Transcript Expert Patients Programme
Expert Patients Programme
Cardiff and The Vale of Glamorgan Carol Young Programme Co-ordinator Jason Jones course participant
What is The Expert Patients Programme?
A new approach to managing long-term health conditions A free 6 week self- management course of two and a half hours per week Courses are delivered by two lay voluntary tutors Tutors will a have experience of a long term health condition
What is The Expert Patients Programme?
EPP does not provide clinical information or treatment, nor does it look at clinical needs.
The aim is to give participants the confidence to take responsibility for their own care, while also encouraging them to work in partnership with health and social care professionals.
It is based on research evidence from the US & UK.
FATIGUE SHORTNESS OF BREATH LONG TERM CONDITION SYMPTOM CYCLE PAIN TENSE MUSCLES DEPRESSION STRESS / ANXIETY DIFFICULT EMOTIONS
Self-Management Tool Box
Physical Activity Medication Managing Fatigue Planning Better Breathing Working with Health Professionals Problem-solving Using Your Mind Managing Pain Healthy Eating Understanding Emotions Communication
Who can attend a course?
Anyone living with a long term health condition People decide for themselves if they want to attend a course -----Self referral All interested people are added to a Database All potential participants are informed of coming courses
Core self-management skills:
Problem solving Decision making Resource utilisation Working in partnership with health professionals Action Planning
Who developed EEP?
Stanford University - Professor Kate Lorig & colleagues in 1970’s Chronic Disease Self-Management Programme (CDSMP) developed mid 1990’s Copyright belongs to Stanford University Welsh Assembly Government have a licence Course delivered to a script
Further information: www.expertpatients.nhs.uk
www.eppwales.org
Benefits for the Participants
Increased confidence, self-esteem and feeling of self-worth Improved ability to cope with pain and fatigue Learn ways to maintain a good quality of life and cope day to day Reduced anxiety and depression Improved communication with doctors Improved fitness through exercise More relaxed
Feedback from participants
"I thought it was a friendly, happy and relaxing course. I had spent a month in Whitchurch hospital with clinical depression and although i was much better, the course gave me that extra confidence “Admittedly on the first morning I almost decided to cancel, as it felt like too much effort, but I forced myself to attend and was glad afterwards that I did. I made new friends and found a group of people with varying illnesses/afflictions, enduring the same negative emotions and symptoms as myself, including the tutors! The latter fact shocked me into paying attention as I felt that our trainers properly understood what we were going through.
Voluntary Tutors
They are living with a long term health condition They are good self managers, communicators and role models They apply and are selected They are assessed and accredited They are able to deliver year for three years at least two course a
Feedback from a Participant
Jason Jones
Looking After Me (LAM) A course for Carers
Looking after me (LAM) is a course for adults who care for someone living with a long term health condition or disability The LAM course is provided free to any carer in Wales who wishes to attend
Looking After Me
The LAM course aims to: encourage the carer to take time for themselves and to look after their own health needs. help them as a carer to take more control over their situation and make a difference to the quality of their life.
What does it cover?
Relaxation Techniques Dealing with tiredness Exercise Healthy eating Coping with depression Communicating with family, friends and professionals Planning for the future
Comments from participants
‘ I have lost the guilt I felt when finding time for myself and I make more time to relax
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‘I’ve become more positive about my health and exercise’ ‘I’ve realised how confident I am and how I am coping better than I thought’ ‘I shall continue to use relaxation techniques, action planning and problem solving’ ‘The course has helped me to understand the resentment and isolation and that it is totally normal to feel that way.’
Thank you for listening