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ADDICTION RECOVERY Where are we going? How do we get there? Lessons from the recovery experience for service development Alexandre B. Laudet, Ph.D Institute for Research, Education, and Training in Addictions Tampa, FL ● August 2-4, 2010 ACT ONE WHY ARE WE HERE TODAY? Why are we here today? For many, substance use disorders are chronic (on par with diabetes, asthma etc…) Addiction can not be cured but it can be arrested or managed For some, it may require ongoing care of various intensities over time (e.g., intensive services, stepped down or after care, recovery checkups, 12-step) HOW ARE WE TREATING ADDICTION? Acute model of care (assess, treat, discharge) Focused on symptoms, not on promoting wellness Short-term episodes of intensive care are ill-suited to manage a chronic condition: High attrition rate - e.g., 60% attrition from outpatient nationwide Few achieve abstinence during treatment High relapse rates after treatment –50– 60% within 6 months following treatment Costly cycling through multiple episodes of care – e.g. in one study in NYC, 80% outpatient client report 1 or + previous episode, 50% >3 People don’t get better, some die, families and communities suffer A wind of change… Recovery is more than abstinence from alcohol and drugs; it is about building a full and productive life in the community. Our treatment systems must reflect and help people achieve this broader understanding of recovery. (Dr. W. Clark, 2007) Recovery Oriented System of Care (ROSC) Elements of Recovery-Oriented Systems of Care A ROSC is a coordinated network of community-based services and supports that is person-centered and builds on the strengths and resilience of individuals, families, and communities to achieve abstinence and improved health, wellness, and quality of life for those with or at risk of alcohol and drug problems. Person-centered Family and other ally involvement Individualized and comprehensive services Systems anchored in the community Continuity of care Partnerships Strength-based Culturally responsive Responsive to personal belief systems Commitment to peer services Include recovering people and families Integrated services System-wide educational and training Ongoing monitoring and outreach Outcomes-driven Evidence-based Adequately and flexibly funded From W. Clark, CSAT, Generic ROSC talk Paradigmatic shifts needed to implement ROSC From intense episodes of acute specialty care to multi-systems, person-centered continuum of care From addressing pathology to promoting global health, wellness, and recovery Recovery Oriented System of Care THIS SOUNDS VERY GOOD THIS MEANS BIG CHANGES (more PAPERWORK???) HOW DO WE GET THERE? NEED TO KNOW 1. What recovery means 2. What helps/hinders the process 3. How this can be translated into services and policy At the patient level At the program level At the system level How much do we know about recovery? Research has mirrored the service delivery paradigm Focused on primary symptom as outcome Focused on treatment populations Short term studies mostly As a result, we lack information on: What ‘recovery’ means: abstinence + WHAT? Long-term recovery paths, patterns and their predictors Especially among persons who are not enrolled in treatment How can we promote/support an outcome we have not examined and poorly understand? We need a science of recovery to inform Recovery Oriented Systems of Care What will the science of recovery do? Support the development, monitoring and evaluation of ROSC at all 3 levels by answering: 1. Destination: Where are we going? Specifically what are we trying to promote (what is recovery? long-term recovery)? 2. Roadmap: How do we get there? What to put in our recovery-oriented services toolbox to best serve clients as their needs change? 3. Are we there yet? How can we measure recovery outcomes? (for service monitoring and quality improvement, accountability) Summary of key datasets used in today’s presentation NIDA funded studies conducted in NYC 2002 - 2009 Pathways: The community-based sample Study funded to elucidate patterns and psychosocial predictors of stable abstinence from drugs and alcohol use Media recruited sample (N = 354) re-interviewed yearly 3 times: one-, twoand three year follow-up (83% retention of surviving BL cohort of 342) Self-reported abstinence at baseline from one month to 10+ years Primarily members of inner-city ethnic, underserved minorities Long & severe history of (primarily) crack and/or heroin use Almost all are polysubstance users 30% HepC+ and 22% HIV+ Almost all have used formal addiction treatment services and 12-step fellowships Pathways participants were classified by baseline abstinence duration according to clinically meaningful stages Three+ yrs 27% 18 to 36 mo. 20% < 6 mos. Drug abstinent 27% 6 to 18 mos. 26% Twelve-step as aftercare: The outpatient treatment sample Study funded to identify predictors, patterns and outcomes of 12 step participation after outpatient Recruited consecutive admissions at two publicly funded outpatient programs 250 clients re-interviewed at treatment end (90% re-contact) who