Transcript Document

NCPEDP Study on
Disability Question in
Population Census of India 2011
Prepared by DEOC
OBJECTIVE OF THE STUDY
To understand what kind of question the
disability sector thinks should be asked in the
Census Questionnaire to ensure that a more
authentic disability data is collected.
METHODOLOGY
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Studying the Questions asked previously,
and in some other countries
11 Countries, some ‘developing’ and some
‘developed’
Question recommended by the Washington
Group
Mainly secondary data compiled from the
internet
METHODOLOGY
2. A Survey to understand what Disability
Question the disability sector thinks should be
asked in the Census Questionnaire of 2011
- The Questionnaire and the Explanatory
Note was prepared
METHODOLOGY
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The database of representatives of disability
sector in India was prepared. It was a
selective sample with representation of:
Different regions
Neglected regions
Different disability groups, such as, Autism,
learning disabilities, deaf-blindness, leprosy,
Thalassaemia and Haemophilia.
Rural and urban areas
A large part of the sample consisted of
persons with disabilities.
MAJOR FINDINGS
In their Census, countries have asked
either:
• a single question on whether the person
has a disability or not;
• categories or nature of disability; or
• function/activity-based disability
question.
Countries studied for
disability question in Census
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Canada
US
England
South Africa
Nepal
Brazil
Kenya
Peru
Trinidad & Tobago
Venezuela
Philippines
DISABILITY PREVALENCE RATES BY COUNTRY
AND DISABILITY QUESTION METHOD
Country & question type
Disability prevalence rate
Do you have a disability?
Yes / No
Nigeria
0.5
Philippines
1.3
List of Conditions
Mexico
1.8
Uganda
3.5
Activity-based question
United Kingdom
12.2
Canada
18.5
Washington Group on Disability Statistics
• Washington Group on Disability Statistics was
set up in 2001.
• One of the objectives of the WG was to
develop disability measures suitable for
censuses and surveys.
• WG proposed a question based on the
International Classification of Functioning,
Disability and Health (ICF).
The proposed question of WG
• The next questions ask about difficulties you may have doing certain
activities because of a HEALTH PROBLEM.
1.
Do you have difficulty seeing, even if wearing glasses?
– The inclusion of assistive devices was considered for two domains
only, seeing and hearing, as limitations in these domains can
often be overcome with the use of glasses or hearing aids.
2.
Do you have difficulty hearing, even if using a hearing aid?
3.
Do you have difficulty walking or climbing steps?
4.
Do you have difficulty remembering or concentrating?
5.
Do you have difficulty (with self-care such as) washing all over
or dressing?
6.
Using your usual (customary) language, do you have difficulty
communicating, (for example understanding or being understood by
others)?
Each question has four response categories: (1) No, no difficulty, (2)
Yes, some difficulty, (3) Yes, a lot of difficulty and (4) Cannot do it at
all. The severity scale is used in the response categories in order to
capture the full spectrum of functioning from mild to severe.
Disability Question chosen by Indian
Disability Sector Leaders for
Census 2011 in India
• Number of people the Questionnaire was sent
to: 100
• Responses received: 72
• Percentage of responses: 72%
• Number of States/UTs covered: 23
Options and the Response Rate
• OPTION 1. Disability Question asked in India
Census 2001
• OPTION 2. Disability Question asked in the
Pre-Test Questionnaire of India Census 2011
• OPTION 3. Disability Question based on the
categories covered under the Indian disability
laws
• OPTION 4. Question suggested by
Washington Group based on International
Classification of Functioning, Disability and
Health (ICF) (with certain modifications)
• OPTION 5. Question used in UK Census 2001
• OPTION 6. Question based on UNCRPD
• OPTION 7. Question based on UNCRPD (with
modification)
Question No.
Respondent
Count
Percentage
of Response
Option 7
46
63.89%
Option 3
10
13.89%
Option 5
6
8.33%
Option 6
3
4.17%
None of
above
3
4.17%
Option 1
2
2.78%
Option 2
2
2.78%
Option 4
0
0.00%
72
100%
TOTAL
First Preference of the Respondents
If the person has impairment which in interaction with various
barriers may hinder her/his full and effective participation in the
society on an equal basis with others, tick on any one of the
following nature of disabilities:
1. Physical impairment (e.g. impairment of movement, muscles,
joints, limbs, balance, impairment of touch)
2. Psychological and psycho-social impairment (e.g. impairment
of behaviour, attention, concentration, thoughts, mood,
interaction with others)
3. Learning impairment (e.g. intellectual impairment, specific
learning impairment and impairment of applying knowledge)
4. Hearing impairment
5. Visual impairment
6. Speech impairment
7. Multiple impairments
8. Long-term disabling health condition (dysfunction of body
organ/s leading to long-term functional limitation)
Some Suggestions from Respondents for
Further Discussion
• The wordings of the covering line (for example
to include ‘barriers’ or not)
• Inclusion of a separate category of
deafblindness
• The change in terminology from ‘hearing
impairment’ to ‘deaf and hard of hearing’
• The definition of each category, what
impairments to be included and how the
enumerators should ask that question
• The strategy and content for enumerators’
training
• The strategy for awareness raising
Thank You