Transcript Parental Self

Parental Self-Efficacy:
What Is It? Why It Matters When
Caring For Children With Chronic
Conditions
Parent Presenters:
Ed Goettel, Rich Murakami, Veronica Very, Lynn Vigo
Moderator:
Lyn Kratz
Family-Centered Care
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An approach to health care that is
grounded in mutually beneficial
partnerships among patients, families, and
health care practitioners
FCC Milestones
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1989: Surgeon General Everett Koop, MD,
Maternal and Child Health program mandate
(1989)
1992: Formation of Institute for FamilyCentered Care
2000: Clinical goal: Children’s Hospital and
Regional Medical Center
2000: Legacy goal: CHRMC
FCC Milestones
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2001: Institute of Medicine’s Crossing the Quality
Chasm
2003: Endorsements by American Academy of
Pediatrics and American Nurses Association and
Society for Pediatric Nurses
2005: American Hospital Association, Strategies
for Leadership: Advancing the Practice of Patient- and
Family-Centered Care
Family-Centered Care Principles
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Dignity and respect
Information sharing and open
communication
Participation
Collaboration
Impact on Families
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New roles and responsibilities
Elaborate home health regimens
Increased involvement in decision making
Balancing family routines
Self-Efficacy
The belief that you have the skills and knowledge
necessary to do what the situation requires of
you.
Self-Efficacy & Health Research
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Smoking-cessation relapse (Godding & Glasgow, 1985)
Pain experiences and management (Lefebvre et al,
1999, Tan & Poser, 1982)
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Improving health outcomes (Buckelew et al, 1996,
Smarr, et al, 1997, Taal, Rasker, & Wiegman, 1996, and
numerous others)
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Reducing health care costs (Lorig et al, 1993)
Defining Parental Self-Efficacy
“A parent’s judgment of how
effectively they can manage their
parenting responsibilities.”
Research Findings
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Adjustment to their role of parent of a child
with special needs (Cohen, 1999; Stepanek, 1995)
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Better adherence to recommended medical
regimen (Bartholomew, 1993: Clark, 1994; Hanson, 1998)
Research Findings
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Better predictor of the child’s emotional
adjustment to their disease (Demaso, 1991)
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Better health outcomes (Bartholomew, 1993;
Clark, 1998)
Research Findings
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Higher satisfaction with health care
(Wayman, 2000)
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Taking a more active role in their child’s health
care experience (Wayman, 2002)
Developing Self-Efficacy:
Four Key Ways
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Mastery
Vicarious Experiences
Social Persuasion
Managing Stressful Emotions
Mastery
Vicarious Experiences
Social Persuasion
Managing Stressful
Emotions
Mastery
Physicians helped by:
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Listening
Taking her concerns seriously
Partnering with mutual respect
“Learning to trust my instincts”
“Finding the courage to speak up”
“Becoming a master sleuth”
Vicarious Experiences
Providers helped by:
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Understanding the importance of connecting with
other parents
Creating opportunities to share opinions and
observations
“Being supported and guided by a parent mentor”
“Learning that speaking up can make a difference”
Social Persuasion
Providers helped by:
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Affirming and validating strengths and knowledge
Taking time to teach about the disease
Giving hope through examples of others
“Your baby is special”
“You can do this. Trust yourself ”
“We felt empowered by them”
Managing Stressful Emotions
Providers helped by:
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Taking time to learn what would be most helpful
Not judging the book by its the cover
Being sensitive to the underlying emotions
“Knowing what works best for me”
“Recognizing chronic sorrow”
Family Leadership Training
Effective Presentations:
Teaching Through Stories
What we know and believe
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Parents have a lot to teach, share and offer.
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Stories can move the listener to think and act
differently.
“Know and Believe” continued. . .
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Effective presenters are self-aware and skilled
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Solid preparation leads to a strong presentation
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Good trainings include a balanced mix
Modules
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Module #1: Building self-awareness
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Module #2: Developing a presentation
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Module #3: Delivering a presentation
From parents. . .
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“Hearing other stories in the room in such a safe
environment made it safe to tell mind and receive
honest feedback.”
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“This training was a fantastic tool that has helped me
focus my experiences and thought into a message.”
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“(Most helpful to me) was the outline of how to write a
presentation and the exercise of writing it and getting
feedback.”
Special thanks to:
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Washington State Department of Health, Children
with Special Health Care Needs Program, for their
sponsorship.
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Betsy Boyer for Honoring Our Daughters
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Parent Consultants: Lisa Cohen, Rene Denman, Deb Koon,
Anita Marcelo, Nan Hall, Julie Sanchez, Renea Zosel, Carrie
Costanza, Rose Yu.
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Children’s consultants: Chuck Cowan, MD, David Loren, MD,
Heather McPhillips, MD, John Neff, MD, Carol Parry, Christina
Pease, MD, Wendy Sue Swanson, MD, Beth Tarini, MD, Lynel
Westby.
We are especially grateful to Lynn, Rich, Veronica, and Ed
for so openly reflecting on their experiences within the
self-efficacy framework, taking the time to craft their
presentations so conscientiously, and for generously
sharing their stories with us today.
Planning Committee: Chervin Churchill, Kathy Fennell, Lyn Kratz,
Andrea McCullough, Lawrie Williams.