Transcript Title and contents - Rijksuniversiteit Groningen

Who cares?
Kamstra, Aafke
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Kamstra, A. (2017). Who cares?: Research into maintaining, strengthening, and expanding the informal
social networks of people with profound intellectual and multiple disabilities [Groningen]: Rijksuniversiteit
Groningen
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Download date: 08-01-2017
Who cares?
Research into maintaining, strengthening, and expanding the informal social
networks of people with profound intellectual and multiple disabilities
Aafke Kamstra
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This study was funded by Stichting Wetenschappelijk Onderzoek 's Heeren Loo.
Colofon
Ontwerp
Doks ontwerpbureau, Arnhem
Opmaak
Ferdinand van Nispen, my-thesis.nl
Voorkant:
Karlijn Bovee
Tekst
Aafke Kamstra
Druk
EPC
ISBN 9789073038004
© 2016 Aafke Kamstra. Niets uit deze uitgave mag worden verveelvoudigd en/
of openbaar worden gemaakt door middel van druk, fotokopie, geluidsband,
elektronisch of op welke wijze dan ook, zonder schriftelijke toestemming van de
auteur.
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Who cares?
Research into maintaining, strengthening, and expanding the informal social
networks of people with profound intellectual and multiple disabilities
Proefschrift
ter verkrijging van de graad van doctor aan de
Rijksuniversiteit Groningen
op gezag van de
rector magnificus prof. dr. E. Sterken
en volgens besluit van het College voor Promoties
De openbare verdediging zal plaatsvinden op
Donderdag 5 januari 2016 om 14.30 uur
door
Aafke Kamstra
geboren op 30 augustus 1985
te Leeuwarden
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Promotiecommissie
Promotor
Prof. dr. C. Vlaskamp
Prof. dr. B. Maes
Copromotoren
Dr. A.A.J. van der Putten
Beoordelingscommissie
Prof. dr. P.J.C.M. Embregts
Prof. dr. J. Goldbart
Prof. dr. S. Otten
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Content
Chapter 1 Introduction
1.1.
Outline of the thesis
References
Chapter 2 The structure of informal social networks of persons with
profound intellectual and multiple disabilities.
Abstract
2.1.
Introduction
2.2.
Method
2.2.1. Participants and setting
2.2.2. Data and instruments
2.2.3. Analysis
2.3.
Results
2.3.1. Number of informal contact persons
2.3.2. Relation between the informal contact person and the person
with PIMD
2.3.3. Frequency of the informal contacts of persons with PIMD
2.3.4. Type of the informal contacts of persons with PIMD
2.4.
Conclusion and discussion
References
Chapter 3 Informal social networks of people with profound
intellectual and multiple disabilities: Relationship with age,
communicative abilities and current living arrangements.
Abstract
3.1.
Introduction
3.2.
Method
3.2.1. Participants and setting
3.2.2. Measures
3.2.3. Analysis
3.3.
Results
3.3.1. Informal social network size
3.3.2. Frequency of the contacts
3.4.
Conclusion and discussion
References
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Chapter 4 Exploring spontaneous interactions between people with
profound intellectual and multiple disabilities and their group
members
Abstract
4.1.
Introduction
4.2.
Method
4.2.1. Participants
4.2.2. Design
4.2.3. Instrument
4.2.4. Procedure
4.2.5. Analysis
4.3.
Results
4.3.1. Interactions
4.3.2. Interactions with group members
4.3.3. Positions and interactions between a person with PIMD and a
group member
4.4.
Discussion
4.5.
Conclusion
References
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Chapter 5 Efforts to increase social contact in persons with profound
intellectual and multiple disabilities: analysing individual
support plans in the Netherlands
Abstract
5.1.
Introduction
5.2.
Method
5.2.1. Participants and setting
5.2.2. Data collection
5.2.3. Analysis
5.3.
Results
5.3.1. Main category: History
5.3.2. Main category: Current situation
5.3.3. Main category: Future
5.4.
Discussion
References
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Chapter 6 Attitudes of professionals to enhancing the informal
personal networks of people with profound intellectual and
multiple disabilities.
Abstract
6.1.
Introduction
6.2.
Method
6.2.1. Participants and setting
6.2.2. Data collection
6.2.3. Procedure
6.2.4. Analysis
6.3.
Results
6.3.1. Number of quotations, codes and coding categories
6.3.2. Importance
6.3.3. Maintaining and strengthening the social network
6.3.4. Expanding the social network
6.3.5. Impeding factors
6.3.6. Facilitating factors
6.4.
Discussion
References
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Chapter 7 General discussion
7.1.
Summary of main findings
7.2.
Methodological reflection
7.3.
Theoretical reflections and future research
7.4.
Practical implications
References
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Samenvatting
References
Summary
References
Dankwoord
About the author
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