Transcript Patients Rights & Advocacy Discrimination

Patients Rights & Advocacy
Discrimination
Elisabetta Iannelli
ECPC Secretary
Warsaw, November 27th 2005
Who may be involved?
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Cancer patients
Chronic cancer patients
Survivors
Relatives
Everyone (genetic tests)
All ages are involved
» Children
» Young people
» Adults
» Elder
Different ages….
different problems...
Current contexts of
discrimination
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Education
Employment
Insurance
Mortgages and loans
Adoption
Health care
Home rents
…what can we do to avoid
discrimination...
(In)formation!
» To raise awareness on anyone’s own
rights and avoid being discriminated
» To promote among the others a culture
of integration towards cancer patients
and their relatives
Education
» Ensure the right to study during
therapies (tutors, updating courses, in
hospital training)
» Promote school and university
re/integration after therapies
» Avoid student’s exclusion
Employment 1/2
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Ensure access to work (reserved quota)
Promote adequate work conditions
Paid sick leave when necessary
Ensure re-qualification after a leave
Employment 2/2
» Avoid mobbing (de-qualification, denial
of training and career opportunities)
» Allow switch to part-time and reverse
» Limit dismissal
Employment
(relatives)
» Avoid mobbing (de-qualification, denial
of training and career opportunities)
» Permit leave for assistance to relatives
Insurance
» Health insurance and life insurance
»prevent deny of coverage
»avoid premium rise
Mortgages and loans
» Promote access to financial facilities
» Lower interest rates
» Favour de-taxation
Adoption
» Avoid prejudice against cancer survivors
» Respect the dignity of persons
» Equality of chances and procedures
Health care
» Common quality standards of care all
over Europe (diagnostics, therapies, new
drugs, rehabilitation)
» Reduce the need of travelling for care
» In case of need, set forth travelling and
guesting facilities
» Care of the aged
Home rents
» Avoid prejudice
» Set forth tax reductions to increase the
market
» Prevent ejection
THANK YOU ALL!
ELISABETTA IANNELLI
Vice-president of AIMaC (Italian Association of
Cancer Patients, Relatives and Friends)
www.aimac.it
Secretary of FAVO (Italian Federation of the
Volunteers Associations in Oncology)
www.favo.it
Secretary of ECPC (European Cancer Patients’
Coalition) www.ecpc-online.org