Transcript Document

Patient Advisory Groups –
trying to make it work
Janet Ellis
North Wales CCM Demonstrator Lead
Our approach – background and reasons
• ARMA Group – what it is and why it
makes sense to adopt this model;
• Links with North Wales Demonstrator;
• Service Development Directives;
• Joint Service Advisory Group
What is ARMA?
• Umbrella body of 33 national user,
professional and research organisations
• Strong record of user involvement
• Collective voice for the arthritis and
musculo-skeletal community in the UK
• Registered charity
ARMA Objectives
•Standards of Care
Examples include Back Pain, Inflammatory Arthritis &
Osteoarthritis (2004)
•Relationship building
•Influencing
•Networking and support
Links with North Wales Demonstrator - 1
• Department of Health project
• North West Wales pilot site
• Project goals include:- improving local services
- implementation of key policy initiatives such
as Directives for Arthritis & Chronic
Musculoskeletal conditions
Links with North Wales Demonstrator - 2
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Key Demonstrator Objectives
Strategic fit in North Wales
Joint Service Advisory Group
Common approach
Planned replication of model
Evaluation
Evaluating Perspectives
• Whose thoughts and ideas do we want?
• Focus Groups – across North Wales
• Interviews – clinicians and ‘interested
parties’
• Sharing the learning for development of
the model
• Sustainability across other areas
The concept of Empowerment is that those who
have little or no influence are able to:acquire the ability to have informed opinions;
take initiatives;
make independent choices and influence change.
How do we hope our approach will make
services better?
• Meaningful engagement leading to
visible action
• Recognition by all of what can and
cannot change
• Blurring of boundaries
• Positive changes