Stephen B. Thomas, PhD. Professor, Department of Health Services Administration Director, Maryland Center for Health Equity School of Public Health The University of Maryland [email protected] www.healthequity.umd.edu www.twitter.com/umdhealthequity.
Download ReportTranscript Stephen B. Thomas, PhD. Professor, Department of Health Services Administration Director, Maryland Center for Health Equity School of Public Health The University of Maryland [email protected] www.healthequity.umd.edu www.twitter.com/umdhealthequity.
Stephen B. Thomas, PhD. Professor, Department of Health Services Administration Director, Maryland Center for Health Equity School of Public Health The University of Maryland [email protected] www.healthequity.umd.edu www.twitter.com/umdhealthequity SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY Architects of Community Engaged Research Drs. Craig S. Fryer, Mary A. Garza, Stephen B. Thomas, Sandra C. Quinn and James Butler, III National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY COE Goals: 1.To establish and sustain a community engaged research enterprise on critical health disparities; 2.To raise the visibility of racial and ethnic health disparities and promising solutions with Marylanders; and 3.To facilitate action for change in the structural determinants of health in Maryland. NIH-NIMHD PG20MD000207 SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY THE OPPORTUNITY Photo Credit: Sandra Quinn National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY AFFORDABLE CARE ACT of 2010 National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas Maryland Health Improvement & Disparities Reduction Act of 2012 Signed into Law by Governor Martin O’Malley on April 10, 2012. SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY THE CHALLENGE Photo Credit: Sandra Quinn National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas Polarization and belief dynamics in the Black and White communities: An agent-based network model from the data Grim, P., THOMAS, S.B., Fisher, S., Reade, C., Singer, D.J., Garza, M.A., Fryer, C.S., & Chatman, J. (2012). Polarization and belief dynamics in the Black and White communities: An agent-based network model from the data. Artificial Life, 13, 186-193. Personal History Matters Benjamin Thomas, BS Lucille W. Thomas, RN Personal History Matters Thomas Family circa 1958 Columbus, Ohio “…Ruby Bridges, the first black child to attend an allwhite elementary school in the South.” SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas “…The people who ran the study at Tuskegee diminished the stature of man by abandoning the most basic ethical precepts. They forgot their pledge to heal and repair. They had the power to heal the survivors and all the others and they did not. Today, all we can do is apologize.…” President William Jefferson Clinton The White House May 16, 1997 http://www.cdc.gov/tuskegee/clintonp.htm Bioethics Principle of Justice “…Who ought to receive the benefits of research and bear its burdens? This is a question of justice, in the sense of "fairness in distribution" or "what is deserved.” An injustice occurs when some benefit to which a person is entitled is denied without good reason or when some burden is imposed unduly….” The Belmont Report, April 18, 1979 The Social Context of Health Disparities The ultimate aim is to uncover social, cultural and environmental factors beyond the biomedical model and address a broad range of issues. This approach includes, but not limited to, breaking the cycle of poverty, increasing access to quality health care, eliminating environmental hazards in homes and neighborhoods, and the implementation of effective prevention programs tailored to specific community needs. SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Defining Health Disparities and Health Equity National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas Institute of Medicine Definition of Health Care Disparities Differences, Disparities, and Discrimination: Populations with Equal Access to Healthcare SOURCE: Gomes and McGuire, 2001 SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Definition: Health Disparities • According to Healthy People 2020 • “ health disparity is “…a particular type of health difference that is closely linked with social, economic, and/or environmental disadvantage.” National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Definition: Health Equity • According to Healthy People 2020 • Health Equity is “…the attainment of the highest level of health for all people.” National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Health Equity & Disparity Combined According to Health People 2020: “The concepts of health equity and health disparity are inseparable in their practical implementation. Policies and practices aimed at promoting the goal of health equity will not immediately eliminate all health disparities, but they will provide a foundation for moving closer to that goal. ” National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY AIDS Cases Among Adults and Adolescents by Race/Ethnicity Last Modified: April 28, 2011 Content Source:Divisions of HIV/AIDS Prevention National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas Schulman, K. A., J. A. Berlin, et al. (1999). "The effect of race and sex on physicians’ recommendations for cardiac catheterization." N Engl J Med 340(8): 618-626. CONCLUSION: “…Our findings suggest that the race and sex of a patient independently influence how physicians manage chest pain…” SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY THE FRAMEWORK Photo Credit: Sandra Quinn