Transcript Better Funding For Services For People

Better Funding For Services For People With
A Learning Disabilities - Learning Disability
Coalition
What The Initiative Seeks To Do
• Persuade the government that
more funding is necessary and can
be found for learning disabilities.
The Story So Far
• December 2008 research shows
numbers needing care up by 35%
How We Know The Initiative Is
A Success
• Department of Health accepts
figures e.g. population going up
• Department of Health
Acknowledge legitimacy of
campaign
Next Steps
• Campaign based on research
and cost benefit of early
interventions and interventions for
people with moderate learning
disabilities.
Kissing It Better Independent website
(Personal Initiative) www.kissingitbetter.co.uk
What The Initiative Seeks To Do
• Highlight how simple ideas can
make the world of difference
The Story So Far
• The website was recently
launched
• Feedback has been made, the
site has been well accepted
How We Know The Initiative Is
A Success
• Feedback has been made
• Personal contact
• People are willing to share their
stories with us
Next Steps
• Sustainability - funding
• Promotion through media
• Spreading the word
The Orders of St John Care Trust
What The Initiative Seeks To Do
• To ensure person centred care
reflects the whole person and not
just their physical care needs
• Create a social interactive tool
The Story So Far
• Staff trained to enable clients to
complete life histories
• Discussions/meetings with
clients/families/friends
How We Know The Initiative Is
A Success
• Much better interaction
between staff resident and family
• Respect for the person and
their past lives knowledge that
enables staff to understand
clients with dementia and other
social care needs
Next Steps
To continue with programme
across all specialities
•To introduce memory books so
the person is remembered after
death
Dignity Matrix (My Home Life) – Help the
aged/Age concern
What The Initiative Seeks To Do
• Tool to measure whether
organisations (primarily aimed at
care homes) using dignity
initiatives are meeting them
• From the users prospective
The Story So Far
• Tool launched winter 2008/2009
(through my home life project
available on web site)
• Four country participation
How We Know The Initiative Is
A Success
• Evaluation is integral to the
process, timing of this will be
notified
Next Steps
• To be advised (information is not
currently available)
Registration of Health & Social Care
What The Initiative Seeks To Do
• Central to the new registration system
is a specific regulation on ‘respecting
and involving service users’
• This includes the need for the
registered personnel provider as far as
reasonably practicable to make
suitable arrangements to ensure the
dignity, privacy and independence of
service users
The Story So Far
• Scope of regulation consulted by
Department of Health
• Guidance on compliance criteria for
registration drafted and currently
consulted on
• Feedback and involvement of public
and people who use services in
progress
• Proposals for working with LINks in
future planned
How We Know The Initiative Is A
Success
•Compliance with registration criteria
•Many examples of high quality
demonstrating users are treated with
dignity and respect and human rights
are protected
•Feedback from service user
Next Steps
•Completion of consultation process
•Registration of health care providers
April 2010
•Registration of social care providers
2019
Promoting Dignity In Dementia Care Training
Course – Anchor Trust
What The Initiative Seeks To Do
• Deliver training to staff from day
care, home care and small
residential care settings about
person centred care and promoting
dignity in dementia care
The Story So Far
• Researching
• Development of course
How We Know The Initiative Is
A Success
• This is a pilot (September
2009)
• It builds upon and compliments
the range of other 30+ courses
delivered within the portfolio
available from dementia
Next Steps
• Deliver training
Standards and Values
(Methodist homes –MHA Care Group)
What The Initiative Seeks To Do
• Evidence that we do what we say we
do
• Commitment to the people we support
and staff
• Support and share good practice
• Quality and service improvement
The Story So Far
• Set up around 4 years ago
• Developed with lots of people who had
something important to tell us
• A separate team spend 2 days in the home and
provide a report and keep supporting them
• Helps us do things better but also helps the
people who inspect us from outside see what we
do
How We Know The Initiative Is A
Success
•The staff find the reports really helpful
•Just had our first audit where we scored
good on everything (100%)
•Staff are proud and confident about
what they do
•The people we support talk to us about
their experiences – good and not so
good
Next Steps
•Review it each year
•Raise the pass mark each year
•Link with dementia champions
•Feel everyone should see dignity as
part of what they are about
•All staff should deliver the values of
the organisation
Behind Closed Doors - British Geriatrics
Society
What The Initiative Seeks To Do
• Share ‘best practice’ for ‘toileting’
with dignity with professionals and
individuals
The Story So Far
• Set of standards developed and
distributed to named hospital staff
for care of older people
How We Know The Initiative Is
A Success
• Through word of mouth, the
original print run of 5,000 leaflets
and has since been reprinted
FOUR times
• Difficult to assess and impact
Next Steps
• Share standards more widely
with the care home sector
• Expand the ‘standards’ to include
personal hygiene and bed control
(enabling people to eat sitting ‘out’
rather than ‘in’ bed
The Role Of Local Councillors Extending The
Scope For Dignity
What The Initiative Seeks To Do
• To champion dignity as elected
members
• To challenge how we deliver services
• Dignity central to commissioning
• Workforce/staff development
notebooks outside social services e.g.
