Transcript Measuring Disability and Monitoring the UN Convention on the Rights of Persons with Disabilities… … the work of the Washington Group on Disability Statistics Jennifer Madans National.

Measuring Disability and
Monitoring the UN Convention on
the Rights of Persons with
Disabilities…
… the work of the Washington
Group on Disability Statistics
Jennifer Madans
National Center for Health Statistics/
Washington Group on Disability Statistics
11/6/2015
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Need for National Data to Support
The Convention
National Data on population with disabilities is
necessary to both implement and monitor The
Convention.
The International Classification of Functioning,
Disability and Health (ICF) provides a
commonly accepted model to support national
data collection.
The Washington Group work seeks to provide
internationally comparable data based on the
ICF Model to fulfill the monitoring function.
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The Washington Group on
Disability Statistics (WG)
June of 2001-- the UN International Seminar on
the Measurement of Disability, based on a
broad consensus on need for population based
measures of disability, recommended the
development of principles and standard forms
for global indicators of disability to be used in
censuses.
The Washington Group, made up of
representatives from national statistical
offices, has pursued these goals over the past
10 years with recognized success.
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Role of the Washington Group
•
•
•
•
•
•
Foster international cooperation in the area of health
and disability statistics
Untangle the web of confusing and conflicting
disability estimates
Develop a short set of general disability measures
Develop extended set/s of items to measure
disability on population surveys
Address methodological issues associated with
disability measurement
Produce internationally tested measures for use to
monitor status of disabled populations.
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WG Products Useful for Monitoring
Short Set of Questions – six questions
recommended for Censuses. (Recommended
for use in all national censuses in the UN Principles and
Recommendations for Population and Housing Censuses)
Extended questions sets for national
surveys, currently under development
and testing. First set will provide
broader survey measures of this
population.
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Moving from Concept to
Operational Definition
The Definitional Paradox
• There is no single operational definition of
disability
• Different operational definitions lead to different
estimates
• The question you are trying to answer (the
purpose) will determine which definition to use
• Need to understand the choices that are being
made when choosing a definition
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UN Convention and WG Purpose:
Equalization of Opportunities
•
Seeks to identify
all those at
greater risk than
the general
population for
limitations in
participation.
Disability used as
a demographic.
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% Employed
90
Proportion (%)
•
60
30
0
Nondisabled
Disabled
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Measuring Disability
Because of a Health problem:
1) Do you have difficulty seeing even if wearing glasses?
2) Do you have difficulty hearing even if using a hearing aid?
3) Do you have difficulty walking or climbing stairs?
4) Do you have difficulty remembering or concentrating?
5) Do you have difficulty with (self-care such as) washing all
over or dressing?
6) Using your usual (customary) language, do you have
difficulty communicating (for example understanding or
being understood by others)?
Response categories:
No - no difficulty; Yes - some difficulty;
Yes - a lot of difficulty; Cannot do at all
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Severity within domains of
functioning
At least:
Some
difficulty
A lot of
difficulty
Unable
To do it
Vision
4.7
2.6
0.5
Hearing
3.7
2.3
0.5
Mobility
5.1
3.8
0.8
Remembering
2.0
1.5
0.3
Self-Care
2.0
1.3
0.4
Communicating
2.1
1.4
0.5
Core Domain
Living Conditions among People with Disabilities in Zambia (2006)
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Severity in Population (%)
Person with disability has:
N
%
at least 1 Domain is ‘some difficulty’
4053
14.5
at least 2 Domains are ‘some difficulty’
3090
11.0
at least 1 Domain is ‘a lot of difficulty’
2368
8.5
673
2.4
at least 1 Domain is ‘unable to do it’
Living
Conditions among People with Disabilities in Zambia (2006)
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Standardized Approach to
Monitoring the UN Convention
•
By standardizing these questions it will be
possible to provide comparable data crossnationally for populations living in a variety
of cultures with varying economic
resources;
•
Data can be used to assess a country’s
compliance with the UN Convention and,
over time, their improvement in meeting
the requirements set out under the
Convention.
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Population aged 15 years + who never
attended school, by disability status (%)
South Africa
6
Vietnam
6
23
30
21
Tanzania
8
Brazil
30
10
Zambia
23
16
Uganda
42
27
Mozambique
0
10
20
Without disability
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42
38
30
40
50
With disability
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Extended Question Sets
Having successfully developed and tested the short
set of questions for censuses, the WG moved on
to extended sets for national surveys.
First set of extended questions on functioning
• Expands the number of domains covered
• Provides more in-depth information on each
domain
• Begins to construct the links between
functioning in core domains without
accommodation, functioning with
accommodation, environment and participation
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WG Short and Extended Set
Testing History
Both question sets have undergone extensive
cognitive and field testing in multiple countries
throughout the world.
To improve the comparability of the tests
themselves, a new cognitive testing protocol
was developed and used
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Next Steps:
Cognitive and field testing of eventual new
extended sets on environmental factors
and child disability (jointly with
UNICEF).
Facilitate implementation of tested
question sets within NSO ongoing data
collection programs
Facilitate the analysis of resulting data
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Meeting Products & Information
• Executive summary of last ten WG
meetings posted on the Washington
Group website along with presentations
& papers from the meetings:
•
http://www.cdc.gov/nchs/washington_group.htm
• Publication of key papers in a special
issue of Research in Social Science and
Disability
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