Why You Should Ask For Them By Name & Settle For Nothing Less Tony Zipple, Sc.D, MBA CEO, Thresholds 773-572-5220 [email protected] www.thresholds.org.
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Transcript Why You Should Ask For Them By Name & Settle For Nothing Less Tony Zipple, Sc.D, MBA CEO, Thresholds 773-572-5220 [email protected] www.thresholds.org.
Why You Should Ask For Them
By Name & Settle For Nothing
Less
Tony Zipple, Sc.D, MBA
CEO, Thresholds
773-572-5220
[email protected]
www.thresholds.org
Schizophrenia
Disabled
Chronically
mentally ill
Severe & persistent mental illness
Mentally ill/substance abusing
Etc?
Sick
Disturbed
Helpless
Hopeless
Out
of control
Damaged or broken
Substance
abusing
Unemployable
Criminal
Homeless
Frightening
Unhappy
And
other generally
negative things!
Friends?
Family?
Clients?
Neighbors?
Are
most hopeless, helpless, scary, &
broken?
As many as 2/3 of people with serious mental illness
get much better over the long term
Level of illness severity today does not predict longterm outcome
Access to rehabilitation services improves long term
outcome
The course of the illness varies greatly from person to
person
Medications & hospital time are important in managing
symptoms but not strongly related to long term
outcome
People can have significant levels of control over their
levels of happiness and recovery
People
can and most do get better
We
can not predict who will do better so we
need to do our best for everyone
Everyone’s
story and recovery is unique
People
have significant control of their lives
and recovery
The
work that we do can support recovery
There
is real hope for recovery for everyone
“ … a process of reclaiming one’s life after
the catastrophe of mental illness”
William Anthony
We
go back to work
We start seeing friends & family
We pick up our hobbies
We start doing household chores
We go back to church
We stop or modify therapy/counseling
We have fun and enjoy life
We Reclaim Our Lives & Start Living
Again!!!
“It is only with the heart that one
can see rightly; what is essential
is invisible to the eye. “
-Antoine De Saint-Exupery-
“ Anyone who understands jazz knows that
you can't understand it. It's too
complicated. That's what’s so simple
about it…. That's why I can explain it. If I
understood it, I wouldn’t know anything
about it. “
-Yogi Berra-
Heartfelt
& hopeful
Passionate
Warm & fuzzy
Internal & personal
Spiritual
And almost impossible to define
So how do we build a recovery services?
How
do we operationalize a journey of
the heart without killing it?
How do we develop policy for things that
are essential but invisible to the eye?
How do we accredit things that you know
are essential but can not define?
How do you teach something that
disappears in the explanation?
You
have been diagnosed with a life
threatening cancer. Without a crystal
ball you can not be sure what
treatment will be best. Do you bet on…
• Individual clinical judgment of a single
oncologist?
• An informed synthesis of the best available
research & practice?
Historically
psychiatric rehab has focused on
anecdotal & values oriented evidence. This is
valuable but limited by:
• Variations in the intervention, population, system
•
•
•
•
•
variables, and implementation issues
Biases of observers
Charisma of proponents (the family therapy school effect)
Limited interest in and/or ability to replicate the work
Reliance in poorly defined “models” to guide us
Limited ability to systematically teach others how to do
the work
“Employing clinical interventions that research
has shown to be effective in helping consumers
to recover and achieve their goals”
Susan Azrin & Howard Goldman, 2005
EBP is simply the accumulated and tested
wisdom of our growing experience, organized
in a way that it can be shared and used by other
providers
Tony Zipple, 2006
“Physicians trained in evidence based
techniques are better informed that their
peers, even 15 years after graduating
from medical school. Studies also show
conclusively that patients receiving the
care indicated by evidence based
medicine experience better outcomes.”
J. Pfeffer & R.Sutton, Harvard Business Journal (Jan. 2006)
Intervention with a body of evidence:
- Expert consensus
- rigorous research studies & specified populations
- specified client outcomes
Well defined intervention construct (treatment
manual/fidelity scale)
Replication in many different settings
Evolution of the intervention and research as we
learn
National
group of leading mental health
services researchers convened
• To identify interventions that qualify as EBPs
• To identify strategies to enhance
implementation of EBPs
Multiple funding sources
• (Johnson Foundation, SAMHSA, NASMHPD
Research Institute)
National EBP Project:
Implementing 6 EBPs
1. Integrated Dual Disorder Treatment
2. Illness Management and Recovery
3. Supported Employment
4. Family Psychoeducation
5. Assertive Community Treatment
6. Medication Management Approaches in
Psychiatry
Focused
on surrogate outcomes like
good jobs, staying stable and in your life,
etc.