National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Thomas, S. B., S. C. Quinn, et al. (2011). "Toward a Fourth Generation of Disparities Research to Achieve Health Equity." Annual Review of Public Health 32(1): 399-416. National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas The Health Equity Action Research Trajectory: A Platform for 4th Generation Disparities Research Thomas, S. B., S. C. Quinn, Butler, J., Fryer, C..S., Garza, M.A. (2011). "Toward a Fourth Generation of Disparities Research to Achieve Health Equity." Annual Review of Public Health 32(1): 399-416 SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Key Foundations 1. Utilizing public health critical race praxis (PHCR) as our conceptual framework, 2. Addressing structural determinants of health through comprehensive multilevel interventions, 3. Utilizing comprehensive evaluation, and 4. Necessitating explicit attention to self-reflection by the researcher. National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY Cultural Confidence “…a lifelong process based on the individual’s selfreflection about their personal biases and prejudices. We define a culturally confident person as someone who is flexible and humble enough to admit ignorance and is willing to be uncomfortable addressing complex racialized issues.” Thomas, S., Quinn, S., Butler, J., Fryer, C. & Garza, M. Fourth Generation Health Disparities Research: Accelerating Innovations to Achieve Health Equity. Annual Review of Public Health. 2011. 32:399–416 National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY Powers, M, Faden, R (2006). Social justice: Moral foundation of public health and health policy. Oxford University Press. National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY INNOVATIVE METHODS Photo Credit: Sandra Quinn National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas 2001 FEDERAL DHHS TAKE A LOVED ONE TO THE DOCTOR DAY 4th GENERATION APPROACH: TAKE A HEALTH PROFESSIONAL TO THE PEOPLE THE HEALTHY BLACK FAMILY PROJECT (2004-2012) A Community-Based Demonstration Project Designed for Health Promotion and Disease Prevention NIH-NIMHD PG60MD000207 HEALTHY BLACK FAMILY PROGRAM ACTIVITIES Physical Activity Nutrition Education & Guidance Stress Management Smoking Cessation Family Health History Self-Management of Chronic Disease Referral to Medical Home Ford, A., Reddick, K., Browne, M., Robins, A., THOMAS, S. & Quinn S. (2009). Beyond the cathedral: Building trust to engage the African American community in health promotion & disease prevention. Health Promotion Practice, 10, 485-489. Health Advocates In-Research and Research (H.A.I.R.) Network of Black Barbershops & Beauty Salons Linnan, L., THOMAS, S., D’Angelo, H., & Ferguson, Y. (2012). African American barbershops and beauty salons: An innovative approach to reducing health disparities through community building and health education In M. Minkler (Ed.), (3rd Edition). New Brunswick, NJ: Rutgers University Press. SCHOOL OF PUBLIC HEALTH § MARYLAND CENTER FOR HEALTH EQUITY DANGER AND OPPORTUNITY Photo Credit: Sandra Quinn National Institute on Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY The danger is to assume that: 1. racism is not relevant in the scientific pursuit of solutions for the elimination of health disparities; 2. that some populations will always suffer premature illness and death by virtue of their culture bound lifestyle choices; and thus, 3. that the elimination of disparities is impossible and health equity unachievable in a free market society. Thomas, S. B., S. C. Quinn, Butler, J., Fryer, C..S., Garza, M.A. (2011). "Toward a Fourth Generation of Disparities Research to Achieve Health Equity." Annual Review of Public Health 32(1): 399-416 National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY The opportunity is to recognize health disparities as an issue of justice because specific groups were subjected to systematic racial discrimination and denied the basic benefits of society, a violation of the social contract. Boucher, David and Paul Kelly, eds. 1994.The Social Contract from Hobbes to Rawls, New York: Routledge National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY ACHIEVING HEALTH EQUITY “…we can no longer be victims of inaction. Our role as scientists is to provide the knowledge and perspectives for effective practice and policies… We have a moral obligation in our society to do what is necessary to improve health, and the health disparities research community should be in the vanguard of that movement” (Ruffin, 2010, p. S9). Ruffin J. 2010. The Science of Eliminating Health Disparities: Embracing a New Paradigm. American Journal of Public Health. 100:S8-S9 National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas SCHOOL OF PUBLIC HEALTH § CENTER FOR HEALTH EQUITY Acknowledgement & Disclaimer The projects described are supported by Award Numbers 7RC2MD004766 and PG60MD000207 from the National Institute on Minority Health And Health Disparities (NIMHD). The content is solely the responsibility of the authors and does not necessarily represent the official views of the NIMHD or the National Institutes of Health. National Institute of Minority Health and Health Disparities and Office of the Director, National Institutes of Health American Reinvestment and Recovery Act RC2MD004766; Principal Investigators: Sandra Quinn & Stephen Thomas THANK YOU VERY MUCH ! Stephen B. Thomas, PhD. Professor, Department of Health Services Administration Director, Maryland Center for Health Equity School of Public Health The University of Maryland [email protected] www.healthequity.umd.edu www.twitter.com/umdhealthequity