Transcript Rules of the Road
3 H
OMEWORK
R
EVIEW
P
ROJECT
L
EADERSHIP
: C
HAPTER
2
Rules of the Road:
Systems, Laws, and Entitlements
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P URPOSE To learn about:
How policies are made Important laws and public systems Making the link between individual advocacy and public policy advocacy
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7 H
OW
P
OLICIES ARE
M
ADE
G LOSSARY OF T ERMS
Appropriation Entitlement Programs Family-Centered Care Laws Legal Mandate Regional Centers Regulations Statutes
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W
HAT IS
P
OLICY
?
Policies vs. laws Everyday examples of policies
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P OLICY B REAKDOWNS
Is the problem related to: Intent or language of the law?
Regulation or ruling that tells how a law is to be implemented?
Implementation of the policy?
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I MPLEMENTING P OLICIES
Policy Regulation Implementation
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G OVERNMENT P OLICY L ANDSCAPES
Legislative
Federal: Senate and House of Representatives CA State: Senate and Assembly
Executive
Federal: Departments and Agencies CA State: CA State Departments and Agencies
Judicial
Federal: Federal Courts CA State: State Courts
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G
OVERNMENT
P
OLICY
L
ANDSCAPES Local
County: Boards of Supervisors, County Commissions, County Departments City: City Councils, Departments, Commissions Planning Councils Agency: Boards, Councils, Departments, Committees Regional: Councils of Governments
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I MPORTANT AND P UBLIC S L AWS YSTEMS 14
This slide is from the
Health Care in Transition
presentation by Dr. Ann Kuhns, California Children’s Hospital Association
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P
UBLIC
P
ROGRAMS FOR
C
HILDREN
Title V CSHCN Programs
California Children’s Services (CCS)
Medicaid
Medi-Cal
SSI for Children
CHIP/SCHIP
Healthy Families Medi-Cal
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L AWS P ERTAINING TO C HILDREN
Section 504 Individuals with Disabilities Education Act (IDEA) Lanterman Act Family-School Partnership Act
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2.18
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FEDERAL
LANDSCAPE Legal Mandates & Agencies Responsible for Services for Children with Special Health Care Needs REGIONAL CENTER and CA EARLY START IDEA Part C
(birth to 3 yrs)
California Lanterman Act
(3yrs and up)
California Department of Developmental Services (DDS)
LOCAL
Regional Centers California Early Start 20
FEDERAL
LANDSCAPE Legal Mandates & Agencies Responsible for Services for Children with Special Health Care Needs California Children’s Services Title V Maternal & Child Health
(birth to 21 years)
LOCAL
California Medical Services Branch (CMS), Dept. of Health Care Services (DHCS) California Children’s Services (by county) 22
Family Feud
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M
AKING THE
F
ROM
I C
ONNECTION NDIVIDUAL TO
P :
UBLIC
P
OLICY
A
DVOCACY
M APPING OUR S YSTEMS
What services and systems do you or your family members use?
Which of those are services?
Which of those are systems?
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I NDIVIDUAL A DVOCACY
Being an individual advocate means working, speaking, writing, and problem solving; and finding solutions and resources to ensure you and your family’s needs are met.
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I NDIVIDUAL A DVOCACY
Examples: Find information & support Keep records Choose a health plan Find the right primary care physician Practice partnerships Negotiate your coverage/health plan Practice self care
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P UBLIC P OLICY A DVOCACY
Sometimes
individual advocacy
is not enough. When programs and the policies that guide them do not support the
family-centered care
philosophy, you get inspired to make things work better.
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S
TRATEGIES TO BECOME A
P
UBLIC
P
OLICY
A
DVOCATE
:
Know the law and its intent.
Keep track of opposing arguments.
Be familiar with pros and cons of policies.
Understand different agendas and establish common ground.
Build a core group of allies and other advocates.
Propose alternate solutions.
Provide input on policies.
Inform general public about the issue.
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C
HANGING THE
S
COPE OF
F
OCUS
Individual experience is your best tool for becoming a public policy advocate!
Individual Public policy regarding individual issue System-wide approach Examples of advocacy focus: - Family-centered - Coordinated - Responsive - Culturally competent - Flexible
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P ARTNERS AND A LLIES
Find partners to help you!
• • • • Possible partners Primary Care Physicians Organizations Parent Groups Legislators
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B E I NFORMED
Talk to other families about their experiences.
Get on the mailing list of an advocacy group focused on your issue (or start your own!) Examples: FVCA to subscribe, email: [email protected]
The California Advocacy Network for Children with Special Health Care Needs (LPFCH) http://www.lpfch.org/programs/cshcn/collaborativ e.html
Research your issue in the media – look for articles, reports, and statistics.
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T AKING THE N EXT S TEP :
Volunteer at an Independent Living Resource Center, Family Resource Center, or other advocacy organization. Attend a conference or public meeting about an issue of interest to you.
Organize a meeting with some potential allies.
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M AKE A C OMMITMENT !
Set specific goals.
• Both long-term and short-term • Incremental and overall Set up a concrete timeline with deadlines.
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Chapter 2 Review
H OMEWORK
Action Planning Template: Allies, Opposition, Laws/Policies, Statistics/Data, and Relevant Reports/Articles boxes Fill in the blanks: Systems & Services
worksheet
Complete some portion of the Make a
Commitment worksheet 38
39 E VALUATION
Purpose
o To get feedback on the effectiveness of this training o To identify what participants are learning o To find areas that can be improved