AgrAbility Outreach to Migrant and Seasonal Farmworkers: Fotonovelas and Beyond AgrAbility Webinar Series September 2, 2010
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AgrAbility Outreach to Migrant and Seasonal Farmworkers: Fotonovelas and Beyond AgrAbility Webinar Series September 2, 2010 • AgrAbility: USDA-sponsored program that assists farmers, ranchers, and other agricultural workers with disabilities. • Disability can include ergonomic/orthopedic issues, arthritis, etc., as well as traumatic injuries, such as spinal cord injuries or amputations. – Partners land grant universities with disability services organizations – Currently 23 projects covering 25 states – More information available at www.agrability.org Basic Webinar Instructions • Need speakers or headphones to hear the presentation • Meeting > Manage My Settings > My Connection Speed – Dial-up not recommended • Questions about presentation – use chat window or call 800# provided at the end • Problems: use chat window or email [email protected] • 4 quick survey questions • Session recorded and archived with PowerPoint file at www.agrability.org Online Training link Webinar Outline • Arthritis fotonovela for farmworkers • California AgrAbility outreach activities and strategies • Migrant/seasonal farmworker outreach by Missouri AgrAbility Background on Fotonovela Project • 1980s: Arthritis and agriculture publications produced by Breaking New Ground • 2004: Update of Arthritis and Agriculture • 2007: Partnership with California AgrAbility to produce Spanish arthritis/agriculture resource • Partnering Organizations – Indiana AgrAbility • Breaking New Ground, Purdue University • Arthritis Foundation, Indiana Chapter • Transition Resources Corporation – California AgrAbility • University of California-Davis • Arthritis Foundation, California Chapters – Western Center for Agricultural Safety and Health, UC Davis • Development Process – Discussions of format – Development of story/script – Translation/editing – Production = 2010 Spanish Fotonovela ¿Podrá ser la ARTRITIS lo que me causa DOLOR? Could arthritis be what is causing my pain? Información para las personas con dolor en las coyunturas Information for people with joint pain Amber Wolfe AgrAbility Project Coordinator Arthritis Foundation-Indiana Chapter National AgrAbility Project • Fotonovelas are acceptable means of written/visual communication in Latino communities • Many of the second and third generation family members will find health care information at health fairs or clinics and will share it with their older family members • Fotonovelas are also helpful for conveying health care messages to areas of low-literacy as it focuses on the storyboard pictures more than the text • Format- 24 page full color booklet, 69 photographs, 2 diagrams • Characters: – Rosa - older Woman – Marcela - college age woman – Sara - middle-aged woman – Angelo - older man – Jose - younger man • Scene 1: kitchen with three women sitting around the table chopping vegetables for barbeque. – Rosa’s hands are hurting her (she is a vineyard worker) and Marcela suggests that it may be arthritis by sharing information she picked up at a health fair. – Marcela and Sara convince Rosa to see her doctor. Scene 2: Ladies go outside to where the men are cooking on the grill. Older man attempts to pick up child but has difficulty. – Angelo has been a dairy worker for over 20 years and now has pain in his knees and back. Scene 3: Dr’s office/clinic: – Angelo is seen by a nurse practitioner who runs his tests and talks to him about his pain. – Several days later- test results show he has osteoarthritis in his knees. – The nurse practitioner talks with him about modifications that he can make around the home and alternative methods of working to help manage his pain without lessening his productivity or pride. Several weeks later… – Conclusion shows the family as they are playing soccer in the back yard. – It states that even though Angelo still experiences joint pain at times, it is much better now that he has seen a doctor and is following the recommendations. Other information included in the fotonovela • Sources of Information – Arthritis Foundation Spanish Assistance • 1-800-283-7800 • www.arthritis.org/espanol • [email protected] – National AgrAbility Project – CalAgrAbility – National Center for Farmworker Health • 12 Tips for Controlling Arthritis • 5 Keys to a Healthy Life • How to