Minimize iatrogenic effects
Embrace consumer choice
Require ethical practitioner behavior
Built on values of hope, respect,
partnership
They are the “head” that supports the
“heart” of recovery
Clubhouse
Supported
Education
Supported Housing
Peer Support & Education
Forensic ACT
Aging services
Case management
EBPs are not the only useful
interventions, but using non-EBPs
requires really good justification if
an EBP exists for that area
Reduce
symptoms of mental illness
Minimize or prevent relapse of the illness
Satisfy basic needs and enhance quality of life
Improve functioning in normal adult roles
(family, social, employment, etc.)
Increase individual control and support
recovery
To lessen the family’s worry, concern and total
responsibility for providing care - promote
restoration of normal family relationships
Large impact on:
• Hospital use
• Housing
• Retention in treatment
Moderate impact on:
• Symptoms & quality of life
Weaker impact on:
•
•
•
•
Employment
Substance use
Jail and legal problems
Social adjustment
Stable
housing
Sober support network/family
Regular meaningful activity
Trusting clinical relationship
Alverson et al, Com MHJ, 2000
Abstinence
comes after supports in place
Relapse comes after loss of supports
Alverson et al, Com MHJ, 2000
Access
to comprehensive services (e.g.,
employment, psychiatry, etc.)
Social and family support interventions
Long term perspective
Cultural Sensitivity and competence
Program fidelity
Integration
of mental health and
substance abuse treatment
• Same team of dually trained people
• Same location of services
• Both disorders treated at the same time
Stage-wise
treatment
• Different services are effective at different
stages of treatment
Learn
about mental illness and strategies
for treatment
Decrease symptoms
Reduce relapses and hospitalizations
Make progress toward consumer’s goals
and recovery
Manualized, but
tailored to needs of client
CBT and motivational enhancement clinical
techniques
Weekly sessions
About an hour but can be broken down for
shorter/more frequent sessions
Individual, group, or both
Usually lasts 3 – 6 months
In Indiana, adding peer specialist component
in both training and site personnel
Recovery strategies
Facts about mental illness
Stress-vulnerability model
and strategies for
treatment
Building social support
Using medications effectively
Reducing relapses
Coping with stress
Coping with symptoms and other problems
Getting your needs met in the mental health
system
Goal
of competitive employment
Rapid job search
Integrating vocational and mental health
services
Consumer job preferences emphasized
On-going, comprehensive assessment
Time-unlimited support
Employment is a priority
Place
- train approach
Jobs are transitions, keep trying until
you find the right fit
Developed for mental health centers
Adopted in both rural and urban areas
Caseloads of about 25 clients
Partnership/collaboration
Consumers
Family or other support system
Practitioners
Building
between
relationships/alliance
Education: structured sessions
CBT: Problem-solving, Skill-building
Uses variety of formats (individual, group,
home visits)
Variety of materials (written, video, etc.)
Practical
facts about mental illness
New ways to manage illness
To reduce tension and stress in families
To provide social support and
encouragement to consumer/each other
To focus on future (not past)
To find ways to help consumers in their
recovery
Systematic
and effective use of medications
Involve consumers, family/support system,
practitioners, supervisors, MHA in the
decision-making process (not just
prescriber)
Strategies for medication adherence
Guidelines and steps for decisions on
medications
Monitor results (and document) for future
medication decisions
Consumer’s needs and concerns are critical
Treat
all symptoms with specific plan
Monitor outcomes and adjust as necessary
Use simplest regimen possible
Documentation of side effects and treatments
for side effects
Clients seen every 3 months or more often
during medication adjustments
Clozapine offered to consumers with refractory
psychosis
If
If
someone is working…. (SE)
someone is managing their illness better…
(WMR, Med Mgt)
If someone has better family support…(Fam)
If someone has good, flexible supports…
(ACT)
If someone is staying straight & sober…
(IDDT)
What are the odds that they are experiencing
recovery?
Basis
for public policy & funding
decisions
Basis for dissemination of useful
practices
Standardization makes teaching new staff
easier
Improves assessment of program quality
Lets us know who it works with & who it
does not work with
Standardization allows for careful
learning and evolution of practices
EBPs help us to more
effectively help consumers
to achieve recovery!
Founded
1959
Comprehensive, recovery focused
“Present at the Creation” of
psychiatric rehabilitation
Long history of innovation
900 staff, 100 locations, 4 counties
Many special services, serving many
special populations
30 year old research department, now
focused on recovery and EBPs
Integrated
Dual Disorders Treatment
(1998)
Assertive Community Treatment (1979)
Supported Employment (2000)
Wellness Management & Recovery (2005)
Evolving Practices…
• Cognitive Rehab, DBT, & CBT
• Integrated Health Care
• Forensic ACT
• Transition to Independence Program
• Supported Education
This is not easy stuff
• The challenge of change
• The challenge of resources
• The challenge of focus
But our clients deserve our best
• A job
• Friends & family
• A good life on their terms
How Do We Bridge This Gap?