Transcript Emerging Issues about FASD in Michigan Cheryl Lauber, DPA, MSN

Emerging Issues about
FASD in Michigan
Cheryl Lauber, DPA, MSN
Michigan Department of Community
Health
E-MCH Audio-conference Sept. 2006
Prevalence Estimates for FASD
 0.5 to 3 per 1000 live births with FAS (US)

70-400 births/year in Michigan
 1% of births are alcohol affected (US)

1,300 births/year in Michigan
Current FASD Services
 $200,000 MCH Block Grant annually
 6 Diagnostic Centers
 Piloted a screening project w/foster care
 7 Community Prevention Projects
 Pilot Horse-back Riding Therapy Project
 2 Consultants provide technical assistance
 State FASD Coordinator in Dept. of Community
Health
 Local Parent Support Groups
 State FASD Task Force
 Program Advisory Group
Screening/Diagnosis/Services
Referral Sources
Local Health Department
Protective Services
Foster Care/ Adoption
Commun Mental Health
Schools
Parents
Women in Treatment
Criminal Justice System
Medical/Health System
Doctors/Nurses
Screening
Indicators:
Small head
circumference
Height/weight (10% or
below)
Behavioral indicators
Facial features
Maternal alcohol history
during pregnancy
Michigan FASD Program
Diagnostic Team
Support Services
RN/Coordinator
Parent Advocate
Educational Psychologist
Speech Therapist
MSW or Counselor
Occupational Therapist
Physician particularly:
Dysmorphologist or
Developmental or
Behavioral Pediatrician or
Geneticist
Advocacy
Maternal/Infant Support
Family Planning
Early On
Individual
Educ Plan Comm
Mental Health
Substance Abuse Tx
Family Support Group
Insurance Assistance
Respite
Michigan FASD Task Force
Vision:
Coming together to address Fetal Alcohol
Spectrum Disorders (FASD) through
awareness, prevention and access to
services.
Michigan FASD Task Force
Mission:
The mission of the Michigan FASD Task Force is to
advocate for statewide prevention and treatment.
The Task Force brings together affected individuals,
families and professionals in many disciplines
committed to increasing awareness of FASD and
improving service delivery systems.
Decreasing these preventable disorders and
enhancing quality of life for affected individuals and
their families will lessen the social and economic
impact of FASD in Michigan.
Five Year Goals
A. Decrease the number of women who drink alcohol during
pregnancy
B. Increase awareness of FASD and gain public support
C. Expand and improve timely lifelong service access and delivery
statewide to individuals who have FASD and their families
D. Increase identification and diagnosis of individuals who have
FASD
E. Improve the education system’s response to students who have
FASD
F. Determine and monitor the incidence and prevalence of FASD in
Michigan
G. Improve the justice system’s response to individuals who have
FASD
H. Expand, increase the diversity of and strengthen the Task Force
Detroit FAS Prevention Project
 $450,000 CDC Prevention Grant for each of 5
years 9/30/03 through 9/29/08.
 Field test prevention strategies with women
 Link families with services for children
 Test a surveillance model for determining
prevalence of FAS
Identifying Children Exposed to
Alcohol during Pregnancy
 In Detroit and Wayne county, 10,225 women
ages 14-54 were admitted to substance
abuse treatment programs between 2000
and 2004.
 1,680 women were matched using the Social
Security Number with 2,144 births from
2000-2003.
Demographic Profile of Women in
Substance Abuse Treatment







66% African American, 30% White
53% age 30-44, 44% age 21-29
50% with education 12+ years
77% never-been married
74% unemployed
58% with 1+ dependents
12% pregnant at the time of admission
Birth File Match
 2,144 births to 1,680 women in substance abuse




treatment
88% born in Detroit and Wayne county
49% males, 51% females
48% matched to women who listed alcohol as the
substance of abuse
<8% reported alcohol use during pregnancy on the
birth certificate
Birth Defects Registry Match
 562 out of 2,144 births found in MBDR
 49% matched to women who listed alcohol
as the substance of abuse
 8 out of 562 had FAS diagnostic code of 760.71
(3.7 – 7.8 per 1,000 births)
 7 more had the diagnostic code of 742.1
(7.0 – 14.5 per 1,000 births)
 291 out of 562 (52%) had other maternal
exposure affecting the fetus
Summary
 Michigan has considerable work to do to understand
the prevalence of FASD in the state.
 The state has stable minimum funding for service
delivery but will need other resources to expand
services, particularly prevention.
 There is impressive support among state service
agencies, parents and advocacy groups for
implementing the FASD State Plan.
 The CDC grant has made it possible to test
prevention and surveillance strategies that can be
expanded to other parts of the state.
Thank You!
For questions or comments, please contact:
Cheryl Lauber, DPA, MSN
Michigan Department of Community Health
109 W. Michigan, PO Box 30195
Lansing, MI 48909
Phone (517) 335-9483; Fax (517) 335-8822
[email protected]