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Theme II, Breakout Session 3 Rebecca Burkholder, National Consumers League Barbara Warren, National Coalition for Lesbian, Gay, Bisexual and Transgender Health Terrie Cowley, The TMJ Association G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines http://www.g-in.net/activities/gin-public/toolkit Serving on Clinical Practice Guidelines Video, by Richard Rosenfeld for Consumers United for Evidence-Based Healthcare (CUE) http://us.cochrane.org/serving-clinicalpractice-guideline-panel Consultation ◦ Collecting information from the public to inform guideline development Participation ◦ Participation of patients and consumers in guideline development groups Communication ◦ Dissemination and implementation of guidelines; plain language versions of guidelines; patient decision aids Goal ◦ Foster mutual learning between health professionals and consumers & patients ◦ Facilitate compromise and consensus on decisions about guidelines Recruitment Support ◦ Nomination or open ◦ ◦ ◦ ◦ Training Practical Informal Financial Out of pocket Compensation for time and effort Moderating – the importance of the Chair After Development ◦ Structure of meetings – calls, in-person ◦ Encouraging broad participation ◦ Recognition ◦ Plain language version How to foster consumer and patient involvement? (How to make is easy?) What are the do’s and don’ts for involving consumers? Other? Check out the resources: ◦ G-I-N PUBLIC Toolkit: Patient and Public Involvement in Guidelines http://www.g-in.net/activities/gin-public/toolkit ◦ Serving on Clinical Practice Guidelines Video, by Richard Rosenfeld for Consumers United for Evidence-Based Healthcare (CUE) http://us.cochrane.org/serving-clinical-practiceguideline-panel