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Stories of people who have attended a Lesbian, Gay, Bisexual, & Trans (LGBT) support group in a secure learning disability service Dr Paul Withers, Clinical Psychologist Head of Psychological Treatment Services Calderstones Partnership NHS Foundation Trust Rationale • LGBT people are at significantly greater risk of experiencing psychological distress1 2 • Research indicates that experiences of discrimination and difficulties with identity formation contribute to this distress3 4 5 6 • Support groups can help address these issues7 8 • People with learning disabilities are at increased risk of having mental health problems and may be more likely to have negative views of LGBT identities9 10 11 • Research relating to support groups for LGBT people who have a learning disability is of limited quantity The Avenue Set up 5 years ago at instigation of service users Meets monthly Over 30 service users have attended (On Site population less than 200) Activities include campaigning, socialising, events and teaching/training This research • The research was undertaken at my request following discussion with the group members • Based in a secure service for people with learning disabilities • Undertaken by the group attendees in collaboration with Liz Tallentire, Trainee Clinical Psychologist Aims: • For this group of people to be heard • To increase understanding of the group’s role in members’ lives and in their rehabilitation • To inform development of this group and possibly others Methodology • • • • • Participatory approach, including consultation on design Total of 18 co-researchers Qualitative semi-structured interviews (9 co-researchers) Written information (8 co-researchers) Narrative analysis, including co-researcher contributions (4 coresearchers) • The analysis included considering what co-researchers said (stage 1), then how they said it and why they said it (stage 2), similar to dialogic/performance analysis12 • Ethical Issues Results: the group story Deciding to go to the group: identity and coming out Starting to attend the group: fear and namecalling Developing pride in who you are: this changes your life Becoming able to be yourself when at the group Wanting to help others with their sexuality: pride in achievements Wanting to carry on the work elsewhere: direction in life Deciding to go to the group: identity and coming out • Big decision • coming out about having an LGBT identity Decision influenced by: • Support in the secure service • Attitudes in the secure service • Perceptions of others’ views • Media “it's coming out who you really are…that's what it's done with me, I've come out who I am” (Ashley). “you feel more confident [at this service] to come out and do that [go to a support group]” (Casey) “some staff have an issue with relationships” (Rowan) • Fear of others’ reactions • Name-calling experienced by nearly all coresearchers • How name-calling was addressed was important, one person stopped attending due to name-calling • “I was frightened the first time I went” (Taylor) Starting to attend the group: fear and name-calling • “I stopped going because people ridiculed me and were name-calling, saying things like 'Faggot', 'Nonce' and 'you're in there with all the other Nonces’ ” • Welcomed • Not judged • Safe • • From name-calling Trust in other group members • Support from staff facilitators “you can dress up, be whoever you want to be [at the group], where like you know in here you can't, you just have to dress normal...cos of how other people react” (Ashley) Becoming able to be yourself when at the group “I got used to it and it’s changed my life, I feel more open with people when I talk to them. I never used to be like that when I first went to the group, but now since I've been going, people gave me the support through it and everything and I feel better for it now, I can go to the group without any problems.” (Jamie) • • • • Pride in identity Able to be themselves outside the group Positive emotional change Talking about sexuality helped “well I'm who I am, and I'm happy now, and like all thanks to you lot [the group], … cos they made me feel a lot better in myself, like I was saying I was scared.” (Morgan) Developing pride in who you are: this changes your life “Some people talk about what they are and open up and it's more better when you open up in a way, then people understand what you are then they give you the support what you need, it's quite interesting to know.” (Jamie) • • • • Wanting to help others with their sexuality: pride in achievements Some people joined at this stage Real sense of achievement Raising self-esteem Different ideas about what the group aims should be, reflecting group’s multiple functions “I've helped them ….and it's helped me to achieve a new goal to do the same again … my life goal… [This has made me] Really happy and proud” (Alex) “we had someone from Blackpool and she was really fascinated by us, she said this is the first group I've been to, that's been really positive… so everyone had big heads on” (Robin) • Goals when leaving the service • Connection with the outside community • Important for rehabilitation “When I leave here, the tutors are hoping to help me and support me …to run the same group...that means taking responsibility, ownership…and it'll show me how well I've moved on” (Alex) Wanting to carry on the work elsewhere: direction in life “My future's going to go further. I'm going to move out of…[the service] and live …with somebody who's same as me …and have a relationship with that person, and say, look this is where I've come from, this is where I’m staying, do you fancy setting up a programme, a goal to go and work with them [LGBT] people, or set one up [support group] for us to get people involved to talk about their sexuality.” (Jamie) Discussion Importance of the group • Identity development – a different identity? • Reduced distress, following initial attendance • Self-esteem • Rehabilitation May work by modelling behaviour, links with social learning theory13 Findings consistent with other research regarding LGBT support groups7 8 Group story related to the dominant coming out narrative14 and Cass’s (1984) model of sexual identity development15 The research had strengths and limitations Recommendations • Continued service investment in the group • Similar groups could be considered by other services • Staff training in supporting LGBT people and addressing related bullying Further research to: • Measure difference in rehabilitation outcomes for those who attend the group compared to those who do not • Explore staff attitudes to service user relationships • Explore how interaction with LGBT staff affects client identity development and rehabilitation through modelling • Use a participatory approach References 1. 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