Transcript ORIENTATION - Medical home

ORIENTATION
Project TEAM
Children’s Hospital of Wisconsin
Medical College of Wisconsin
Special Needs Family Center
WELCOME
Welcome to Project TEAM Orientation.
Project TEAM is a family - healthcare
provider partnership program. Project
TEAM is part of the Children with
Special Health Care Needs Rotation for
physicians who are in their 3rd and
final year of training to become a
pediatrician.
Need for Project TEAM
• 15-30% of children in the U.S. Have a special
health care need.
• Special needs impact children, their families
and the community.
• Caring for these children requires the use of
specific principles and practice.
• Medical students and residents have
traditionally received very little training in the
care of children with special needs.
Special Health Care Need
•Children aged birth to 21 who have a physical,
developmental, behavioral or emotional
illness/condition that has existed or is expected to
exist for more than 12 months.
•The illness/condition restricts the child’s growth and
development or their ability to participate in usual
activities.
•The illness/condition requires specialized care,
psychological or educational services beyond that
required by the typically developing child.
Characteristics of Special
Health Care Needs
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Limited or Persistent
Unique
Multifaceted
Influential
Time consuming
Expensive
Frustrating
Rewarding
Special Health Care Needs
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Cerebral palsy
Traumatic brain injury
Hemophilia
Asthma
Neuromuscular
disorder
• HIV infection/AIDS
• Prematurity
• Genetic Disorders
• Cancer
• Congenital heart
disease
• Bipolar Disorder
• Autism
• LD/ADHD
• Diabetes mellitus
History of Project TEAM
• First developed in 2000 by:
– Anne Juhlmann (parent/nurse)
– Dr. David Lewis (pediatric cardiologist)
– Dr. Patricia Lye (hospitalist)
– Bonnie Anderson (parent/nurse)
• Goal: To improve the delivery of care to
children with special healthcare needs.
Focus of Project TEAM
• The focus of Project TEAM is on the
universal feelings, issues and emotions
that special needs bring to a family and
not on specific diseases or disabilities,
• The focus of Project TEAM is on how
the disease or disability affects the
child, family and community and what
the physician can do to help.
History of Project TEAM
• Pilot - Spring 2001: 4 residents and 2
families participated. It was a six hour
experience spread over 3 weeks.
• The pilot was received with enthusiasm
and evaluated positively by both
residents and families.
History of Project TEAM
“I had no idea you did all of this at home!
I have a new understanding of how
hard it must be to come into the
hospital and have people caring for your
child that know so much less than you
do about the care of your child.”
Resident’s comment after participating in the pilot - May 2001
History of Project TEAM
• On September 12, 2001, Dr. Dave
Lewis, passed away while on a medical
mission trip. The project was placed on
hold for 12 months.
• In the Fall of 2002, Dr. Pat Lye resigned.
• Program re-developed into
approximately 14 experiences.
Current Staff
Children with Special health Care Needs Rotation
•Bonnie Anderson, RN, MSN, CPNP
Day surgery advanced practice nurse
Parent of child with special healthcare needs
•John Gordon, MD
Medical Director Special Needs Program
•Anne Juhlmann, RN, BSN
Family Program Coordinator – Special Needs
Family Center.
Parent of children w/ special healthcare needs.
•Fred Klingbeil, MD
Medical Director of Rehabilitation and Fitness
What are the
Goals of Project TEAM?
First Goal
The resident will understand how a
special health care need affects a
child, a family and a community.
What are the
Goals of Project TEAM?
Second Goal
The resident will understand that
despite differences special health care
needs, there are universal issues,
emotions and needs that families who
have children with special health care
needs deal with.
What are the
Goals of Project TEAM?
Third Goal
The resident will be encouraged to
work together with families when
caring for the child with special
health care needs.
What are the
Goals of Project TEAM?
Fourth Goal
The resident will understand that there
are many public, private and community
resources to help children with special
health care needs and that it is
important that the physician help the
family to access these resources.
What are the
Goals of Project TEAM?
Fifth Goal
The resident will understand that
every child deserves a medical
home: coordinated, familycentered, culturally sensitive,
primary care that addresses all of
the child’s needs, including nonmedical needs such as educational
or emotional needs.
What are the
Goals of Project TEAM?
Sixth Goal
The resident will learn some strategies
and be given some tools for
providing a “medical home” to the
child with special health care
needs.
What are the
Goals of Project TEAM?
Seventh Goal
The resident will learn that when a
child has a “medical home” they
are more likely to reach their full
potential.
How are the Goals Met?
• Orientation for Residents
• Resource Material
• Experiences such as:
– Time spent in clinics with
families
– Visit to Home Care Provider
– Exercises to teach coordination
of care
How are the Goals Met?
• Daily journal entries: reflection
• Formal Presentation and discussion
with staff.
• TEAM
–Family home visits
–Visits to school, therapy or
recreational activity.
Home Visit
• Resident should call you to set up the visit at
a time that works for your family.
• Typical visit with family is about 90-120
minutes.
• The resident has a suggested list of
questions. As the teacher you may need to
guide the conversation to make sure that the
resident gets a complete picture of your
family and child.
School Visit
• Resident should set up a time to visit
your child’s school when they make
initial phone call to you.
• Acceptable substitutes for school visit
are therapy visits or observation of
recreational activity.
• If you need a letter for the school
please contact Anne Juhlmann ASAP.
Impact of TEAM
• “It is unbelievable the extra costs that I
would not have thought about. There
are so many hidden costs not covered
by insurance.”
• “It is amazing how much planning goes
into traveling – even a trip to the
grocery store requires planning!”
Impact of TEAM
• “I could see the parents’ relief to have a
nurse to speak with who understands
their lives. And more so someone who
knows what they can do – are capable
of!”
• “Small steps are big challenges and
great accomplishments!”
Impact of TEAM
• “My 2 main take home points are TEAM
and communication!”
• “Families are a great support for each
other. I never really knew that.”
• “I am amazed at what these families go
through that we never know.”
• “The home visit was the most
memorable experience of this rotation!”
Impact of TEAM
“I loved the time spent with
families! I will recollect this
next time I see a child with
special needs and perhaps )I
hope!) have a better
appreciation for the type of life
style they lead.”
THANK YOU!!!!
Thank you for coming tonight. We hope
that you will consider participating in
the program this year. It is only
because of the willingness of families to
invite residents into their homes and
teach them about the realities that
families live with that the program will
succeed in meeting its goals.