constitute the prospective study cohort Follow-up interviews 3-, 6- and 12-months post treatment end Full dataset on 219 participants ( 87.6% retention) one year post discharge Primarily members of inner-city ethnic, underserved minorities Long & severe history of (primarily) crack and/or heroin use Average of 5.8 previous treatment episodes ACT TWO WHERE DO WE NEED TO GO? Recovery Substance users try to quit because they want a better life To what extent was [item] a factor in your decision to stop using drugs this time? “Not at all, a little, moderately, very much, extremely” (N = 354) Didn't like where life was going/feared consequences 94% Desire for a better life 93 Tired of the drug life 92 Didn't like what I was becoming 90 Weighing pros & cons of continued use 86 Negative effects of drug use on others Laudet & White, 2004a 83 50 75 100 Does quitting use ‘lead’ to a better life??? Benefits of recovery: Open-endeda What, if anything, is/would be good about being in recovery? RECOVERY = A BETTER LIFE 33% ch ance New life/2nd Clear head ment Self-improve tion/goals Having direc e Better attitud conditions Better living lth l/mental hea a ic s y h p r e tt Be life Better family ds Having frien 23 23 18 17 16 16 13 11 0 a 5 Add to > 100% because up to 3 answers were coded 10 15 20 25 30 35 Stress and Quality of Life Satisfaction as a Function of abstinence duration (N = 354) Mean (scale range = 0 to 10) 8.5 8.0 7.5 7.0 6.5 6.0 Overall life 5.5 satisfaction 5.0 Stress rating pst yr >6 months 18 to 36 mos Six to 18 mos RECOVERY STAGE Laudet, Morgen & White, Alc. Tx Q. 2006 3+ years Recovery definitions Recovery definitions Recovery from alcohol and drug problems is a process of change through which an individual achieves abstinence, improved health, wellness, and quality of life. (CSAT, 2005 National Recovery Summit) Recovery from substance dependence is a voluntarily maintained lifestyle characterized by sobriety, personal health, and citizenship. (Betty Ford Institute, 2007) Let’s ask the REAL experts… People in recovery! Let’s ask the REAL experts…people in recovery! Recovery definition: Open-endeda How would you define "recovery from drug and alcohol use"? RECOVERY GOES BEYOND SUBSTANCE USE 44% Better life/new life 41% Total abstinence 21% Lifelong process 17% Dealing w/issues 0 a 10 20 30 Add to > 100% because up to 3 answers were coded; Laudet, JSAT, 2007 40 50 My definition of recovery is life… ‘Cause I didn’t have no life before I got into recovery Pathways study participant H.W. 42 years old Af-Am male Laudet, JSAT, 2007 Recovery is a process, not an endpoint “Recovery is a continuous process that never ends” 96.8% Agree/Strongly agree 3.2% Disagree/Strongly disagree 0 Laudet, JSAT, 2007 20 40 60 80 100 Relevance to ROSC Recovery is a reality Recovery is a Process of Change and Growth Recovery is Sobriety + improved quality of life Destination Recovery: Few Direct flights FOR TOO MANY PEOPLE, ADDICTION IS A CHRONIC RELAPSING CONDITION… That’s where ROSC comes in… Addiction career Number of abstinent periods one month or longer followed by return to drug use prior to current abstinence* 50% reported 4 or more abstinent periods followed by return to active addiction One 17% 20 & over 10% Ten to 19 17% Two 22% Six to nine 7% Three 11% Four to five 16% *Outside of controlled environment, among those who report one or more such periods: 71% N=248 Laudet & White 2004b Relevance to ROSC Continuity of services and supports ACT THREE What’s wrong with the current model? NYC Outpatient treatment outcome Completed 40% Left before completion 60% Completion rate on par w/ national average of 36% for outpatient modalities Laudet, Stanick, & Sands, JSAT 2009 % Returned to substance use in the post-treatment year as a function of discharge status Drop-outs were 2.8 times more likely to return to drug use in the year after services ended than were treatment completers (95%CI =1.86-4.23, p>.001) 100 90 80 92.6% 70 60 50 57.8% 40 30 20 10 0 Completed Left before completion Chi. Sq. 35.5, p = .0000 Stanick, Laudet & Sands, 2008 Treatment Career: Number of prior episodes Over half of outpatient clients have had 3 or more previous episodes Ten + 14% None 21% Five to nine 21% One 15% Three-four 17% Laudet, Stanick & Sands, Eval Review, 2007 Two 12% One third seek treatment again in the 12 months after leaving the index episode No additional treatment 69% Laudet and Stanick, CPDD 2010 Additional treatment 31% Reasons for leaving treatment: Qualitative analyses What is the most important reason why you dropped out of the program?