Transcript CysticLife.org

CysticLife.org
Social Media and the Cystic Fibrosis Community
Today’s Objectives
 Understand the state of social media
 Discuss social networking for the healthcare
industry
 Learn how the Cystic Fibrosis community is using
social media
 Explore CysticLife.org
Social Media
Popular Social Sites
The State of Social Media
 Explosive year-to-year growth
 Usage increases year-to-year
 Social networker make-up leans towards
young females
Demographics of Users
Explosive Growth
Frequency
Key Implication
 With both usage of social networks and the
frequency of that usage increasing dramatically –
We are witnessing a change in how mainstream
consumers communicate.
Healthcare and Social Media
Popular Types of Healthcare Social Media
 Blogs – WebMD, NYTHealth Blog
 Microblogs – Livestrong
 Social Networking – OrganizedWisdom,
PatientsLikeMe
 Podcasts – Johns Hopkins Medical Podcasts, Mayo
Clinic
 Forums – Google Health Groups, Yahoo! Health
Groups
Healthcare Social Media
 E-patients represent the new breed of informed
health consumers - using the internet to gather
medical information about a condition of
particular interest to them.
 60 million consumers are using new media to
interact and share their health experiences online.
 72 % of e-patients searched for medical
information just before or after a doctor’s visit
Why Social Media?
 People trust “a person like me” more than
authority figures
 People are seeking ongoing dialogue, not one-
way communication
 Many patients are not getting the empathy they
need from doctors.
What are e-patients searching for and how?
 36% want to see what other consumers say about
medication or treatment.
 34% using social media sites
 46% using health sites
 67% using search engines
Social Media and CF
CF Community Online
 Trends are the same for the CF community
 Added benefits for CF community:
 Limited face-to-face interaction for patients
 Small population, web increases circle of
support
 CF is a lifestyle disease
Popular CF Social Media
 Blogs – Confessions of a CF Husband, CFFatboy,
RunSickboyRun, A Matter of Life and Breath,
Welcome to Joshland
 Social Networks – CysticLife.org, Facebook
 Podcasts – Jerry Cahill’s CF Podcast
 Forums –Yahoo! and Google Health Groups.
CysticLife
What is CysticLife?
 An organization that works to positively impact the lives
of the Cystic Fibrosis community.
 Online: CysticLife.org
 Offline:
 Raise awareness about CF
 Educate/support the community
 Soon will provide activity, medical, and educational grants for
CF-related expenses
CysticLife.org
 Open to anyone in the CF community: patients, family members,
friends and healthcare providers
 Members can maintain a profile, blog, ask questions, communicate
with others and search for members by age, gender, location and
relation to CF.
 Since January 2010:
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Over 900,000 hits
2100 registered members
Average 8.5 minutes and 8.5 pageviews per visit
Visitors from all 50 states and 79 different countries
64% of visitors returning more than once a day
Top Content:
 Questions, Blogs, Members
Live Demo
Questions?
Sources
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Webster, Tom. The Social Habit - Frequent Social Networkers The Edison/Arbitron Internet and Multimedia Study 2010. Rep. Edison
Research/Arbitron Inc, Feb. 2010. Web. Aug. 2010.
<http://www.edisonresearch.com/home/archives/2010/06/the_social_habit_frequent_social_networkers_in_america.php>.
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Chen, Pauline W. "Taking Time for Empathy." New York Times. 25 Sept. 2008. Web. 30 Aug. 2010.
<http://www.nytimes.com/2008/09/26/health/chen25.html?em>.
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Meis, Scott. "Healthcare & Social Media: 2009 Trends & Strategy." Carolyn Grisko & Associates Inc., 11 Mar. 2009. Web.
30 Aug. 2010. <http://www.slideshare.net/ScottMeis/healthcare-social-media-2009-trends-strategy-1131605>.
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Q1 Productions. "Social Media in Healthcare." Apr. 2009. Web. 30 Aug. 2010. <
http://www.youtube.com/watch?v=qLeNGykRAvU>.