Kent & Medway Cancer Network Thames Cancer Registry

Cancer Registration Dataset Pilot

Nigel Brook

Background

• “The overall objective (from Project Brief) is to produce, agree and implement a robust mechanism by which information can be recorded, transferred, linked, consolidated and aggregated for the purpose of cancer registration. “ • Milestones  July 2003 NHSIA joint project  November 2003 Proposals for pilots  July 2004 Interim report  August 2004 New version of NCRDS in line with pilot recommendations.

Cancer Registration Dataset A Standards approach

 Sub set of NCDS v 4.3(5.0)  Use industry standard messaging language  Develop in partnership with NHSIA (including funding)  Work closely with NPfIT Design Authority  Submit to Information Standards Board  Establish relationship with supplier to facilitate implementation at other sites

Kent and Medway Cancer Information Infrastructure

Electronic Patient Master index EPMI Infoflex cancer patient information Oncology patient management     Cancer patient information system-Infoflex Oncology patient management system KOMS Chemotherapy prescribing system Pathology data warehouse chemotherapy prescribing Pathology data

Strategy for implementation of the Cancer Patient Information System

• Waiting Times Data Collection Plus two streams of implementation • Collection of the lung cancer dataset and collection of the gynaecology MDM and surgery dataset • Accelerated program to support data collection at MDTs. Breast and urology MDM datasets to be followed by colorectal etc.

Progress to date

    Live with waiting times – all sites Lung design being piloted at Medway and will roll out July/August  Breast MDM pilot started mid April at Darent Valley. Will roll out Aug/Sept Urology MDM pilot started in East Kent in April Gynae pilot started end of April, first for MDM with surgery to follow

Cancer Registration strategy in Kent

 Current –Manual – paper based  Interim – Shared data collection with KMCN using common system  Future – Migration to full implementation of NCRDS

Progress to Date

 Established system for extraction of data in XML format installed at Kent & Medway Cancer Network  Created message store at TCR  10,000 records delivered to TCR for processing  Report ready for presentation to ISAB .  Development of CR screens in Infoflex

Quality review of first data delivered

 Confirmed cancer cases All cases 1617 2002 347 2003 1249 2004 5 Other 16  828 cases matched with registry records. High degree of agreement on demographic details

Advantages

 Less duplication of work  Initial data collection is more timely  Quality Assurance becomes a cooperative effort  Standard template for cancer registration data available on all Infoflex implementations  Rapid processing of data on arrival  Data validation rules

Challenges

 Refine schema  Increase field and cross field validation  Work with network to standardise data  Roll out of Cancer Registration screens to other KMCN sites

Conclusion

 XML schema is fit for purpose  It is simple to implement and rapid to process  If Implemented as an operational standard it will facilitate data capture for cancer registration