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New Tools New Visions W.K. Kellogg Foundation Grant Community Partners HBCU Partners Health Disparities, Ethics, and Participation: New Tools/New Visions A Program to eliminate health disparities using Community-Based Participatory Research Initiated: August 2005 Funding: W.K. Kellogg Foundation Amount: $4 million over 5 years The Vision Unite together African American communities with Historically Black Colleges and University faculty and students to create solutions for reducing the economic, racist, cultural and health care problems that cause health disparities. NTNV Concept of Community The Approach 1. 2. 3. 4. Use Community-Based Participatory Research (CBPR) Connect Research to Action Create new leaders in health Network with communities and institutions to change local, state and national policy. Why Community-Based Participatory Research (CBPR)? Respect for Community Competencies Willingness to share Power/decisionmaking, and Accept all perspectives… We create powerful investigations, more effective programs, and enhance the trust within our communities. NTNV Seeks to Create A process for developing current and future leaders from the African American community committed to, and capable of, closing the health divide. Ongoing community collaborative research projects in health and health practices that reflect the unique cultural and historical life of the community. A sustainable network of HBCUs/practitioner organizations/community organizations that will take an activist approach to eliminating health disparities. A communications network with local communities and HBCU institutions in other southeastern states. Background Traditional Measure of Health Disparity Mortality Rate Ratio (RR): Mortality rate of African American Population / Mortality Rate of Anglo Population Note: If the RR = 1, then there is not disparity. If RR is greater than 1, then mortality in African Americans is higher. Age Adjusted Death Rate Ratios for African Americans 1950 1960 1970 1980 1990 2000 2002 Heart Ds 1.0 1.0 1.1 1.1 1.2 1.3 1.3 Stroke 1.3 1.4 1.4 1.4 1.5 1.4 1.4 Cancer 0.9 1.0 1.1 1.3 1.3 2.6 Diabetes 1.0 1.2 1.2 2.0 2.2 2.2 2.1 HIV --- --- --- --- 3.2 8.3 8.6 Homicide 10.9 9.6 9.4 5.8 6.6 5.7 5.6 The Persistence of the Problem Why have we not solved the problems of Health Disparities? Will doing the same things over and over again achieve a different outcome? AIDS by Ethnicity: United States, 1990-2000 120 Rate Ratios as Compared to Whites Case Rates/100,000 160 80 40 10 8 6 4 2 0 1990 0 1990 1992 1994 1996 1998 Year White, non-Hispanic Hispanic* American Indian/Alaska Native Black, non-Hispanic Asian/Pacific Islander 2000 1992 Black, non-Hispanic Asian/Pacific Islander 1994 1996 Year 1998 2000 Hispanic* American Indian/Alaska Native How can we solve the problems of Health Disparities? Our experience with HIV has shown us that providing the same interventions to ethnically different communities results in increased health disparities One Approach: Community-Based Participatory Research 50 60 40 50 30 Rate Ratio Case Rates per 100,000 Primary and Secondary Syphilis: United States, 1995-1999 20 10 40 30 20 10 0 1995 1996 1997 1998 1999 0 1995 Year White African American Hispanic Asian/Pacific Islander American Indian/ Alaska Native 1996 1997 1998 Year African American Hispanic Asian/Pacific Islander American Indian/ Alaskan Native 1999 NTNV--Details Moving on from Where We Stand Now. Project Elements Element One Develop HBCU faculty capacity to address health disparities Element Two Increase African American leadership in health administration, management and policy Element Three Build capacity and readiness of communities of color for participatory research and interventions on health disparities Element Four Clarify minority perspectives on the ethics of health research and practices. Project Objectives Year One –Create partnerships between communities and HBCUs Year Two – Conduct pilot project Year Three – Complete a fundable proposal or conduct an implementation project Year Four – Policy translation Year Five - Final reporting, publications, model sharing…and building …….Sustainability after the funding ends Building Participation into Decision-Making Process Grant w/Kellogg set forth objectives for the life of the project and on an annual basis. Statewide Coordinating Committee will review overall project objectives bi-annually (approximately every 6 months) Evaluation of previous year and plan for subsequent year outlined in Statewide Coordinating Committee for August Report by RCHD/SCRC. Decision-Making Cont… Site pilots, priorities, tasks, approaches, and resource allocation. Statewide activities, projectwide collaborative activities, policy initiatives Site Steering Committee Local steering committees establish democratic / participatory process. Membership to be > 51% nonresearcher community members. Statewide Coordinating Committee Representatives from each site (Community and HBCU reps) and from RCHD and SCRC constitute. Questions & Discussion