Transcript Objectives of Myeloma Euronet Romania

Art 1 – UN Charta of Human Rights
Art.2 - EU Charta of Fundamental Rights
The Right to Life
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Treaty of Lisbon – It is our responsibility to protect life
WHO – Health represents a matter of safety and security
WATCH – Non-recognition of pain represents a violation of
human rights
HEALTH COMMISSIONER DALLI – Oct 15,2010 The ultimate objective of EU is to have patients treated well in
their own countries
HEALTH COMMISSIONER DALLI - April 3,2012
The time has come for the implementation of EU strategies in
the field of health
Charter of Fundamental Rights of the
European Union
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Article 35
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"A high level of human health protection
shall be ensured in the definition and
implementation of all Union policies and
activities".
Romanian Constitution
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Article 34
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The State is obliged to guarantee the
sheltering of healthcare
In reality
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GDP in EE countries 3.5-6 max
- (as compared to 9-10 in E15)
Low Priority for health in public sector
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(allocation 6-10% as compared to 15-20 in E15
- Life expectancy in EE countries 65-75
(as compared to 80-85 in E15)
Low incidence of cancer and yet high mortality
Reality
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Per capita, Romania has the lowest
medical expenses within the EU
member States
Poland – recently lengthened the
waiting time for deciding on
Thalidomide treatment
Bulgaria – absence of novel treatments
Target
Self-Governance of the Health system
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Collaborative approach
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Patients Organizations
Doctors/Hospitals
Scientific Researchers
Industry
National Health Govt. Institutions
MAIN INSTRUMENT
/FACILITATOR/PARTNER
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EU HEALTH COMMISSION AND EU
LEGISLATIVE BODIES
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Legislative Acts clearly formulated (too
many “” EU member states may and very
few MUST””)
Strategic planning for health system based on
sustainable objectives
More meaningful STATEMENTS
EU CHALLENGES
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Establishment of a new EU legislative
framework in the field of health
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Directives not recommendations
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Harmonized health for all EU member states
Mandatory standards in the field of health for all EU
member states
 Higher budget allocation
 Fair access to medical treatment and medication
 Reducing inequity in health and access to
health care
Presently
Cross Border Health Care Directive
Leaves a lot of freedom to MS
Patients must advocate for the best
transposition of it
Is it feasible
OBJECTIVES
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Information
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Patients’Empowerment  Advocacy at the EU level
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Advocacy at the national
level
TARGETS OF MYELOMA EURONET
ROMANIA
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Empowerment of the patients
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Respect and dignity
The right to decide
Improvement of Quality of Life
Access to fair medical treatment
ROMANIAN HEALTH SYSTEM
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Lack of Infrastructure :
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Equipment
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Decent remuneration of medical corp
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Medication
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Insufficient hospitals /beds
Lack of information
ACCESS TO THE ROMANIAN HEALTH
SYSTEM HINDERED BY
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Economic difficulties/crisis
Small income
Ignorance of patients’ rights
Lack of patients’ information
Poor management
Non involvement of patients‘organizations in
the decision making proces
Status vis-a-vis other EU MS
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Lack of harmonization with other EU
member states
Lack of support from Pharma
Companies
Lack of support from civil society
CAUSES AND IMPACT
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CAUSES : The lowest GDP within EU
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IMPACT:
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Great Differences
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Research
HTA
Access to novel treatments for cancer
I, Viorica Cursaru DO NOT have a
financial interest/arrangement or
affiliation with one or more
organizations that could be perceived
as a real or apparent conflict of interest
in the context of the subject of this
presentation.