Transcript Intellectual Disability: Definition, Classification

SW 644: Issues in Developmental Disabilities
The Wisconsin Children’s Long-Term Support Service
System: Where We’ve Been, Where We Are, and Where
We’re Going
Lecture Presenters: Beth Wroblewski, DHS DTLC Deputy
Administrator & Sally Mather, MSSW
Department of Health Services, Bureau of Long-Term Support
Children’s Section
Children’s Long-Term Supports
 Where we’ve been
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System focused on adults
Institutional settings
Colonies
Centers
Role of Parents
Educational Services
 Right to an education for children
with disabilities
 Segregated, self-contained
classrooms
 Legislative Changes
 Free and Appropriate Education
Evolution of WI Children’s LongTerm Support (CLTS) Programs
 Family Support Program
 Provides goods and services to keep
children in their homes
 Grant funded – Board for People with
Developmental Disabilities
 County expansion
Statewide
Evolution of WI CLTS Programs
 Katie Beckett Program
 Parent initiative
 Tax Equity and Fairness Reform Act
 Access to Medicaid Wisconsin Forward
card
 Voluntary
 Benefits
 Children and families
 Taxpayer
Evolution of WI CLTS Programs
 Katie Beckett Program
 Partnership
 Public – Private
 System – Family
 Programmatic structure based on
partnership
 Value parents as the experts
Families’ Experience
 Historically
 Disability as a medical condition
 Disconnection of families
 Messaging still occurs
 Evolution of CLTS system
Normalization & Social Justice
 Wolf Wolfensberger
 Community inclusion as a civic issue
 Values-based training
Evolution of CLTS continued…
 Shift in systematic foundational
values
 “light touch” v. comprehensive plans
 Home and Community Based Service
(HCBS) waivers
 Issue for families: some supports
available only in out-of-home
placements
 Redesign of adult support system
Issues Surrounding Access
 Fragmentation
 Coordination
 Issues when families are involved
with multiple systems
Choice in services
 Menu: Fitting child to the available
programs and service options v. child
and family-centered planning
 Outcome-based language
Quality
 Who determines quality?
 Are needs being met?
 Are family-based outcomes being
achieved?
Funding
 Evolution of system + State and
Federal regulations = Silos of funding
 Compass Wisconsin
 Blending sources of funding
 More seamless for families
Concepts of Compass Wisconsin
 Children and families as the North
Star
 Partnering with families in navigation
 Example re utilization of Family Support
Program
 Trust
 Access – Compass Wisconsin
Threshold
Concepts of Compass Wisconsin
(continued…)
 Waiting list reduction
 Relational v. “Transactional”
Wisconsin compared to other
States
 Best-practice & value-based
 Commitment to children and their
families
 Waiting lists
 Paternalistic language/values and
practice reflected
 Learning opportunities
Conclusion
 Continued Professional Development
 Systematic Challenges
 Caseload
 Training
 Learning conversation opportunities
 Shift of shared responsibility to
entitlement
See Transcript for Biographical Information