Transcript Slide 1
National Cancer Survivorship Initiative Central Hall, Westminster Monday 21 September 2009 Active and Advanced Disease Active and Advanced Disease Today: • Overview of priorities • Look at our plans • Get your feedback Steven Wibberley – Macmillan Cancer Support Amanda Whetstone – Service User Tariq White – Cancer Network nurse Director Our ideal world would look like ... Everyone has a personalised care plan Easy access to support and rehab services Prompt and sensitive pathways back into the system EoLC decisions are made together by patients and professionals Priorities Well-being - living with and beyond cancer Coping, wellness, the ‘new normal’, relationships Getting back into the system on recurrence Self-referral, pathways from primary care, treatment by MDT, role of A&E Transition to End of Life Care Who decides and when, communications – early involvemnent of palliative care Ongoing assessment and care plans Well-being - living with and beyond cancer Coping, wellness, the ‘new normal’, relationships Our plans..... • Focus on “patient centred care” • Link with the evidence review on “what makes a difference” • Gather examples of good-practice around well-being (and navigation) in cancer and LTC. • Develop models of care manager / navigator • Patient info and pathways –directories of service info • Produce principles and guidance for good practice. Getting back into the system on recurrence Self-referral, pathways from primary care, treatment by MDT, role of A&E Our plans… • Identify current best practice – developing access pathways for suspected recurrence – multi-disciplinary approaches to treating recurrence and advanced disease • Through 3rd wave of test communities (late 2009) identify pilot sites for improvements in pathways and approach to treatment for patients with recurrence / active cancer. • Produce good practice guidance Transition to End of Life Care Who decides and when, communications – early involvemnent of palliative care Our plans… • Identify and work with test communities looking at assessment at the transition to EoL. • Work with Dept of Health EoL team to identify understand implementation and issues for cancer survivors • Produce good practice guidance Ongoing assessment and care plans Our plans… • Involvement in next phase of test communities • Evaluation of A&CP on later stages of pathway and transition to EoL • Input into the final report to ensure recommendations relating to patients with advanced disease or at the transition to end of life are included. Questions… • From what you have heard today, what is most important? • What, if anything, has been left out? • What will be the difficulties in implementation? • How can we overcome these difficulties? • What other points come out of this discussion?