obtain the Fotonovela – www.arthritis-ag.org (print order form) or www.agrability.org – Call or email Amber Wolfe at 1-800-783-2342 or [email protected] – Prices are as follows (shipping not included): • • • • 1-99 copies = $0.70 each 100-499 copies = $0.65 each 500-999 copies = $0.60 each 1,000+ copies = $0.55 each CalAgrAbility Outreach to Migrant and Seasonal Farmworkers: Fotonovelas and Beyond September 2, 2010 Martha C. Stiles, Program Director CalAgrAbility, University of California Davis, Dept. of Biological and Agricultural Engineering Partnered with The Arthritis Foundation Project funded by the Cooperative State Research, Education, and Extension Service, USDA project number 2010-41590-02408. UC-Extension provides equal opportunities in employment and programming including Title IX requirements. SPEAKERS MARTHA C. STILES, PROGRAM DIRECTOR ESMERALDA MANDUJANO, BILINGUAL OUTREACH REPRESENTATIVE CRYSTAL MARTINEZ, BILINGUAL OUTREACH REPRESENTATIVE WHAT WE WILL DISCUSS 1. Why Use Spanish-language Materials, Martha Stiles 2. Communication and Health Literacy, Crystal Martinez 3. Reaching Migrant and Seasonal Farm workers, Esmeralda Mandujano WHY PRODUCE SPANISH-LANGUAGE MATERIALS? 1. Growing number of Hispanics in the US 2. To Communicate Critical Health & Rehab-Info in Language(s) Appropriate for Consumers’ to Increase Success in Accomplishing Goals 3. To Provide Same Level of Service that EnglishSpeaking Consumers Receive WHY PRODUCE SPANISH LANGUAGE MATERIALS? Growing Hispanic Population in US Total Hispanics 1980: 4,544,331 19.20% 1990: 7,687,938 25.83% 2000: 10,966,556 32.38% Source: Census 2000 analyzed by the Social Science Data Analysis Network (SSDAN). WHY PRODUCE SPANISH LANGUAGE MATERIALS? 1. Since 1980, the nonmetro Hispanic US population doubled and… 2. Is the most rapidly growing demographic group in rural & smalltown America Source: USDA, Rural Development Research Report No. (RDRR-99) 49 pp, May 2004 WHY PRODUCE SPANISH LANGUAGE MATERIALS? Agriculture has Annual Influx of Spanish-Speaking Migrant & Seasonal Workers In Most States Estimates in a few AgrAbility States • California = 1+ million • Texas = 300,000 + • Georgia = 100,000+ • Michigan = 90,000+ • New York = 47,000 + • Missouri = 20,000+ • Oklahoma = 14,000+ Photo: Health Outreach Partners Sources: www.ncfh.org & MIGRANT AND SEASONAL FARMWORKER ENUMERATION PROFILES STUDY Any Spanish-language material is better than nothing…WRONG! • Poor quality materials in Spanish may do harm • Watch for: inaccurate info, poor translations, grammar, punctuation (accents are important!), & inappropriate reading levels • 3rd-6th grade level for farm workers May 12, 2010| By Whitney Woodward, Alejandra Cancino and Julie Deardorff, Tribune reporters Translated Prescriptions Often Wrong Half of automated Spanish versions have errors: 'It's scary' Source: http://articles.chicagotribune.com/2010-05-12/health/ct-x-cspanglish-prescriptions-20100512_1_error-rate-pharmacies-spanish Use Formats Acceptable, Preferable & Understandable to Audience FOTONOVELAS • Popular format began in the 1940’s in Mexico & Europe • Used frequently today to communicate health messages, esp. for lowliteracy groups IMAGES & ACTIVITIES & VENUES = Acceptable, Preferable & Understandable • Use images/faces that look like target audience • Show images of intended activity/behavior in familiar settings • Use photos rather than drawings PRE-TEST IMAGES & ACTIVITIES & VENUES & LANGUAGE • Acceptability: accepted as true/identifiable, useable by audience • Preferability: having greater value or desirability; it is preferred • Understandability: all messages understood by audience WHEN WE PROVIDE INFO (novelas, etc.), It … • May be the 1st steps the person takes in getting health & rehab care • May be passed on to family, must be accurate and trustworthy, and… • Is often the only communication we have with that person CRYSTAL MARTINEZ COMMUNICATION Communicating Effectively: Overcoming Miscommunication with Farm Worker Consumers Presented by: Crystal Martinez Bilingual Outreach Representative California AgrAbility Program Modify use change CalAgrAbility Uses Plain Language What is it? Objective use aim, goal Participate use take part Provide use give, offer, say Source: http://www.plainlanguage.gov/whatisPL/index.cfm Plain language = communication the audience can understand the 1st time they read or hear it Language that is plain to one set of readers may not