Transcript Childhood Injury Prevention and Disability: A Multifaceted

Safety for Special Kids Project:
Injury Prevention for Children with
Special Health Care Needs
NASUH MALAS
MD/MPH CANDIDATE 2009
UNIVERSITY OF WISCONSIN-MADISON SCHOOL
OF MEDICINE AND PUBLIC HEALTH
JIM SAVAGE
DIRECTOR OF THE KOHL’S SAFETY CENTER
AMERICAN FAMILY CHILDREN’S HOSPITAL
UNIVERSITY OF WISCONSIN-MADISON
Acknowledgements
Thanks to:
American Family Children’s Hospital
Kohl’s Safety Center
Waisman Center
The MCH-LEND Program
SAFE Kids Coalition of Dane County
The Special Needs Advisory Council
The Kohl’s Safety Center Partners
Outline
 Introduction
 Goals and Objectives
 Partnerships
 Resources and Outreach
 Sustainability
 Expected Results
 Discussion
 Conclusion
 References
Injury Prevention and Advocacy
“Life affords no greater responsibility, no
greater privilege, than the raising of the next
generation.”
- C. Everett Koop
Introduction
Unintentional Injury

Leading cause of mortality for children ≤15 years of age1

35 child deaths each day2

30 million emergency room visits each year1

400 billion dollars yearly in expense and lost productivity1
1. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury
Control and Prevention. “State Injury Indicators Report: 3rd Edition”. July 2004
2. Brixey, S. et al. “Injuries can be prevented.” WMJ. Feb 2005. Vol 104. Issue 2. 19-20
Introduction
 Wisconsin

70% of all injuries in Wisconsin are due to unintentional injuries1,2

31,623 hospitalizations, of which 2,288 were for children1

Over 3,000 injury-related deaths and approximately 1 of every 6 deaths
occurs in children2, 3


Costs 619 million dollars yearly2
Motor vehicle injuries account for the majority of Wisconsin injuries, at
40%, followed by falls and poisonings4
1. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Control and
Prevention. “State Injury Indicators Report: 3rd Edition”. July 2004
2. Wisconsin Department of Health and Family Services. “Wisconsin Injury Prevention Program”.
http://www.dhfs.state.wi.us/Health/InjuryPrevention/ Accessed: June 3, 2008
3. Peterson, N. “Community-Based Injury Prevention Programs: Toward a Safer Wisconsin”. WMJ. Dec 2000. Vol 99. No 9. 22-26
4. Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Control and
Prevention. “State Injury Profile for Wisconsin”. 1989-1998.
Introduction
Unintentional Injury and Children with Special Needs
 Definition:
 “…children who have or are at increased risk for a chronic physical,
developmental, behavioral, or emotional condition and who also
require health and related services of a type or amount beyond that
required for children generally.”1
 13-18% of the general child population
 Higher risk for injuries 2,3,4
 Lack of preventative service and programming
1. Perrin, J. et al. “A family-centered, community-based system of services for child and youth with special health care needs”.
Arch of Pediatric Adolescent Med. Oct 2007. Vol 161. No 10. 933-936
2. Spira-Gaebler, D. et al. “Injury Prevention for children with disabilities”. Physical Medicine and Rehabilitation Clinics of
North America. 2002. Vol 13. 891-906
3. Maternal and Child Health Bureau of Health Resources and Services Administration.Injury Prevention Information for
Children with Special Health Care Needs”. http://mchb.hrsa.gov/child/specialcareneeds.htm Accessed: June 12, 2008
4. Sherrard, J. et al. “Injury risk in young people with intellectual disability”. Jan 2002. Vol 46. No 1. 6-16
Introduction
Kohl’s Safety Center

Opened October 2007

14’x 14’ facility providing childhood
injury prevention resources

Serves Wisconsin, northern Illinois
and northeastern Iowa

Supported by Kohl’s Department
Stores’ “Kohl’s Cares for Kids
Program”
Introduction
Safety for Special Kids Project
 Comprehensive initiative to incorporate safety resources for
children with special needs and their families
 Multidisciplinary Council guides project:

