Transcript Slide 1

Children with Disabilities
and Special Needs
Michael Miguelgorry , DDS
Stacey Kennedy, CRIHB
Stephanie Myers, WestEd Center for
Prevention and Early Intervention
Debbie Sarmento,
Family Resource Centers Network of
California
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Who is with us today?
• Are you:
• A parent of a child with special healthcare
needs
• A staff member at an organization
• A double-agent (parent and staff member)
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What we will cover today
• Early Start
• Early Start Family Resource Centers
• Establishing Healthy Eating Habits
Infants & Toddlers
• Training and scholarship opportunities
through West Ed
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What are
special health care needs?
Children with special health care
needs are those children who have or
are at risk for chronic physical,
developmental, behavioral or
emotional conditions and who also
require health and related services of
a type or amount beyond that required
by children generally.
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How many children have special
health care needs?
12.8 percent of children have a special health
care need
One in five households has a child with special
health care needs
Any child, at any time, could develop a
disability or chronic health condition.
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What is Early Start?
• CA’s early intervention
system
• Federal Law: IDEA Part C
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California Early Start
Partners
• Dept. of Developmental Services (DDS)
• Regional Centers
•
Vendored Programs
• CA Dept. of Education (CDE)
• Special Education Local Plan Areas (SELPAs)
• Local Education Agency (LEAs)
• Local School Districts
• Early Start Family Resource Centers
(ESFRCs)
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Which children are eligible?
Infants and toddlers from birth up to 36
months who have:
• a developmental delay in either
cognitive, communication, social or
emotional, adaptive, or physical and
motor development including vision
and hearing;
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or
• established risk conditions of
known etiology with a high
probability of resulting in delayed
development
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What services are provided?
• Assistive Technology, including
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•
devices or services
Audiology
Behavior Therapy
Durable Medical
Equipment
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Early Start Services
• Family Training, Counseling, and
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Home Visits
Health Services, Nursing
Services and Medical Services*
Interpreter / translator*
Nutrition Services*
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• Occupational Therapy
• Physical Therapy
• Psychological Services
• Service Coordination
• Special Instruction
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*
Speech Therapy
Transportation and related costs*
Vision Services
Other Services*
As necessary for family or child to enable child to benefit or
family to participate in early intervention services
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How are children referred?
• Self referral
• Physician referral
• Other
professionals
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What happens when a child
is referred?
• 45 day timeline
• Family is assigned a service
coordinator to assist through
evaluation and assessment
procedures.
• Parent consent for evaluation is
obtained.
• Evaluations and assessments for the
child's development are done.
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• Individual Family Service Plan
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(IFSP) is developed
Identify early intervention services
that are provided in the family
home or other community settings.
Referral offered to Early Start FRC
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How much does it cost?
• No cost to families for evaluation, assessment and
service coordination.
• Public or private insurance is accessed for
medically necessary therapy services including
speech, physical and occupational therapies.
• Services that are not covered by insurance will be
purchased or provided by regional centers or local
education agencies.
• Family Cost Participation Program
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•
Camping
Respite
Day care
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What to do if a child needs
to be referred to Early Start
• Talk to parents – provide them with
next steps
• Family may be hearing news for the
first time and may need assistance
• Encourage them to call their Family
Resource Center
• Ask parent for their consent to provide
their name and contact information to
the FRC
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What is Prevention Resource
and
Referral Services (PRRS)?
• Infants and Toddlers “at risk” for developmental
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delay or disabilities under age three
At risk criteria – two or more risk factors
Diagnosed by qualified clinician (pediatrician,
family physician, regional center, High Risk
Infant Program, Neonatal Intensive Care Unit)
All referrals for PRRS must first be found
ineligible for Early Start Services.
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How did PRRS Develop?
• 2009 Early Start eliminated “at risk” from
eligibility
• 2009 Established regional center Prevention
Program
• 2011 Reduced prevention scope to Prevention
Resource and Referral Services (PRRS)
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Who will serve the babies?
• DDS contracting with FRCNCA through Support
for Families for PRRS
• FRCNCA coordinates PRRS statewide through
contracts with local FRCs
• FRCs provide resource, referral and outreach
services
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Where will the babies
come from?
Regional Centers
Babies ineligible for Early Start
with identified risk factors
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What will the babies receive?
• Information and resources
• Referral to other community services
• Referral to regional centers for Early Start
re-evaluation
• Follow up contacts
• Outreach that facilitates referral
relationships, screening opportunities and
community services
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What will Regional Centers
do?
• Single point of entry for all children
suspected of having a developmental
delay including those with established risk
and those at risk.
• Conduct evaluation for Early Start. If child
is not eligible determine if a referral to
PRRS is appropriate based on at-risk
factors.
• Refer to PRRS with parent consent
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Early Start
Family Resource Centers
Focus:
Families of infants and toddlers
(birth to 3) with
developmental delays and
disabilities.
Provide: Parent to parent support,
support groups, training for
parents and professionals,
information and referral,
community outreach and
awareness
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• Goal: To provide families with parent
to parent support that
enhances their ability to
support their child’s
development
• ESFRCs: 47 across California, serving
all families in California
• Website: frcnca.org
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Information and Support Topics
 Impact of disability/special health care need on
family and friends;
 Stress of dealing with multiple doctors, learning a
whole new vocabulary, and dealing with the
financial aspects of disability;
 Support and advice about classes and services,
talking to special educators and trying to remain
optimistic;
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 Playmates and friends for their child who may not
play the same way as other children or with the
same kind of toys;
 Learn about keeping their family happy
and healthy while making major changes
in the family daily life and activities; or
 How to have confidence in their own
impressions and ideas for what
their child needs and wants.
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When would you refer a family to
an Early Start FRC?
When families have just learned that their
child has a disability or special health care
need.
When families are dealing with a new stage
in their child’s life.
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ESFRC Variables
• Location
• Staffing
• How services are provided
• Other funding streams
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Other Family Resource Centers
•Generic term
•Differences
• Focus
•Target population
• Philosophy
•Scope of service
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Other vital supports
Family (self defined)
Church groups
Circle of friends
Child care
In-home services
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How 40+ Programs
Might Touch One Family
Education
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Public Schools
ESEA, Title I
School Lunch & Breakfast
Head Start
IDEA
After-School Programs
Textbook Funding
Tests & Achievement
Teacher Issues
GED
Health & Food
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Social Services
Medi-Cal – EPSDT
Healthy Families Parent Expansion
Child Health & Disability Program
Expanded Access Primary Care
Trauma Case Funding
Co-payments for ER Services
Child Lead Poisoning Prevention
Program
HIV/AIDS Prevention & Education
Breast Cancer Screening
Food Stamps
WIC
Child & Family
Services
• TANF
• Child Care – CCDBG, SSBG, Cal
• GAIN, CAL Learn, Cal WORKS Child Care, etc.
WORKS, etc.
• After-School Programs – 21st Century
Learning Centers, etc.
• Promoting Safe & Stable Families
• Child Abuse & Neglect Programs
• Foster Care – Transition, Independent
Living, Housing, etc.
• Adoption Assistance, Adoption
Opportunities
Mental Health
& Probation
• School-Based MH
Services for Medi-Cal
Kids
• Probation Officers in
Schools
• Cardenas-Schiff
Legislation
• Health Care Through
Probation
• Mental Health
Evaluations
• Juvenile Halls
Boyfriend
in trouble
Mom
Dad
9 year old
5 year
old
Baby
1 1/2
Mom’s
sister
Margaret Dunkle
The George Washington University
& The LA County Children’s Planning Council
2002
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