leisure, libraries, parks, no-traditional
organisations
How We Know The Initiative Is A
Success
• Measuring the outcomes through
data collection (against targets)
engaging listening to service users)
• Ongoing process
• Positive results
The Story So Far
• Collecting data on service use/non-use
• Two senior councillors lead on wellbeing
(including dignity)
• Produced a dignity code published and
launched
• Carers champion in place
• Free swimming for U18’s and over 60’s (real
example of initiative being implemented
Next Steps
• Initiative needs to broaden across
local strategic partnerships e.g.
housing, community safety
• Needs to be raised to level of
safeguarding adults – just as important
• Broaden across other councils –
sharing best practice – driven by Local
Government Association
Amanda Waring Films & Training Packs On
Dignity www.amandawaring.com
What The Initiative Seeks To Do
The Story So Far
• Through the films what do you see
etc…and the interactive training pack on
dignity be able to support the emotional and
spiritual aspects of the dignity and person
centred care initiatives
• As a speaker at conferences Amanda aims
to engage and inspire others to get involved
and KEEP involved
•Amanda is the keynotes speaker at over
12 conferences this year and her films on
end of life care will be ready in
September 2009
•Her films and the What Do You See
training pack are being used by major
organisations, hospitals, care homes and
domiciliary organisations
How We Know The Initiative Is A
Success
• The films have sold in their thousands
around the world and the feedback is
constantly positive
• What do you see training pack is being
used in care homes and by dignity
champions
• Amanda is speaking regularly in End of
Life issues and the media ask her to
contribute to T.V, radio etc regularly too
Next Steps
• To continue promoting the films on
pack effective Dignity Training Aids
• To make a new film on
intergenerational healing and to
continue the campaigning around
dignity and end of life care
Life Story Network
What The Initiative Seeks To Do
• Share good practice around life story networks
• Creating clearer understanding of the value of like work
and networks on delivery of personalised care
• Develop sustainability for the work through research,
commissioning and everyday delivery of care
How We Know The Initiative Is A Success
• Positive feedback from patients/carers/service users –
also empowering for carers
• High degree of interest from key stakeholders
• South-west Yorkshire Mental Health Trust –
recognised for work and value of work in this area.
• Oldham adopted system and embedded practice
• Buy-in from Social Care in Excellence, Admiral
Nursing
• Positive impact for transition of care/across pathways
– more seamless transfer of personal information
makes it easier
The Story So Far
•Builds on experience of individual carer, supported by local
overview and Scrutiny Committee
•Held event in North on November 2008 – invitation out to share
good practice – overwhelming support – more than 100 attendees –
identified lots of exiting good practice
•Established small steering group convened (Chaired Ruth Eley) to
develop and support network
•Short report on outcome of event and examples of good practice
•Ongoing discussions with Department of Health regarding hosting
the network of the dignity webpage
•Seeking funding to appoint a part-time network coordinator
nationally
Next Steps
•Publish report
•Appoint coordinator
•Develop a webpage – possibly as part of
Department of Health website
•Prepare/plan for national launch event later in 2009
Putting People First Without Putting Carers
Second – The Princess Royal Trust for Carers
What The Initiative Seeks To Do
• Ensures that we take a WHOLE
FAMILY APPROACH
• Five PRACTICAL examples of
schemes that work (to ensure
personalisation for user doesn’t
adversely affect family)
The Story So Far
• Published document. Phil Hope
launched (February 2009)
• Disseminating (ongoing)
How We Know The Initiative Is
A Success
• Outcome-focused
• Evaluating now
• Starting to see relationship
between adult and children
services to give a whole family
approach
Next Steps
• Working with other organisations
• Evaluation – has a difference
been made?
