Transcript Project update slides for PPI Working Group

Promoting Research at Camden & Islington NHS FT
is Everyone’s Responsibility
E-learning package prepared by Dr Simon Adelman
Consultant Psychiatrist C&I Foundation Trust
North Thames DeNDRoN LRN Director
2012
www.dendron.org.uk
www.dendron.org.uk
Overview
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Research and innovation are our core business
What C&I OFFERS you
– Support and mentorship
– MSc in Psychiatric Research
– Good Clinical Practice training
– Research opportunities
– Putting your research & innovation into practice
What C&I EXPECTS from you
MACTU
NIHR Clinical Research Network structure
NoCLoR & Research Governance
Ethics & R&D approval
North Thames DeNDRoN
Contact details
Summary, don’t forget to …..
www.dendron.org.uk
www.dendron.org.uk
Research and Innovation are our core business
We help to improve treatments for patients
We help medical professionals to offer patients
research as part of treatment options
We help the NHS to focus resources on “what
works”
We help NHS Trusts to deliver the quality and
innovation agenda
IT’S CORE BUSINESS – NHS constitution
commits to promotion and conduct of research
www.dendron.org.uk
What C&I OFFERS you ……. Support and mentorship
“Giving patients the choice to take part in research is everyone’s
responsibility” C&I Medical Director
• Visit www.ntdendrontoolkit.weebly.com for practical tools, links and info on research
• Visit www.candi.nhs.uk/research for more information on research at C&I
• Download the ‘Information for Staff’ flyer and ‘Clinicians FAQs’
• Mentorship opportunities are available in Camden and Islington NHS FT and UCL.
oFor mentorship opportunities around dementia research, contact Dr Simon Adelman at
[email protected] or Prof Gill Livingston at [email protected]
oFor mentorship opportunities in relation to other mental health studies, contact Dr
David Osborn at [email protected] or Dr Helen Killaspy at [email protected]
www.dendron.org.uk
www.dendron.org.uk
What C&I OFFERS you ……
MSc/Diploma/Certificate in Psychiatric Research (UCL)
• Equips students with the research skills needed to begin doctoral
level research
• Now more flexible than ever before, with opportunities to
complete:
• MSc – part time in 2 to 5 years
• Diploma - two thirds of course modules
• Certificate - a third of the course modules
• Teaching is on Monday afternoons only. Thus it is very much
designed for busy trainees to be able to fit it into their timetables
and careers.
http://www.ucl.ac.uk/mentalhealthsciences/prospectivestudents/msc
psychiatricresearch
www.dendron.org.uk
What C&I OFFERS you ……
Good Clinical Practice qualification
A key training requirement for anyone involved in the conduct of
clinical research is Good Clinical Practice (GCP) training. GCP is
the standard and guidelines to which all research is conducted.
Other guidelines and laws build on these standards.
• For details of the FREE online Good Clinical Practice training
available please visit the www.crncc.nihr.ac.uk/training
• Alternatively, for information of how to register and book onto
a course please contact the North Thames DeNDRoN team on
020 3317 4750
www.dendron.org.uk
What C&I OFFERS you …….research opportunities
There are plenty of opportunities to take part in research studies in
UCL and Camden & Islington, for example …..
•
Department of Mental Health Sciences, UCL
– General adult psychiatry (Dr David Osborn)
– Old Age Psychiatry (Prof Gill Livingston, Dr Martin Blanchard, Dr Claudia
Cooper)
– Intellectual disability (Dr Andre Strydom)
– Rehabilitation (Dr Helen Killapsy)
– Sexual disorders (Prof Michael King)
For more information visit www.ucl.ac.uk/mentalhealthsciences/
•
Clinical Drug Trials, C&I
• Dr Simon Adelman
For more e-mail: [email protected]
www.dendron.org.uk
What C&I OFFERS you …….. Putting your research and
innovation into practice
• During 2011 we had over 70 active research studies going on
in various departments. We recruited over 1000 new patients
to take part in research.
• As a result of our staff’s commitment to engage patients in
research we were able to produce our results in over 100
publications which are being put into practice both in the UK
and internationally.
• More information on how research is being put into practice,
plus an up to date list of publications, can be found on
Camden and Islington NHS FT’s website.
www.dendron.org.uk
What C&I EXPECTS from you
“Giving patients the choice to take part in research is everyone’s
responsibility” C&I Medical Director
1. Ask your patients if they are interested in finding out about research opportunities provide info, record in patients’ notes
2. Encourage your staff to ask patients if they are interested in research opportunities –
provide info, record in patient’s notes
3. Signpost patients with queries about specific research conditions to their lead
consultant
4. Complete GCP training, book on www.crncc.nihr.ac.uk/training
5. To take part in research recruitment projects, for example DeNDRoN’s Recruitment
and Feasibility Tool project (RAFT)
www.dendron.org.uk
www.dendron.org.uk
How research organisations work together
FUNDING BODIES
NoCLoR
Alzheimer UK
RM&G
Department of Health
NIHR
North
Thames
DeNDRoN
Cancer Research UK
UCL (P)
C&I
Academic
Research
Medical
school
MHRN,
PCRN
MACTU
Commercial
RCTs
www.dendron.org.uk
Diabetes UK
Health Foundation
Kings Fund
Medical Research Council
The Association of Medical
Research Charities
Wellcome Trust
NIHR Health Technology
Assessment programme
NIHR Clinical Research Network Structure
Supports
facilities for
research (eg
Biomedical
Research
Units)
National Institute for Health
Research
Commissions and
funds NHS and
social care
research
Trains and
develops
researchers
The Clinical Research Network:
We provide the practical support
researchers need to run clinical
studies in the NHS, so that more
studies can happen, and more
patients can take part. There are
7 networks + comprehensive.