* Dislike program/staff/clients 31.6% Tx interferes w/other activity (e.g., job) 18.8 Using 12 Convenience (e.g., transport) 12 Family/personal issues 12 Do not want help 12 9.4 Finances 8.5 Not helpful 0 5 10 15 20 25 30 * Add to > 100% because up to 2 answers were coded; Laudet, Stanick, & Sands, JSAT 2009, 37:182-190 35 Minimizing attrition [1] Is there anything the program could have done differently so that you would have continued attending? No 67% Yes 33% Laudet, Stanick, & Sands, JSAT 2009 Minimizing attrition [2] What could have been done differently so that you would have continued attending (among ‘yes’) Greater flexibility in scheduling 23% Better individualized services 23% Laudet, Stanick, & Sands, JSAT 2009 Practical assistance 11% Help with other areas of functioning 18% Better, more caring staff 25% Substance use is but a symptom, Promoting abstinence is not enough Expectation of help Overall, how much do you think your coming to this treatment program will help you address your needs and priorities? Not at all 1% A little 4% Quite a bit 24% Very much 71% Remember this? 33% of drop outs may have stayed longer if they had help in other life areas … Missed opportunities? What could have been done differently so that you would have continued attending (among ‘yes’) Greater flexibility in scheduling 23% Better/more caring staff 25% Laudet, Stanick, & Sands, JSAT 2009 Practical assistance 11% Help with other areas of functioning 18% Better individualized services 23% Quality of life satisfaction sustains abstinence… Quality of life satisfaction predicts sustained abstinence: Community based sample DIET Stop drugs Jeans fit better HAPPIER Want that feeling Want to stay happy Pass on Donut SAY NO TO DRUGS Controlling for other relevant variables, baseline QOL satisfaction predicts sustained abstinence one and two years later. Association partially mediated by motivation for abstinence Laudet, Becker & White, 2009, 44 “What worked for me is just the thought that I don’t wanna go through that madness no more. … See, ‘cause if I was to use again, I probably would lose everything”. Pathways participant Behavioral economics: Demand law But what makes them happy??? Priorities @ outpatient admission What are the priorities in your life right now? (N = 314) Get/Stay clean Get a job Educ/Voc/Training Abstinence is top goal but not only goal!!! Get kids back Housing Relation w.family Get life together Complete tx 0 10 20 30 40 50 Life priorities in recovery by abstinence duration “What are the priorities your life right now?” (N = 354) Recovery Employment Relationships < 6 mos. Educ/training 6 - 18 mos. 18 - 36 mos. Normal life > 3 years Family reunification Housing 0 Laudet & White, JSAT 2009 10 20 30 40 50 60 Relevance to ROSC Individualized and comprehensive services/supports Multi-system Integrated services ACT FOUR With a little help from my friends… Sources of support in long-term recovery Pathways pilot (N = 52 CCAR members, median abstinence duration 12 yrs) aith f / y t i itual r i p S ily Fam ers e p ring e v o Rec use o p S gth n e r r st e n n /i Self nds e i r F ns a i c i Clin 53% 53 43 18 17 11 7 0 10 20 Laudet, Savage & Mahmood, J. Psychoactive Drugs, 2002 30 40 50 60 Lessons learned from Relapse a Top answers (<10%) What if anything have you learned from the relapse experience? 21.8% it... r o i r tp ake i m / y r co ve e r t b ad an = w s t g s Mu /dru d o o n =g Clea s gger i r t from d i o ut/av o b a n port p Lear u s /o ut w r e eco v r t o fe... Ca nn s s e /expr s e u s iss s e r add a lly i o c t o d s Ne e u se t ' n a ict/c d d a n I'm a a 18.7 18.3 15.1 11.5 10.3 Among those who report one or more such periods: N=253; Laudet & White, 2004b Strategies to deal with relapse triggers: Most cited = Seek support, stay focused on recovery Distraction 6% Seek help/support, Talk about pb 44% Stay focused 42% C Among those who report a challenge; Laudet & White 2004b Meditate/pray 8% Example of source of support and motivation: Twelve-step fellowships Role of continuous 12-step attendance on odds of abstinence sustained for two years: Pathways study 8 8 6.25 5.7 4.5 4.5 4 0 Total sample Laudet & White 2006 Under 6 Six to 18 18 to 36 months months months Three years + Relevance to ROSC Draw on Support from peers, family members, significant others, friends, and the community ACT FIVE So what??? Translating Research into Recovery Oriented Systems Recovery Oriented System of Care makes Sense… Based on the experience of people in treatment and in recovery, the core elements of ROSC ‘make sense’ The transition to ROSC will Take time Take full commitment from the ‘system’ including payors Take place gradually Experience and success of ‘leader states/cities’ (e.g., CT, Philly, ) will be invaluable In the meantime, strive to ADOPT AS MANY ELEMENTS OF ROSC AS BUDGET ALLOWS Recovery Oriented System of Care makes Cents… Mathematical simulation of the costs of methadone treatment over the lifetime for an opiate dependent individual under the chronic vs. acute model of care: ‘We find that the benefit-cost ratio of treatment from our lifetime model (37.72) exceeds the benefit-cost ratio from a static model (4.86)’ (Zarkin et al., 2005, p. 1133). NOT CONVINCED YET??? The Connecticut experience* (statewide ROSC) 24% decrease in expenses 46% increase in number of people served statewide 62% decrease of acute care 40% increase in outpatient care 25% decrease in annual cost per client 14% lower cost with recovery support * 2008 statewide data from Kirk, in press in Kelly and White 60 Let’s get to work! Questions? Comments? How can we help? http://www.attcnetwork.org/regcenters/index_northeast.asp www.ireta.org Email: [email protected]