mission Success through Policy
Change
NEWBORN SCREENING
The March of Dimes recommends screening all
newborns for 29
metabolic and genetic disorders. In 2006, Florida’s
Newborn Screening
Program expanded testing of newborn conditions to screen
for a total
of 35 disorders. This expansion has lead to a greater
number of babies
identified with new disorders that are treatable.
Accordingly, the American Academy of Pediatrics
Mission Success through Policy
Change
MEDICAID ELIGIBILITY FOR PREGNANT WOMEN
Because of our combined advocacy efforts at the national and
chapter level, pregnant women will have better access to
health care insurance. Locally, pregnant women on Medicaid
with incomes below 185% of the federal poverty level will
continue to have access to maternity care to increase early
entry into prenatal care.
Mission Success through Policy
Change
IMMUNIZATIONS
The March of Dimes began with a mission to prevent polio and
funded research that produced vaccines that virtually have
eliminated polio epidemics. Today, the March of Dimes promotes
global vaccine programs and advocates for funding to vaccinate
against rubella and measles. This year in Florida, current vaccine
and immunization requirements were protected to ensure that
children, pregnant women, and women of childbearing age are
protected from vaccine-preventable diseases.
And so much more. . .
• Questions?