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Global Genetics and Genomics Community (G3C): Developing Unfolding Case Studies Kathleen Calzone, PhD, RN, APNG, FAAN National Cancer Institute, Center for Cancer Research, Genetics Branch Project Aim • Develop an education program for use by nursing faculty for nursing students based on the Essentials of Genetic and Genomic Nursing: Competencies, Curricula Guidelines, and Outcome Indicators Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics • Define essential genetic and genomic competencies for ALL nurses regardless of level of academic preparation, practice setting or specialty. • Guide curriculum content based on the current state of the evidence. • Provide the basis for evaluating nurse competence in genetics and genomics • Prepare the nursing workforce to deliver competent nursing care in the genomic era of healthcare. http://www.genome.gov/Pages/Careers/HealthProfessionalEducation/geneticscompetency.pdf Advisory Group Co-Chairs: Kathleen Calzone, PhD, RN, APNG, FAAN Jean Jenkins, PhD, RN, FAAN National Cancer Institute National Human Genome Research Institute Members: W. Gregory Feero, MD, PhD Lorraine Frazier, DSN, MS, RN, NP Judith A. Lewis, PhD, RN, WHNP-BC, FAAN Lillian Tom-Orme, PhD, MS, MPH, RN, FAAN Carmen T. Paniagua, EdD, RN, CPC, APN, ACNP-BC Cynthia A. Prows, MSN, CNS, FAAN Diane Seibert, PhD, CRNP National Human Genome Research Institute University of Texas Health Science Center at Houston Virginia Commonwealth University University of Utah University of Arkansas for Medical Sciences Janet K. Williams, Ph.D., RN, PNP, FAAN Children's Hospital Medical Center Uniformed Services University of the Health Sciences The University of Iowa HRSA Representative: Irene Sandvold, PhD, RN Health Resources and Service Administration Role of Advisory Group • • • • • • Project selection Guided project scope and format Selected the target audience Offered content expertise Guided dissemination plan Expert review of cases Project Selection • Selected based on a gap analysis performed following the Genetics/Genomics Toolkit for Faculty June 2008 meeting which identified and vested currently available nursing genetic/genomic education resources for Genetics/Genomics Competency Center for Education (G2C2) 67 Clinical Simulations and Education • Simulations are replications of critical components of clinical encounters in a safe, secure environment – – – – – Provide opportunities to develop technical proficiency Tailored to the learners needs Incorporates emotional/affective aspects of learning Apply knowledge and skills Develop competence in clinical reasoning • Evidence shows that simulations can be effective learning tools for multiple healthcare disciplines – Clinical skills – Procedures – Patient communication Cant et al. (2009). Simulation-based learning in nursing education: Systematic review. JAN, 66, 3-15. Decker, et al. (2008). The evolution of simulation and its contribution to competency J Contin Educ Nurs. 39, 74-80. Global Genetics and Genomics Community http://www.g-3-c.org • High Fidelity Simulated Online Unfolding Case Studies • Ethnically diverse • Focus on common public health issues – family history assessment – direct to consumer marketing/testing – family issues – personal values assessment – genetics/genomics of common diseases (i.e. diabetes and cardiovascular disease) – pharmacogenomics Format • Portable, web-based, open access • Bilingual (English/Spanish) • Interactive, self-paced, self-directed, unfolding case studies • Utilizing professional actors as simulated patients • Partnership with the National Capital Area Simulation Center • Incorporates student/learner education activities and resources • Faculty support includes suggestions on how to use cases in the curriculum Building a Case Case Objectives Equipment, Props, Make-up, Moulage, Costume Case Key Points Planned Learner/Student Activities Education Content to Provide Resources to Include Case Background Additional materials required such as lab results, x-rays, scans etc. Standardized Patient Recruiting Requirements Actor Instructions Story Outline • Affect/Behavior/ Attitude • Definition of Terms • Background Information Family History Details • Pedigree Question Mapping • Question • Question Category • Learner/Student Activity • Response Guidelines Case Development Faculty Case Guide • Case objectives • Suggestions for • Use • Supplemental student activities • Classroom discussion points • Essential Competencies addressed by the case • Additional Readings • Additional Resources • Can be downloaded as pdf Faculty Support Pages • • • • • • • • • Introduction to G3C Target audience Suggested use Overall website user objectives Background on Essential Competencies Suggestions on how to use G3C Additional educator resources Case specific Faculty Resource Case Guides Info on G3C development team and funding sources Selecting a Case Begin by Reviewing the Patient Records Select a Question, Option for Closed Captioning Collect and View Material from the Patient Supplemental Student Activities Cases • Ethnically diverse • Outpatient encounters • Primary Care Office • Indian Health Service • Address • Family history assessment • Direct to consumer marketing/testing • Family issues • Personal values assessment • Genetics/genomics of common diseases (diabetes and cardiovascular disease) Alpha Test Findings • Improve user interface – Appearance – Performance – Navigation – Accurate case mapping • Improve audio/visual quality • Capacity to assess critical decision-making • Provide real time feedback as progress through the case to optimize learning Beta Testing Continuing Educatory Population • NIH Nurse Educators • Complete one G3C case and review other G3C content • Online outcome survey • Qualitative Educator interview Academic Population • Samuel Merritt University School of Nursing • 2011 Fall semester faculty use of G3C with their students as they see fit • Online outcome survey • Qualitative Faculty interview Planned Outcome Measures • Population – NIH Clinical Center Nurses – NIH Clinical Center Oncology Nurse Interns • Constructs for Measurement – – – – Knowledge Self Efficacy Critical Thinking Ability Satisfaction • Authenticity of Encounter • Technical Assessment – – – – Quality Usability, Navigation Performance • Platform from which to build additional cases • Two cases created from the existing funding • Four more cancer cases being developed in 2011 • Unlimited case capacity • Amenable to cases of any healthcare discipline • Interdisciplinary cases • Website has the capacity for expansion Platform Improvements Funded Improvements • Expand the number of question options students can select • Numeric weighting of questions based on optimal critical decision-making to generate a total score for a case • Real time feedback • Additional cases including interdisciplinary • Online pedigree drawing Platform Improvements Require Additional Funding • Option to view filmed stories with real patients who have experienced something similar • Laboratory experiences to view some of the technical aspects of any genetic/genomic tests that are performed • Mobile platform • Online e-Learning • Potential collaboration with CDC for genetic test report evaluations Acknowledgements • • • • Jean Jenkins Karen Greco G3C Advisory Group d’Vinci Interactive – Nicole Duffey – Vijay-Kumar Solanki – Vince Hellane • National Capital Area Simulation Center – – – – Jamie Roberts Amy Flanagan-Risdal Gil Muniz Joe Lopreiata Funded by: • Health Resources and Services Administration, Bureau of Health Professions, Division of Nursing • Department of Defense, Air Force Medical Support Agency, Modernization Directorate Supported by: • National Cancer Institute, Center for Cancer Research, Genetics Branch, National Institutes of Health • National Human Genome Research Institute, Genomic Healthcare Branch, National Institutes of Health Questions/Discussion [email protected] 301-435-0538 http://www.g-3-c.org