be plain to others PLAIN LANGUAGE BENEFITS CALAG CONSUMERS • Provides information that is easy to read & understand in a simple format … So Consumers can: •find what they need •understand the information they find •use information to fit health and rehab need Fotonovela: ¿Podrá ser la Artritis lo que me causa dolor? Could Arthritis be what is Causing my pain? •Word Usage -Eliminating medical jargon, using common words -Using conyunturas instead of the medical term articulaciones (means joints) •Accompanying images with words CalAgrAbility’s Cultural and Linguistic Challenges Language Barriers •We assist people who are predominately Spanish speaking •There’s an emergence of workers speaking indigenous languages … other than Spanish I.E., Mam, Ancient Mayan dialect used by CA consumers, with limited Spanish, also Mixteco a pre-Colombian dialect CALAGRABILITY RESPECTS CULTURAL NUANCES IMPACTING CONSUMERS WITH DISABILITIES & ILLNESS Beliefs, customs & norms are part of their way of life • Head of household is decision-maker • Disability = shameful • Religion • Education = 3-6th grade Illiteracy Vs. Low Literacy Some CalAgrAbility consumers are Illiterate: not able to read or write -Not able to write a signature; i.e., sign documents with initials or an “X” Low literate: limited reading & writing abilities -Low education level: understanding is basic, NOT complex -Need assistance from others reading material CalAgrAbility Outreach to Low-& Non-Literate Spanishspeaking Consumers 1. Read documents out loud to them 2. Re-state what was said in documents (apply simple language strategy) 3. Ask them to repeat what was said… or what they understood was said 4. Ask if they have any questions 5. Summarize next steps It is often best to have a family member sit in so 2 sets of ears are listening. 85% Of Workers Say They Have Difficulty Reading & Understanding Written Info Even In Their 1st Language We verbally present information in Spanish, and … • Non-literate Consumers must trust what is said…and • They don’t review it at that time, esp. if they cannot read • Non-literate consumers usually don’t have help to review info after we leave….FOLLOW-UP Source: PCAR 2007 Health Literacy & CalAgrAbility Health Literacy is the degree that a worker or farmer can find, process, &understand basic health & rehab information that s/he needs to make important decisions about her/his rehabilitation and health. These are skills that all people need to navigate the rehabilitation and health systems Source: 2010, Healthy People, US DHHS Building Program Capacity: CalAgrAbility’s Steps toward Improving Health Literacy • Accompany consumer to doctor, rehab, workers comp, & other Medical appointments • Search for Adult literacy programs available for consumers • Conduct Bilingual outreach … translation and interpretation services to our consumers Now Esmeralda will speak specifically about how we reach our migrant and seasonal consumers Reaching Migrant and Seasonal Farmworkers Esmeralda Mandujano Bilingual Outreach Representative California AgrAbility Program University of California, Davis Ag Workers can be difficult to reach •3+ million migrant & seasonal farmworkers reside & work in the US (National Center for Farmworker Health, 2007) •75%-born in Mexico •23%-born in US •78% are immigrants US Demographics •61% live below poverty level (<1% receive cash aid) •Median family income is <$10,000 •Farming = main income source Photo Source http://www.edibleportland.com/2008/07/hand_picked_row.htm Workers are Difficult to Reach & Communicate With US Demographics • 81% speak mainly Spanish • 18% English • 2% other dialects or languages •79% Male • Average age=31yrs. • Lived in US 10+ yrs. Photo Source http://www.edibleportland.com/2008/07/ hand_picked_row.html Many Workers Follow 3 Migrant Streams AND Move Up To 13 Times Per Year Permanent Residents Source: National Center for Farmworker Health What is a Migrant or Seasonal Farmworker? •Migrant farmworker works in seasonal agriculture and travels 50+ miles from home and lives in temporary housing. •A seasonal farmworker works in seasonal agriculture; is a permanent resident of a community; does not move into temporary housing when employed in farm work. CA Reaches Workers in Migrant Camps & Housing Centers Camps & Housing Centers •usually housing located on outskirts of towns in isolated areas •House workers from other countries an from other states •California: 24 