Transcript International convention on the Rights of Persons with

The Right to Decide
Inclusion International’s Global Campaign
on Decision Making
www.inclusion-international.org
II Global Campaigns
2006
Poverty and
People with
Intellectual
Disabilities
2009
Inclusive
Education:
Better Education
for All
2012
The Right to Live
and Be Included in
the Community
Poverty and disability
Global Knowledge
d
d
Local Voices
The MDG 2015 were
used as the frame of
analysis for our
Report
d
f
d
II said the MDGs
could not be
achieved if the
voices of people
with intellectual
disability and their
families were not
included
Inclusive Education
d
Global knowledge
d
Local Voices
Declaration of Salamanca
15 years after
Salamanca we still
have a long way to
go
Education for All, The
Dakar Goals
CRPD Article 24
d
f
d
Living and be included in the Community
d
Global knowledge
Article 19
of the Convention
On he Rights of
Persons with
Disabilities (CRPD)
d
Local voices
d
d
f
d
Living and
being in the
community is
about
Choice,
Support and
Inclusion
Inclusive Communities = Stronger Communities
•
•
•
•
The majority of people with intellectual disabilities live at home and do not have
choice in where they live.
The major source of support is families
Individuals and their families do not get the support they need and for the most
part, community systems continue to exclude people with disabilities.
Transforming communities to be inclusive and ensuring that people with
disabilities are included in mainstream programmes are essential for securing the
rights of people with intellectual disabilities.
To do this, we need to:
• Transition from segregated models (i.e. employment, housing, education) to
community based models
• Build and support self-advocacy groups.
• Develop family resource and training programmes and assist families to build and
sustain natural supports in the community.
• Secure budget allocation for disability supports and inclusion in mainstream
budgets.
Common Elements
Raised the collective Voice of
people with intellectual
disabilities and their families
Identified exclusion, isolation
and discrimination
Identified strategies to
promote inclusion
The Right to Decide
• Our members tell us:
– people with intellectual disabilities aren’t supported to
develop decision making skills as they grow;
– that families lack the skills and tools to understand how to
support their sons and daughters to express themselves
and that guardianship is a way to “protect” them;
– that communities lack the mechanisms (legal and
otherwise) to recognize supported decision making.
• Article 12 tells us...
CRPD Article 12
Equal Recognition before the Law
1. States Parties reaffirm that persons with disabilities have the right to recognition everywhere
as persons before the law.
2. States Parties shall recognize that persons with disabilities enjoy legal capacity on an equal
basis with others in all aspects of life.
3. States Parties shall take appropriate measures to provide access by persons with disabilities
to the support they may require in exercising their legal capacity.
4. States Parties shall ensure that all measures that relate to the exercise of legal capacity
provide for appropriate and effective safeguards to prevent abuse in accordance with
international human rights law. Such safeguards shall ensure that measures relating to the
exercise of legal capacity respect the rights, will and preferences of the person, are free of
conflict of interest and undue influence, are proportional and tailored to the person's
circumstances, apply for the shortest time possible and are subject to regular review by a
competent, independent and impartial authority or judicial body. The safeguards shall be
proportional to the degree to which such measures affect the person's rights and interests.
5. Subject to the provisions of this article, States Parties shall take all appropriate and effective
measures to ensure the equal right of persons with disabilities to own or inherit property, to
control their own financial affairs and to have equal access to bank loans, mortgages and
other forms of financial credit, and shall ensure that persons with disabilities are not
arbitrarily deprived of their property.
Objectives Global Campaign
• Raising awareness about the impact of the
denial of the right to make decisions
• Identify models of support for families and
individuals that enable people to control their
own lives
• Explore models of Supported Decision Making
• Provide tools to families and individuals and
their organizations
Campaign will explore how to:
• Support people to make choices in their
everyday life about where and with whom
they live
• Provide support to families in planning
• Promote person centered planning
• Secure access to supported decision making.
Methodology
• Building on previous Global Campaigns
knowledge and findings
• Building shared Knowledge on Art. 12
– Building the knowledge in II´s members
• Understanding and sharing global
knowledge
– Discussion groups with Families (Discussion
Guide & Background Paper)
– Discussion groups with Self-Advocates
(Discussion Guide & Background Paper)
• Case Studies of SDM Models
• Mapping global initiatives on Article 12
What can you do?
• Share your stories and examples
• Host a discussion group with families in your
community
• Host a discussion group with self-advocates in
your community
• Speak up in our consultations
What Next?
• II will develop and launch a global report on decision-making.
• Be part of the campaign and join us at our World Congress in
Kenya to be part of the launch.
For More Information:
www.inclusion-international.org