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Performance Management: The Results Based Accountability Approach Ruth Jordan, Project Manager Cardiff CCM Demonstrator and Vicki Myson, Epilepsy Specialist Nurse, Cardiff and Vale UHB EPILEPSY SERVICE DEVELOPMENT DIRECTIVE REQUIREMENT: Each Health and Social Care partnership will establish a performance management mechanism to review the implementation of their plans WHAT IS RESULTS BASED ACCOUNTBILITY (RBA)? A disciplined way of thinking and taking action which can be used to improve the quality of life in communities and the performance of services (Mark Friedman) • Turns talk about outcomes quickly into actions which improve those outcomes • Embeds performance management into planning and delivery • Explains both collaborative and service accountability and how they fit back together THE RBA REPORT CARDS WHAT WE’VE ACHIEVED Service Description: The Welsh Epilepsy Unit is a tertiary referral centre for specialist epilepsy services in South Wales. The immediate catchment population covered is 700,000, but many referrals are also taken from elsewhere in Wales. The Unit offers a multidisciplinary approach to epilepsy care and offers a very broad range of services to people with epilepsy, their families and carers. DEFINED SERVICE USERS Patients with a first suspected seizure or unexplained blackout HEADLINE PERFORMANCE MEASURES DATA DEVELOPMENT AGENDA 1. % seen by a specialist within 2 weeks 2. % DNA first seizure clinic 3. % have diagnostic tests within 4 weeks 4. % follow the correct pathway 1. % on inappropriate treatment 2. % have clinic letters sent within one week of clinic 3. Why patients DNA first seizure clinic HOW ARE WE DOING? % Seen b y a Sp ecialist wit hin 2 W eeks % have d iag no st ic t est s wit hin 4 weeks % D N A F ir st Seiz ur e C linic 30% 25% 35% B as el i ne 15% B asel i ne 20% P r edi c t i on 15% Cur v e t o t ur n 10% P r edi ct i on Cur ve t o t ur n 2008 2009 2010 2011 2012 2009 2010 2011 WHAT WE DID Following introductory training on RBA the Epilepsy Steering Group have carried out RBA performance accountability exercises for: • People experiencing a first seizure/unexplained blackout. • Women with epilepsy who may become or who are pregnant. The performance measures identified have been baselined and performance against these measures is being monitored monthly. Resources Mark Friedman Trying Hard Is Not Good Enough (Trafford Publishing, 2005) www.raguide.org or www.resultsaccountability.com P r edi ct i on Cur ve t o t ur n 0% 2007 2012 40% 20% 0% 2008 STORY BEHIND THE BASELINES RBA provides a structure to firstly identify appropriate performance measures and then to select the most important of these measures to baseline and monitor. P r edi ct i on Cur ve t o t ur n 5% 2007 B asel i ne 60% 10% 0% 2007 • How much did we do? (quantity) • How well did we do it? (quality) • Is anyone better off as a result? (quantity and quality of effect or customer/client outcomes) B asel i ne 15% 5% 0% “All Performance Measures that have ever existed for any programme in the history of the universe involve answering two sets of interlocking questions….” 80% 25% 20% 10% % f o llo w co r r ect p at hway 100% 30% 25% 20% 5% USING RBA TO PERFORMANCE MANAGE RBA has not only supported the identification of appropriate performance measures; it has also provided a structure to develop service improvement action plans to improve performance against these measures. THE WELSH EPILEPSY UNIT 2008 2009 2010 2011 2012 2007 2008 2009 2010 2011 2012 PARTNERS WHO CAN HELP US DO BETTER Clinic capacity – 1 clinic per week with 5 patient slots Unpredictable demand Small MDT – unable to cover absence to prevent clinic cancellation Low frequency of clinics causes delay if appointment not suitable Clinic booked by Epilepsy Unit admin staff – if admin staff on leave clinic slots not filled Consultant triage’s fax referrals – delay if unavailable Patient anxiety Stigma attached to Epilepsy Patients put off by unit name – diagnosis seems pre-determined Concerns re implications e.g. diving Emergency Unit/MEAU, Radiology, Neurophysiology, Medical records, A&C staff, Consultants, Ambulance Trust, Cardiology, Psychology, Care of the Elderly, Neurosurgery, Prison, Voluntary Sector, CELT, Practice Nurses, Family members/ witnesses, Drug and Alcohol Services, Occupational