migrant camps/centers run by the state Other States Have Private/Licensed Camps & Housing Michigan = 807 Private Licensed Texas = 31 Licensed Photo Source http://www.palmbeachpost.com/hp/content/moderndayslavery/photos/ CalAgrAbility Attends & Sponsors Community Events • Health fairs = opportunities to reach farmers & workers • Health Events = only time families receive medical attention • Children & Community Events -- 64% of migrant households have children (Cinco de Mayo, Local Tomato, Pear, Asparagus Festivals, etc.) Community Sponsored Events Promotional/Advertisement of the Program in Spanish CA Produces/Disseminates Spanish Educational Materials CalAgrAbility Develops Strong Collaborative Bonds Examples • Promotoras • Employment Development • RISE Service Center • Migrant Health Clinics • Migrant Housing Authorities • Latino Network • CA Voc Rehab • ALBA (Latino Farmer Group) • CA Small Farm Training • Arthritis Foundation • Coop Extension • ILCs • Bi-National Health Coalition • Health Education Council Serve as a supplemental critical connections to maintaining communication with consumer CalAgrAbility Conducts Spanish Educational Trainings • Increases Program Visibility • Topics: Arthritis, Chronic Disease; AT; Rehabilitation; Reduce Secondary Injury, etc. • Conducted at camps, community centers, on farms, farm bureaus, Extension offices, etc. 2010 Spanish-language CalAgrAbility Arthritis Leader Training, Woodland, CA CA Produces Spanish Radio Spots • Public Service Announcements • Farmworkers are radio listeners (i.e. as they drive/ride to work, at work, and at lunch breaks) • Radio is a type of liaison between old and new life Farmworkers want to learn!!! IN SUMMARY 10 Strategies in Reaching Migrant & Seasonal Workers 1. Outreach where workers live, work, access service, & socialize; go to them … they might not be able to come to you. 2. Develop relationships & credibility within migrant community over time. 3. Develop materials that are culturally sensitive & accessible to all literacy & educational levels. 4. Establish and/or participate in community task forces— networking! 5. Know the rights & resources available to the migrant community. IN SUMMARY 10 Strategies in Reaching Migrant & Seasonal Workers 6. Raise awareness about the risk of injuries. 7. Cultivate relationships with employers & contractors of workers. 8. Develop culturally competent outreach, prevention, & advocacy services. 9. Recognize & strive to understand the diversity within the culture and the unique experiences of individuals. 10. Work with your colleagues to bridge gaps in services for the migrant community. Team work!!! Working with Lay Health Workers… Promotoras de Salud Missouri AgrAbility Project Missouri Arthritis Rehabilitation Research and Training Center (MARRTC) National Center for Farmworker Health Arthritis Program Lay Health Workers… Promotoras de Salud • Community Lay Health Workers or Promotoras de Salud – utilized in the delivery of health education in various region around the world since the 1900’s and in the U.S. since the 1950’s. • Members of the community who promote healthy living – provide education about disease and injury prevention to individuals and groups in a culturally appropriate and sensitive manner. • Help members of the community access formal health and human services system. Arthritis Program Why Promotoras de Salud? • The educational team believed that the most promising method of delivering Arthritis education is to work through the network of migrant health clinics and promotoras which is already supported by NCFH staff. • Promotoras de Salud have proven to be an effective link in communicating medical information and helping to motivate workers to adopt healthy lifestyles. Arthritis Program “Focus Groups” on Methodology • Focus group meetings were organized in Texas and Missouri to determine what methods and approaches would be best received by promotoras and migrant/seasonal farmworkers. Arthritis Program Let's Talk About Arthritis The Let’s Talk About Arthritis bilingual flipchart is developed for lay health workers to use while they conduct arthritis educational sessions in the community. The flipchart provides the most important messages on arthritis and self management for the community. Arthritis Program For more information Karen Funkenbusch, University of Missouri-Columbia Missouri AgrAbility Phone: (800)-995-8503 [email protected] Arthritis Program