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Utilizing an innovative M&E system to improve referral mechanisms for HIV & AIDS and TB services: Lessons from East Central Uganda Presentation to the 16th ICASA, Addis Ababa , Ethiopia. 5th December 2011 Author: Odong Tonny Organization: Strengthening TB and HIV & AIDS Responses in East Central Uganda ( STAR-EC) /JSI Email: todong@starecuganda Background to STAR-EC program A five year (2009-2014) program funded by USG through USAID Implemented by JSI Research & Training Institute Inc.(JSI) in collaboration with Ministry of Health-Uganda Serves about 9% of the country’s population (Approx. 3m people) Works through district based structures and Civil Society Organizations (CSOs) The 9 districts served: Bugiri, Buyende, Namutumba, Namayingo, Mayuge, Iganga, Luuka, Kamuli & Kaliro Operates in 9 Districts of East Central Uganda Program goal: To increase access to, coverage of, and utilization of quality and comprehensive HIV&AIDS and TB prevention, care and treatment services Issues Referral and Networking is an important component of any community based HIV & AIDS and TB program/intervention Primarily, referral is intended to link people within the community to different health service providers based on their identified health needs ( e.g. Chronic care, HCT, STI screening, wrap around services etc.) In East Central Uganda, referral services are mainly offered by lay volunteers – namely; Community Support Agents ( CSAs) and Village Health Teams (VHTs) Issues cont…. At program inception, the CSAs and VHTs had difficulty in tracking, managing and reporting data on referral activities due to lack of an innovative and simplified M&E system It was thus difficult to know; a) b) c) d) The number of people referred by the CSAs/VHTs Whether the people referred received services or not The quality of services offered by the service providers; and To advocate for services that were lacking in the region Intervention STAR – EC promotes the use of innovative M&E system at community level In collaboration with National Community of Women Living with HIV&AIDS (NACWOLA) and other CSOs, STAR- EC program introduced and train the CSAs and VHTs on simple to use Monitoring and Evaluation tools. The tools include: 1) 2) 3) 4) 5) CSAs/VHTs diaries Referral directory Referral form Referral register Data summary and reporting tool s/Electronic database Summary of use of each M&E tool 1. CSAs/VHTs diaries - Books used by the CSAs and VHTs to document client health problems and other particulars 2. Referral directory - A book that lists all the possible health service providers in East – Central region of Uganda - They are used by CSAs and VHTs to identify relevant service providers based on client needs 3. Referral form – has two sections 1-Referral section: Filled by the CSAs/VHTs and given to client to go to an appropriate service provider Name of Client:____________ Client’s age/Sex ________ Date:___________ Referral No:___ Village:___________ Parish:__________________ Sub-county:___________________ Organization / health facility client is referred to:________________________ Organization / health facility client is referring client: ________________________ Reasons for referral : ( Please use the code below and explain) Name of person referring the client:_______________________ Designation: __________________________________ Tel:_________________ 2-Feedback section: Filled by the service provider and given back to the client who later takes it to the CSAs/VHTs who referred him/her Client Referral No:____ Date client was received by the organization: _________ /________ /__________ Service(s) offered to client:______________________________________________________________ Comments on service(s) provided to the client/follow up actions/further support needed: Name of service provider who attended to the client:_______________________ Designation: __________________________________Date:_________________ 4. Referral register – Used by the CSAs/ VHTs to capture information from referral and feedback forms Date referred Client Name Parish Sub-county Age Sex M/F Referral Number 30 M 1 9/2/2010 Simon Nakav Iganga ule TC John Kasubi Gulu 15 F 2 9/3/2010 Edton 33 M 3 9/1/2010 Kiira JMT Client Status referred by (Old/New) Org. NACW OLA NACW OLA NACW OLA Services referred for: (Use codes below) New 1,2 New Old Organisatio Services n/health received facility following client is referral referred to (Use codes below) 1 Iganga Hosp. ITC none 3 ITC none Indicate follow up/further support needed 1 Codes for services 1. Anti-retroviral therapy (ART) 8. Treatment for other medical conditions 15. Legal support 2. ART adherence counseling 9. Home based care 16. Microfinance/IGA 3. HIV counseling and testing 10. Food/nutrition support 11. Material support (blankets, beddings, soap etc) 17. Post test club/peer support 18. PLHIV group services 4. PMTCT ( counseling, testing, ARV prophylaxix, infant feeding counseling 5. TB screening/treatment 6. STI Services 12. Education support for children (scholastic