Transcript SAFA Network Webinar

August 3, 2011
1:00 pm – 2:30 pm Central
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The Results from the
BFSS Survey are In!
SAFA May Be Coming to
a Conference Near You!
Create One Personal & One Group Goal
Future Webinars
(Best time of day??? Best topics???)
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Did you like the topics
presented at the SAFA
workshops?
Did you feel free to share
your ideas and experience(s)?
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Did you have plenty of opportunity to
meet and talk with other SAFA advocates?
Did you have plenty of opportunity to meet
and talk with other people at the conference?
Would you like to come back to the SAFA
Network workshops at the BFSS conference
next year?
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What was your favorite workshop?
What did you like most about attending the
conference and SAFA workshops?
What would you like changed for next year?
What is one topic you would like to see at
next year’s conference?
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The Arc’s National Convention
Denver, Colorado
September 17-19
National Federation of Families for
Children’s Mental Health
Washington, D.C.
November 18-20
TASH National Conference
Atlanta, Georgia
November 30-December 3
You Can Learn…
 Why
 How
self-advocacy is important
to advocate for yourself and
others
 How
to work
together to achieve a goal
 How
 How
to work with others
to support each other in
reaching a shared goal
Hold a meeting to talk about
issues people with FASD are
having in your community
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Decide as a group you want to take
action, and everyone as individuals
can work on the same issue
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Teach the public about FASD
so they can understand the issues (visit
local schools, police or legislators)
Find facts/information to support your
cause (things like reports or personal
stories)
Try to change laws, or get new
ones passed
Explained the Self Advocacy Project
 Passed out Brochures
 Encouraged them to suggest someone to be
a Self Advocate from their state
 Displayed poster from BFSS conference
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Ten adults with an FASD will meet for
two and a half days at a camp in Michigan
 Attendees will be from Ohio and Michigan,
Unable to find any from Indiana or Illinois
who were able to join us.
 Ed Riley will speak about brain differences
 Pat Carver from Arc Michigan will help us
learn strategies for becoming an advocate
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Another workshop will be on coping with fear
frustration and anger
Another on What to Do If Stopped by the
Police
Will also have horseback riding, high ropes,
swimming and boating, campfires etc.
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September 9 Concert
John McAndrew
Children and Adults with an FASD will give
out Snicker cards
◦ A goal is a plan for the future.
Group goals are about changing
something that affects a whole lot of people.
◦ One of SAFA’s group goals is to make sure
every state is represented by someone with
an FASD.
◦ What are some STEPS we need to take
to achieve this goal?
◦ Decide WHO will do WHAT
and by WHEN
◦ Who will follow up?
◦ CELEBRATE when
we reach our goal!
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Is my voice being heard and valued, how do I
know?
How do I respectfully disagree with someone?
What if I don’t understand something, or
someone is talking too fast or using words I
don’t understand?
What if I don’t like someone else, but I
still have to work with them?
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What is one personal goal you
would like to accomplish with
the help of the SAFA Network?
Some examples may be:
◦ To get better at speaking so I can
speak at one function this year about
how FASD has affected my life.
◦ Become active in supporting or changing a
law that affects people with an FASD in my
community. (Contact one local
organization who can help me do this).
◦ Speak up at least one time at a meeting
about FASD.
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Planning for the 2012
BFSS conference
Upcoming webinars
(We want to hear from you! Share your story with us!)
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What do you want to learn about?
◦ Examples: Employment, More about self-advocacy, How to
stay safe in the community, Learning about your
state FASD Coordinators, Building friendships, etc.
SAFA Project
Coordinators
SAFA Project Liaison
Rob Wybrecht
[email protected]
616.241.9126
Leigh Ann Davis
[email protected]
202.534.3727
Jasmine Suarez
O’Conner
[email protected]
518.346.1715