Transcript JOUNEES DRT 2010

Support to
Disabled People
Organisations
DRT Seminar, Madagascar
31st October-4th November
2011
Priscille Geiser, Head of Technical Unit on « Support to Civil Society »
Handicap International work in
support to DPOs
History of HI work with DPOs
► Partners of HI since its inception (1982)
► Since early 1990’s, specific full-fledged projects developed to
strengthen DPOs as important civil society stakeholders
► One of the 1st projects: Madagascar “Access to rights for persons with
disabilities, through the creation and promotion of a structured
associative movement”
► Inspired the creation of the regional SHARE-SEE project in the Balkans
“Self-Help and Advocacy for Rights and Equal Opportunities South East
Europe” and later of many national or regional projects
► Active role in the development of the UNCRPD, especially on article
32 + sponsoring Southern DPOs to take part in the process
Why does HI support DPOs and what
can it offer?
►Historical involvement in promoting inclusive development
►Part of the Federal Strategy 2011-2015:
• The UNCRPD is one of our important reference texts; it promotes a
human rights approach to disability
• DPOs as representative organisations are essential actors to improve
participation of people with disabilities (2.4.4.)
• DPOs have a special role to play to enhance access to quality services
for people with disabilities (2.2.)
►HI experience in capacity development
►Facilitating linkages with development stakeholders (service
providers, donors, at local/ national/ international levels)
►Advocacy for inclusive and accessible development though
international alliances
HI projects to strengthen DPOs (2011)
Inclusive Local
Development Projects
Regional projects
Closed projects
1-country projects
HIB projects
Support to DPOs: projects targeting…
► Stronger DPOs, better managed, capable of building alliances
with civil society actors, of putting pressure on States
► Key changes at policy level: ratification and implementation of
UNCRPD, adaptation of public policies, reform of law on
disability, services supply, linking good practices and good
policies (MIW)
► Participation of PwDs in decision-making at national, local level
► Key changes in practices: attitudes, implementation of laws and
policies
► Individual empowerment of DPO members
► Better connection between DPOs and sectoral projects
Reviewing our experience in support
to DPOs
►In 2009, review of 25 projects in support to DPOs
►1st Technical Seminar in Münich (Dec 2009) to analyse
experience and identify key recommendations and projects’
components
►Development of Policy Paper (+ review, validation)
►2nd Technical Seminar in Madagascar (Nov 2011) to
exchange further on practices and experiences in view of
developing further tools and guides
Policy Paper
► Basis for this workshop, structured
around the 4 components of the
paper
1. Building internal capacities of
DPOs
2. Supporting DPOs to engage in
efficient advocacy to promote
social and policy change
3. Supporting DPOs to monitor
human rights of persons with
disabilities
4. Supporting DPOs to empower
their members
Key working approaches of HI
► Systematically building on existing DPO capacities:
 Adjusting to each context: support the emergence or restructuring of DPOs
 Governing project through Steering Committees
 Promoting South to South cooperation (e.g. regional projects) and
partnerships with international level DPOs: SHIA, EDF, AODP, African
Decade, DPI…
► Not disconnecting training from practice: learning by doing
► Not disconnecting advocacy from practical evidence: MIW
► Working simultaneously at different levels to build stronger movements
► Promoting alliances with other civil society groups
► Long term involvement: 5-7 years
Some of the challenges ahead…
Key questions that will guide us through the seminar:
► Where to support, where/when to stop capacity development support?
How should partnership relations evolve?
► How to ensure truly participatory approaches?
► How to interact with decision makers without compromising
independency?
► How to ensure that advocacy is enrooted in evidenced practices?
► How to monitor the effects of advocacy? How to monitor political
participation of DPOs?
► How to engage effectively in UNCRPD monitoring? What are the best
strategies?
► How to ensure that all people with disabilities are effectively involved?
►…
Focus on: Access to Services
and linkages with support to DPOs
Access to Services
► A structuring framework for HI as part of
its new federal strategy
► A systemic approach to enhance people
with disabilities’ access to quality
services, thereby fulfilling their human
rights
► Brings coherence in what HI does,
highlighting complementarities between
different projects and initiatives
► Programming guide: analysing the
context and developing relevant country
strategies
Connections between access to
services and human rights
► Access to services is about realising the UNCRPD in all contexts and all
environments, asking each type of stakeholder to play their role in the system,
i.e.:
• States/ authorities to “promote, protect and fulfil” human rights (UNCRPD)
through relevant policies in all sectors (art. 20-28), consultation with civil
society (art 4.3, 3, 29), spread information about rights (art.8), collect
relevant data (art.31)…
• Services providers to deliver quality services, abiding by the norms/ rules
(e.g. accessibility standards, financial accessibility…)
• DPOs to use, monitor the quality of services, take part in decision-making,
demand relevant solutions, etc.
► Coordination between them is essential
Key roles in an enabling system for access to services
Regulate, define strategic
orientations, policies
Evaluate needs, ensure access,
consult and ensure participation
of PwDs in decision-making
Authorities/ policy makers
National level and
Local level
Ask for services,
advocate, take part in
decision-making
Supply services, inform on
needs, take part in decisionmaking
Users:
People with disabilities, their
families, DPOs
Use and monitor
Regulate, allocate sufficient means,
control, evaluate, identify innovation,
replicate innovation, guarantee quality
(accreditation)
Analyse needs, provide services,
ensure access
Ask for services, choose services, utilise
services, evaluate the quality of services
Service Providers
(private and public)
Provide quality services
CBR/ CBID: no relevant access to services
without strong DPO involvement
WHO, 2010
Some of the challenges in linking DPOs
and access to services…
►How can DPOs engage as advocates for access to quality services for
people with disabilities?
►What level of technicality is required from DPOs to influence sectoral
policies and what alliances are needed?
►How to encourage services-focused project to include the
perspective of “users”?
►How to ensure person-centred approaches and get away from the
unbalanced carer/patient relation?
►In mainstream services, “users” aren’t only people with disabilities:
how to bring in the disability perspective within broader user groups?
►What other rights (not directly connected to services) need to be
advocated for to prepare an enabling environment?
►…