Transcript Slide 1
Theme II, Breakout Session 3
Rebecca Burkholder, National Consumers
League
Barbara Warren, National Coalition for
Lesbian, Gay, Bisexual and Transgender
Health
Terrie Cowley, The TMJ Association
G-I-N PUBLIC Toolkit: Patient and Public
Involvement in Guidelines http://www.g-in.net/activities/gin-public/toolkit
Serving on Clinical Practice Guidelines Video,
by Richard Rosenfeld for Consumers United
for Evidence-Based Healthcare (CUE)
http://us.cochrane.org/serving-clinicalpractice-guideline-panel
Consultation
◦ Collecting information from the public to inform
guideline development
Participation
◦ Participation of patients and consumers in guideline
development groups
Communication
◦ Dissemination and implementation of guidelines;
plain language versions of guidelines; patient
decision aids
Goal
◦ Foster mutual learning between health
professionals and consumers & patients
◦ Facilitate compromise and consensus on decisions
about guidelines
Recruitment
Support
◦ Nomination or open
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Training
Practical
Informal
Financial
Out of pocket
Compensation for time and effort
Moderating – the importance of the Chair
After Development
◦ Structure of meetings – calls, in-person
◦ Encouraging broad participation
◦ Recognition
◦ Plain language version
How to foster consumer and patient
involvement? (How to make is easy?)
What are the do’s and don’ts for involving
consumers?
Other?
Check out the resources:
◦ G-I-N PUBLIC Toolkit: Patient and Public
Involvement in Guidelines http://www.g-in.net/activities/gin-public/toolkit
◦ Serving on Clinical Practice Guidelines Video, by
Richard Rosenfeld for Consumers United for
Evidence-Based Healthcare (CUE)
http://us.cochrane.org/serving-clinical-practiceguideline-panel