Transcript Patient and Family Advisory Groups

Development of a partnership model
for FAMILY-centred care
Why?
True family-centred care requires that:
 People are treated with respect and dignity
 The healthcare provider has the desire to communicate and
share complete and unbiased information with patients
and families in ways that are affirming and useful
 Patients and families are encouraged and supported in
participating in care and decision-making at the level of
their choosing
 Collaboration amongst patients and families and their care
providers occurs in programme and policy development
 That in working with patients and families, care teams are
not simply doing things TO and FOR them
What did we do?
 Two groups – Starship and Canterbury
 One with parents one with patients
 Development of a way of working/ setting ground
rules
 Terms of reference
 Identification of key issues to work on first
 Tangible projects
 Involving others
Starship
The PFAG exists to:
 Explore the Starship patient experience/ journey and discuss how we
feel about it in an honest, open and non-threatening environment
 Develop a group of expert advisors, both staff and parents who
represent patients
 Identify challenges and solutions to those challenges to effect change
and encourage quality improvement in an environment of true
partnership
The PFAG will use its time to:
 Offer real, workable solutions to the people who have the power to
make change within the broader Starship Team
 Use facts and figures that are already available and make presentations
regarding savings that can be achieved to free up funding for other
areas
 Work with the Starship Services Manager as a link with the group to
achieve outcomes
 We will work with these ground rules in place to
ensure our time together is productive:
 There are no ‘sacred cows’ we come together to honestly
analyse and discuss what is good and what needs to change
 We will keep our discussions to the issues and challenges
and will not make or take comments personally
 We will let everyone in the group have an equal say. Quiet
participants will be encouraged to speak
Canterbury
 Scope:
The CCF Adult Patient Advisory Group is an
advisory group dealing with issues related to both patient and
non-patient issues within the CF Adult Service in consultation
with relevant staff and external agencies.
 Purpose:
The aim of the CCF Adult Advisory Group is to act
as an advisory resource to the Canterbury CF Adult Service. Our
objectives are to collaboratively work with the CF team to
actively participate in the development of new programs, review
recommendations and provide input with the ultimate goal of
shaping a service that is patient centred, efficient and cost
effective. This partnership will assist in identifying and
addressing areas of concern and result in more effective planning
to ensure that services really meet the needs of CF patients.
Responsibilities:
 To provide feedback and input from a patient
perspective on issues identified within the group or
externally referred to the group.
 To raise issues and recommendations, from a patient
perspective, which it would like the Canterbury CF
Adult Service or Hospital Senior Management to
consider.
 To maintain a strong and positive partnership between
staff and patients, with an emphasis on planning and
improvement in patient care and service
Tangible Outcomes
 Welcome to Starship brochure
 CF patient website on CDHB web
 Patient newsletter for all CF adults from CDHB
 Engagement with Service Management team at
Starship
 Patient survey results on food quality currently being
considered
 Two further CF branches starting groups of their own
 CF CEO presenting to Disability Sector CEO group
later in the year, on the development of the groups