Transcript HIV patient ART monitoring meeting summary - Paul DeLay (UNAIDS) ppt, 21kb

HIV Patient ART Monitoring
Meeting:
International Conference Centre,
Geneva
29-31 March 2004
Summary
Objectives of the meeting (1)
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Harmonize collection of three data sets
Basic info at patient level
Linkages with other systems
Mechanisms for collection
Reporting and feedback at various levels
Data systems
Cross Cutting Issues
Diverse participants--? Improved linkages
• Settings (infrastructure, volume, etc)
• Chronicity
• Data needs
• Data collection
• Timeliness
• Quality improvement
• Confidentiality/Security
• Data use/Data feedback
What have we achieved?
• Refinement of Patient care/treatment card
• Refinement of program monitoring
information
• Better understanding of data capturing
systems
• Explored linkages/cross cutting issues
• Identified next questions and steps forward
Recommendations
• Further refinement of patient data card and
program monitoring information/registeries
• Linking treatment card with registries
• WHO recommendations on confidentiality
• Early warning to detect supply stock outs to
rapidly respond
• How to “de-identify” data sets
• Selection of data capturing systems (short and long
term)
• Dissemination of recommendations
• Feedback-two way
The Big Questions
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How will we learn from this?
How will we coordinate?
Data uses and rationing?
What about long term goals?
– Sustainability indicators
• Financing sources
• Cost for treatment and commodities
• Staffing patterns
• Sector wide impact
• Capacity to scale up
– Impact indicators
• Long term survival
• Quality of life/productivity
• ARV resistance
• Incident infections