Transcript Slide 1

My healthy life
Helen Mycock – Mencap Health
programme manager
What we’ve achieved - national
3 BIG ISSUES
Primary care
Specialist
healthcare
General hospital care
‘Getting it Right’ 3 year campaign
Getting It Right – update
200 organisations signed up to charter
193 in England , 6 in Wales and 1 in Northern Ireland
In England this broke down into:
• 78 out of the 175 NHS General Hospital Trusts ( 44.5%)
• 62 out of the 146 Primary Care NHS Trusts ( 42.5%)
• 21 out of 56 Mental Health / Learning Disabilities NHS
• Trusts (37.5%)
•7 out 10 SHA’s ( 70%)
•6 out of the 12 Ambulance Trusts (50%)
•5 Medical colleges
•10 non-NHS organisations
Concerns remain
• Almost half (46%) of doctors say that people
with learning disabilities receive a poorer
standard of healthcare
• Almost third of nurses (33%) had personally
witnessed a patient with Learning Disabilities
being treated with neglect or lack of dignity
• Nearly 4 out of 10 doctors and third of nurses
went as far as saying that people with Learning
Disabilities are discriminated against
(Mencap, Getting it right survey, June 2010)
6 Lives Progress Update
(2010)
• More still to do on reasonable
adjustments, particularly round
changing clinical practice
• Implementation of the Mental
Capacity Act is still a concern
Getting It Right – what
next ?
 Which health organisations are not signed up? Why ?
 Need to ensure local stakeholders and users / carers are
equipped to hold organisations who have signed up to the
charter to account
 Considering extending revised version to GP Consortia
and practices
 Implementation of 2 key projects in which ‘Getting It Right’
has had a key part in securing funding
HSCVF – Getting It Right
….from the start
 3 year programme
 Working with 4 Clinical commissioning groups across England
 20 volunteers each area ( 10 volunteers with a learning disability
and 10 volunteer supporters)
 Review of current position and offer of further self assessment
particularly focussing on reasonable adjustments
 Bespoke training and input according to local needs – some GP
focussed and some community healthcare focussed
 Schedule of data collection – qualitative and quantitative
 External evaluation and dissemination
 Impact upon policy and practice :
• Opportunity to influence commissioning under new
arrangements and shape local health watch
• Support implementation of DES for annual health checks,
equalities act and ‘big society’ ideals
• Dissemination of outcomes for widespread impact across UK
Simply health – general
hospital road shows
One off funding from Simply Health ( health insurance
company)
 Road shows within general hospital settings
 Showing DVD ‘Freddie’s story’
 Information , resources and workshops
 Sign up to Getting It Right Charter and local accountability
 Hospital passport
 Mental Capacity Act
 Impact upon policy and practice
• Support implementation of equalities duty and Mental
Capacity Act
• Widespread sharing of good practice
• Maintaining charter pledges and commitments

Health programme –where it fits
Community Action
 Campaigns and policy
 Part of wider interconnected national support team based
upon evidence of needs and to deliver beneficial and
innovative outcomes which support Mencaps strategic goals :
– Children and young peoples programme
– Families and inclusive communities
– Inclusion support
– Leisure and positive activities
– Inspire Me
– Raising Your Game
– NOFAS ( National Organization on Fetal Alcohol
Syndrome)
– Learning products
My Healthy life priorities 2011/12
 Continue to improve access to and the quality of primary health care by:
• implementing HSCVF project
• GP / clinical commissioning group sign up to primary care focussed GIR
charter
• Utilising ‘ my healthy life’ outcomes in ‘what matters to me’ quality
checks within Personal Support Services
• Partnership working to support / contribute to research
• Provision of a Health hub to share good practice/ outcomes
 Continue to improve care and safety in general hospitals by:
• Implementing simply health programme
• Agree and promote a standard hospital passport
• Further promotion and sign up to GIR charter
• Support / contribute to research
• Sharing with partners as members of the health and human rights project
• Share good practice on health hub and potentially host A2A national
network website
 Improve safety , access to and quality of specialist healthcare including
mental health services ( see next slide for details)
Specialist Healthcare (including
access to Mental health care)
 Winterbourne review – support
implementation of recommendations.
 Influencing specialist and local commissioning
 Decrease in out of area placements
 Increase in personalised local commissioning
and specialist community support
 Support / contribute to research
 Review of and potential to up date Green light
tool kit ( in partnership with IHAL ) to help
improve access to mental health services ( in
primary and secondary care)
NHS bill 2011 – moving forward
We must ensure progress is not lost:
1.
2.
3.
4.
5.
Health checks and Health Action Planning
Using health self assessment framework
Data and choice and control
Clinical commissioning groups
People with Profound and Multiple Learning
Disabilities and specialist commissioning
6. Local Health Watch and Health and
Wellbeing Boards
Any
questions