Best Practice Bank Mentoring: Mentoring and
Befriending Foundation
What The Initiative Seeks To Do
•Providing an information hub for
best practice, all sectors
The Story So Far
•Collated a range of case studies
and other materials, such as
research studies, publications etc
that are available on-line
•Contributed to government
consultations
How We Know The Initiative Is
A Success
•Influenced national policy
•Increased number of visits to
the website
•Up take of national training
programme courses
Next Steps
• Developing best practice bank
across all sectors
• Developing additional training
courses in key areas
• Promoting approved provider
standards
Access With Respect – Multi-agency –
Safeguarding Vulnerable adults
What The Initiative Seeks To Do
• Facilitating IMMEDIATE access
for authorised personnel in to
people’s homes to deliver multiagency care
The Story So Far
• Using a ‘Key safe’ for authorised
entry by way of a code system
allowing multiple access for
multiple services
• Also linked to Telecare buttons
response
How We Know The Initiative Is
A Success
• 1.6 million homes now access
this service
Next Steps
• Looking at ways to promote
Dignity in Care via training
systems and packs for our service
providers
Health: Wellbeing In Care Homes Campaign
What The Initiative Seeks To Do
• Promote Health: Wellbeing and
Dignity by sharing good practice,
developing information materials
and involving relatives as partners
The Story So Far
• 3 conferences
• 2 newsletters
• 1 publication
• On-going networking and
promotional work
How We Know The Initiative Is
A Success
• Increased awareness amongst
staff, relatives and managers
and residents
•Reduction in complaints
•Increased attendance at
conferences
•Increased requests for
publications
Next Steps
• More conferences
• More publications: newsletters
• More activities to promote multidisciplinary involvement
• Embedding in core Policy
Anchor Trust Dignity In Care Champions
What The Initiative Seeks To Do
• All staff who have completed a day
developing Dementia care practice
course have the opportunity to be
registered as Dignity champions taking
forward the change in culture and
practice in the home in which they
work. Nominated to lead and influence
How We Know The Initiative Is
A Success
• Supporting meetings
• Evaluating
• Difference being made to
peoples lives: life history work,
working with friends and
families, creating enabling
environments
The Story So Far
• 449 champions registered to
date
• Regional networks of dignity
champions meet on a regular
basis to share practice information
Next Steps
• Continue to train, support and
make a difference
• Create wider networks to
continue to promote dignity in care
‘With Respect’ Dignity In Homecare Resource
Guide And Training Programme
What The Initiative Seeks To Do
• Provide homecare organisations
with an off-the-shelf training
programme to provide dignity
training in-house for their staff
• Provide a resource guide to give
information about dignity in care
How We Know The Initiative Is
A Success
The Story So Far
• Awaiting publication of materials
on CD which will be sent to all
home care organisations in
England
• A similar resource guide and
training programme has been
produced for residential care
Next Steps
Care with Dignity Steering Group Shrewsbury
and Telford NHS Trust
What The Initiative Seeks To Do
•Embed dignity in the culture of
Hospital Trust (2 Hospitals)
The Story So Far
• Steering groups
• 4 work streams
Governance
Development
Partnership
Scholarship & research
How We Know The Initiative Is
A Success
• Success
• Implementation
Next Steps
• Outcome measures
• Job Description
• Review/Appraisals
RCN Dignity Campaign
What The Initiative Seeks To Do
•Surveyed opinions of nursing
teams
•Raise awareness
•Utilising learning resources
•Influencing for positive change
•Share good practice. Through
networks
How We Know The Initiative Is A
Success
•Huge interest
•Positive stories and case studies
•Evaluation report due summer
2009
•Has put dignity onto agenda as a
priority
•Has created dignity champions
The Story So Far
•In the first year:
•Events and workshops locally/nationally
•Identifying issues, making changes, feeding
back
•Creating networks
•Inclusive of everyone
•Linked with equality diversity and human
rights
•Linking with other work/campaigns
Next Steps
•Embedding good practice into everything we
do
•Continue to raise awareness and challenge
poor attitudes and behaviours
•Champion good practices
•Work in partnership with other organisations
•Continue to drive up standards
Review of Standards and Guidance
Pre registered Care and Health Around End Of Life,
Dementia, Chronic
What The Initiative Seeks To Do
•Produced standards and guidance
to underpin practice to inform the
people in our care services, public
and professionals
How We Know The Initiative Is
A Success
The Story So Far
•Framework
•Review – stakeholder engagement
•Pre consultation – desk research
•Focus group across UK NMC pre-registered
•Consultations
•Dissemination
•Evaluation
Next Steps