Health, Referral Management Centre, Obstetrics. LESSONS LEARNT WHAT WE PROPOSE TO DO TO IMPROVE PERFORMANCE • • • • Develop nurse led Emergency Unit assessment service Develop nurse led first seizure clinics Enable specialist nurse referral for EEG Change the name of the Epilepsy unit THE WELSH EPILEPSY UNIT Service Description: The Welsh Epilepsy Unit is a tertiary referral centre for specialist epilepsy services in South Wales. The immediate catchment population covered is 700,000, but many referrals are also taken from elsewhere in Wales. The Unit offers a multidisciplinary approach to epilepsy care and offers a very broad range of services to people with epilepsy, their families and carers. DEFINED SERVICE USERS Women taking medication for Epilepsy between the ages of 14 – 45 who may become or who are pregnant HEADLINE PERFORMANCE MEASURES DATA DEVELOPMENT AGENDA 1. % prescribed optimum medication 2. % on polytherapy 3. % having major Epilepsy related convulsions during pregnancy 4. % have pre-conception counselling 1. % receive consistent and correct information 2. % professional feel confident to provide service independently 3. % follow the correct pathway 4. % feel fully informed HOW ARE WE DOING? % having majo r Ep ilep sy r elat ed co nvulsio ns % o n p o lyt her ap y % Pr escr ib ed O p t imum M ed icat io n % have pre-conception counselling 30% 100% B as el i ne 60% 40% 20% Baseline 20% P r edi c t i on 15% Cur v e t o t ur n 10% Predict ion Curve t o t urn 5% 0% 2008 2009 2010 2011 2012 80% 10% Baseline 8% 6% 4% 2% 2007 2008 2009 2010 2011 2012 STORY BEHIND THE BASELINES Some people can’t have their medication changed Access to specialist knowledge Social issues e.g. driving – have to stop if medication changed People anxious to change medication Pregnancy related problems can cause mal-absorption of drugs Increased tiredness increases the risk of seizures Conflict of decreasing medication or decreasing seizures Lack of knowledge and awareness for patients/schools/primary care/non-specialists/obstetrics Denial that problems may happen Time and people resource Not recognised practice Unplanned pregnancy Previous bad experiences Knowledge of services available Changed metabolism leading to lower medication levels Fear of medication side effects Increasing polytherapy may decrease side effects Worried to initiate change Baseline 60% Predict ion 40% Curve t o t urn 20% Predict ion Curve t o t urn 0% 0% 0% 2007 100% 12% 25% 80% These action plans are currently being implemented and include: • The development of a nurse led Emergency Unit assessment service for first seizure patients • The development of a protocol to enable nurse led EEG referral • Changing the name of the Epilepsy Unit • The implementation of education packages for partners • The development of patient information sheets/cards • Linking with the Epilepsy Pregnancy Register 2007 2008 2009 2010 2011 2012 2007 2008 2009 2010 2011 2012 PARTNERS WHO CAN HELP US DO BETTER Obstetrics, Midwifery (Consultant led and Midwife led), GP, Practice Nurses, Paediatricians, Paediatric Epilepsy Nurses, Epilepsy Specialist Nurses, Neurologists, Learning Disability Team, Parentcraft, School Nurses, Social Services, Pharmacy, Voluntary Sector, Epilepsy Pregnancy Register, Managed Clinical Network, Occupational Health, Obs & Gynae Management, Psychiatry, Genetic Counselling WHAT WE PROPOSE TO DO TO IMPROVE PERFORMANCE Implement the education package for partners Define the correct pathway “Three key messages” for professionals Patient information sheets/cards Link with Epilepsy Pregnancy Register – increase benefit to patients by providing info/ newsletter It’s not easy to get going Needs time and organisational commitment Training is vital Challenges the data we collect BUT • RBA provides a structure to identify appropriate performance measures and enables performance management • It provides a mechanism to think differently • Focuses on patient outcomes, not processes SO…. the hard work is worth it! “RBA is a really useful tool; it helps focus on outputs and places less emphasis on pure activity figures. Good as a vehicle for engaging all stakeholders and placing greater value on patient experience and perception” Service Manager “RBA takes us beyond audit and emphasises patient outcomes to give more meaningful data collection” Consultant Neurologist