Cancer
Stroke
Clincal
Research
Network
HQ
CLRN
Primary
Care
Dementia &
neuro
www.dendron.org.uk
Diabetes
Mental
Health
Medicines
for
Children
How Local Research Networks help you
The development, set up and delivery of randomised controlled trials of interventions
(including prevention, diagnosis, treatment, and care) and other well designed studies.
LRNs can help you :
• Develop new research through Clinical Studies Groups, Task Forces and Writing
Groups
• Develop deliverable studies by providing local input into delivery plans to Chief
Investigators
• Set up studies, including local research governance approvals
• Identify of suitable NHS sites and recruitment of participants to studies
• Engage with commercial and non-commercial research funders
• Active involvement of patients and carers in all parts of the research process (PPI)
www.dendron.org.uk
North Central London Research Network
• NoCLoR is a partnership between C&I FT, NHS Camden, NHS
Islington, and ~ 15 other Trusts/PCTs
• Provides Research Management and Governance (RM&G)
services across North London
• Research & Development Department 3rd Floor, West Wing, St Pancras
Hospital 4 St. Pancras Way London, NW1 0PE tel: 020 3317 3754
www.dendron.org.uk
Research Governance
Research governance improves research quality and safeguards
the public by:
- Enhancing ethical and scientific quality
-Promoting good practice
-Reducing adverse incidents
- Preventing poor performance and misconduct
www.dendron.org.uk
National Research Ethics Service (NRES)
• All research in the NHS must gain a favourable
opinion from an NHS Research Ethics Committee
(excludes audit or service evaluation)
• The process of applying to RECs was standardised in
March 2004
• Since April 2009, application is online through
‘integrated research application service’ IRAS
(includes R&D permissions)
www.dendron.org.uk
Dementias & Neurodegenerative Diseases
Research Network (DeNDRoN)
• Our portfolio includes studies in dementias, Parkinson’s, Huntington’s and
Motor Neurone disease, and other neurodegenerative diseases
• DeNDRoN is made up of seven Local Research Networks, which cover
different regions of England.
• The Network employs more than 200 dedicated trained research support
staff operating in over 150 Trusts.
• We provide researchers with the practical support they need to make
clinical studies happen in the NHS, so that more research takes place
across England and more patients can take part.
www.dendron.org.uk
Dementias & Neurodegenerative Diseases
Research Network (DeNDRoN)
Dementias and Neurodegenerative Diseases
Local Research Networks:
1. East Anglia
2. North East
3. North West
4. North Thames
5. South Coast
6. South West
7. Thames Valley
DeNDRoN is part of the National
Institute for Health Research
Clinical Research Network which
supports research to make
patients, service users, and the
NHS, better.
We promote and expand research
into Dementia, Parkinson’s,
Huntington’s and Motor Neurone
Disease.
www.dendron.org.uk
Our Portfolio…
Contains a suite of studies covering Alzheimer and non-Alzheimer dementias
(47% of total portfolio), Parkinson’s (22%), Huntington’s (10%), motor
neurone disease (13%), and other neurodegenerative disorders (10%).
We support a wide range of trial designs that are funded by commercial and
non-commercial partners.
www.dendron.org.uk
NIHR Clinical Research Network Contacts
North Thames DeNDRoN
3rd Floor Collingwood Business Centre
Mercers Road
London N19 4PJ
Manager: Tania Page
E-mail: [email protected]
Tel: 020 3317 4750
MHRN North London Hub 20 Eastbourne Terrace London W2 6LE
Manager: Sandra O'Sullivan - sandra.o'[email protected] Tel: 07872 850283
Greater London Primary Care Local Research Network
Network Manager: Jo Burns
Email: [email protected]
www.dendron.org.uk
Summary
“Giving patients the choice to take part in research is everyone’s
responsibility” C&I Medical Director
And don’t forget to ………
1. Ask your patients if they are interested in finding out about research opportunities record in patients’ notes
2. Encourage your staff to ask patients if they are interested in research opportunities record in patient’s notes
1. Signpost patients about specific research conditions to their lead consultant
2. Complete GCP training, book on www.crncc.nihr.ac.uk/training
3. Take part in research recruitment projects, for example DeNDRoN’s Recruitment and
Feasibility Tool project (RAFT)
www.dendron.org.uk
www.dendron.org.uk
Thank you
[email protected]
www.dendron.org.uk