Selection of Safety Products


Pursuit of Funding Resources


Preliminary stock of special needs friendly products
Submission of CVS/Caremark Foundation Grant
Development of Educational Materials

Child Injury Prevention Parent Handbook
Goals
Goals:
1. Enhance caregiver's understanding of the value of injury prevention
2.
Increase awareness among families of special needs resources
3.
Improve comfort in use of special needs injury prevention products
4.
Reduce burden of cost incurred when ensuring injury prevention
5.
Improve referral rates by providers to the Safety Center for special
needs products
6.
Increase physician education in counseling families about the
importance of injury prevention in the special needs population
Objectives
Objectives (By Jan 1, 2010):
1. Serve the safety needs of 4,000 families served by the Waisman
Center and American Family Children's Hospital.
2.
Offer on-site safe home evacuation assessments and general home
safety assessments at least twice a month.
3.
Provide education to families during visits to the Safety Center Store
and the Waisman Center
4.
Distribute all 1,060 of the special needs safety products to families
5.
Phone consultation to families seeking information on special needs
Partnerships
 Broad pool of partners

Waisman Center

American Family Children’s Hospital
 Special Needs Advisory Council

Key stakeholders

Guide selection of resources

Promotion through community and
health-based networks

Suggest innovative funding channels

Evaluation tools
Resources and Outreach
 Safety resource
recommendations:

Product Inventory

Broad, community-based
promotional campaign

Waisman Center Collaboration

Improved website capabilities

“Childhood Injury Prevention
Handbook for Parents”
Sustainability
 Continuing financial commitment
from hospital administration
 CVS/Caremark Charitable Trust
Grant
 Other funding sources: Children’s
Hospital, Safe Kids, Kohl’s
 Challenge: maintain pool of funds
to purchase special needs products
and provide them to families at
little to no cost
Expected Results
Proposed Partnerships
 Start locally, then move throughout the county and state

Strongest partnership forged with the Waisman Center

Additional partners:

Madison Fire Department

American Family Children’s Hospital

Madison Area Down Syndrome Society

University of Wisconsin School of Medicine and Public Health
Expected Results
Future support:

Local law enforcement

Birth to 3 programs

Local public health offices

UW Poison Prevention and Education center

Wisconsin Department of Transportation

Wisconsin Department of Agriculture

Trade and Consumer Protection

AAA Wisconsin

Safe Community Coalition of Madison and Dane County
Expected Results
Evaluation Tools
 Simple needs assessment


Convenience sample of families of children with special needs

Offered at clinical visits or other visits to Waisman Center

Address epidemiology, safety concerns, and barriers to care
Evaluation will be both qualitative and quantitative


Qualitative Data

Survey at least 1% of our target population, or 40 families

Survey providers at Waisman Center and Children’s Hospital
Quantitative Data

Tally visits or calls requesting special needs safety resources

Tabulate number of families that obtain safety products
Discussion
 Basic foundation to ensure long term success
 Driving force: large need, dedicated faculty, staff and
family advocates
 Cornerstone of project: Special Needs Advisory Council
 Unique products and services provide a niche market for
the Safety Center

Should lead to further financial support and
community advocacy for the project
Discussion
 Limitations:
Financial sustainability
 Staff and Space
 Addressing the issue of self injurious behavior and child abuse
 Realize burden of unintentional injury in special needs population
 Need further study
 Kohl’s Safety Center: Safety for Special Kids
 Concise goals and objectives, with quantitative and qualitative
evaluative tools, provide requisite measures to gauge progress
 After one year, able to determine if efforts will bear fruit

Conclusion
 Novel Approach to Injury Prevention
 Address concerns of families with
children with special health needs
 Currently: Initiation and Preparation

Created Special Needs Advisory
Council

Final phases of creating the Injury
Prevention Handbook for Parents

Pursuing funding opportunities
 Future directions
Questions?