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Facilitating access to ACP and AD evidence in palliative care Tieman JJ, Rawlings D Flinders University ACPEL May 2013 Outline • • • • Palliative care CareSearch Research evidence and practice Advance Care Planning/Advance Directives Palliative care • • • • • • • Cure is not the goal of care Physical, psychosocial, care planning elements Referral based, co-morbidity, multidisciplinary Patient and family as unit of care Care provided in many settings Many health professionals Often a family carer About CareSearch • Palliative care resource – Evidence based, quality processes – Online – Free to use, open access – Funded by DoHA • Audience – Health professional – Patients, carers, families The expanding evidence base • Evidence and guidance is growing. – 75 trials & 11 systematic reviews being published every day [Bastian et al, 2010] • How do individuals, services and systems know about, find, select what is important and ensure its use? – e.g. Family caregiver psychosocial and bereavement support guidelines; COMPAC Guidelines; EAPC Pain systematic reviews/guidelines CareSearch and ACP/AD? • Content theme running across the website • Specific resources contextualised for audiences and needs • Engagement and partnerships – Representation from core agencies (eg RCP, PCA) – Cross promotion and integration Clinical and Evidence Resources Filter-based Searching: Easy as ABC In Hubs Patient, carer, community resources 2012 Page views by resource • • • • • • Clinical Practice Pages: Patients and Families: RAC Hub: Nurses Hub: GP Hub: Finding Evidence DBs: 10,173 9,828 1,054 8,369 3,429 5,823 Other Activities • Research – CareSearch PhD student with AD focus in online environment – Working with project teams and research groups • Focus promotions – Nurse Hub Case Study (May 2013) • My Learning module (Late 2013) Conclusion • Facilitating access to the evidence by: – Consolidating and synthesising evidence – One-click searching in PubMed • Supporting knowledge transfer by: – Contextualising for audience • Encouraging use by: – Partnering with relevant agencies – Incorporating as part of different settings and activities – Promoting and disseminating CareSearch would like to thank the many people who contribute their time and expertise to the project including members of the National Advisory Group and the Knowledge Network Management Group. CareSearch is funded by the Australian Government Department of Health and Ageing. www.caresearch.com.au