materials) 13. Family planning 7. Septrine 14. Discordant couple services 19. Youth support group 20. Discordant couple services 21. Other services (Please name them)_____ Note with * TB registered patients referred for HCT ** HIV positive clients referred for TB screening (in follow up column indicate TB+ those to have TB) Note: Indicative word OVC against name of OVC referred 5. Reporting form- has two sections 1- Referral section-allows the CSAs/VHTs to report on the # of people referred by sex and services NEW CLIENTS OLD CLIENTS CATEGORIES OF REFERRAL SERVICES CODES Number of individuals referred in the Month (Note: Count this from column called status in the referral register) 1 ART 2 ART adherence couns eling 3 HIV couns elling & tes ting TOTAL FEMALES MALES TOTAL FEMALES MALES 0 0 1 1 1 1 2 0 0 1 1 2 0 0 0 0 1 1 0 1 1 0 0 0 PMTCT ( couns ens elling, tes ting, ARV, 4 prophylaxis , infant feeding couns elling 5 TB s creening / Treatment 6 STI s ervices 7 Septrine (CTX) 8 Treatment for other medical conditions 9 Home Bas ed Care 10 Food/Nutrition Support 11 Material Support 12 Education s upport for children 13 Family Planning 14 Dis cordant couple s ervices 15 Legal s upport 16 Microfinance/IGA 17 Pos t Tes t Club group s ervices 182 PLHIV A total of new clients (1 male and 1 female) were referred in the month. Both 19 Youth Support Group were referred for ART services and only one male was referred for ART adherence 20 Dicordant Couple Services counseling 21 Safe Medical Circumcis ion 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2-Feedback section- allows the CSAs/VHTs to report on the # of people who received services for which they were referred by sex and services received OLD CLIENTS CATEGORIES OF REFERRAL SERVICES CODES Number of individuals who received s ervices after referrals by types of s ervices 1 ART 2 ART adherence couns eling 3 HIV couns elling & tes ting NEW CLIENTS FEMALES MALES TOTAL FEMALES MALES TOTAL 0 0 0 1 0 1 1 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 PMTCT ( couns ens elling, tes ting, ARV, 4 prophylaxis , infant feeding couns elling 5 TB s creening / Treatment 6 STI s ervices 7 Septrine (CTX) 8 Treatment for other medical conditions 9 Home Bas ed Care 10 Food/Nutrition Support 11 Material Support 12 Education s upport for children 13 Family Planning 14 Dis cordant couple s ervices 15 Legal s upport 16 Microfinance/IGA 17 Pos t Tes t Club 18 PLHIV group s ervices Out of the newSupport clients referred Youth Group ( previous slide), only the male client received 19two Services ART service. The femaleCouple client did not receive the ART service and yet she was 20 Dicordant referred21 for Safe it Medical Circumcis ion 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Flow chart linking the M&E tools for referrals Tool 5(data summary form): Data summarized for reporting Managers use data for decision making & Planning Tool4( referral register): Information is recorded in referral register Tool3 (referral form): Referral form is filled Tool 2 ( referral directory) : Primary data collector identifies relevant service providers Tool1 ( CSAs/VHTs diaries): Primary data collector records details of the clients and needs Clients who received health services following referrals before and after Number of Clients full implementation of M&E tools by the CSAs/ VHTs 18,000 16,000 14,000 12,000 10,000 8,000 6,000 4,000 2,000 - Clients referred Clients who received Services 49% Jul - Sept 2010 (M&E tools not fully implemented) 16,325 7,943 75% Jan - Mar 2011 (M&E tools fully implemented) 12,810 9,596 With good M&E tools and client follow up by CSAs/VHTs, its possible to establish the actual proportion of people who received health services after referrals and institute an appropriate measure Challenges Some of the CSAs / VHTs do not follow up clients to pick referral forms Some health facility staff/service providers lack the will to fill the feedback form even when they offered services Lessons learned Without an innovative M&E system simple enough to deploy at grass root level, it is often not possible to establish whether those referred received services or not Community Volunteers (CSAs/VHTs) have to be supported to appropriately refer their clients for specialized services Way forward STAR-EC will promote the use of volunteer friendly M&E tools to improve monitoring of referral activities for HIV & AIDS, TB and wrap around services Data review will be conducted on quarterly basis to assess the trend in referral service provision and come up with corrective actions STAR- EC will also scale up involvement of community volunteers in Monitoring & Evaluation of referral activities Acknowledgement USAID JSI Research & Training Institute, Inc. (JSI) Ministry of health, Uganda ICASA organizers, Ethiopia District personnel NACWOLA STAR- EC partners Authors STAR-EC contact: Plot 10 Kiira Lane, Mpumudde Division Jinja Municipality P.O.Box 829, Jinja, Uganda Tel: (+256) 332 260 182/3/4 or +(256) 434 120 225 Fax: +256 434 120 232 E-mail: [email protected] Web: www.starecuganda.org