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Care Plan (CP) Team Meeting Notes (As updated during meeting) André Boudreau ([email protected]) Laura Heermann Langford ([email protected]) 2011-04-20 (No. 10) HL7 Patient Care Work Group Agenda for April 20 • • • • • • • • Preparation for WGM in Orlando Care Plan elements from KP, Intermountain, etc. (Laura) Feedback on models prepared by Stephen (Laura and Susan) Updated doc on storyboards (Danny) IHE Patient Plan of Care (PCCP) (Ian M.): deferred Modeling tool to use (Eclipse or EA) (André) Overarching term to use (Ian M.) deferred Business requirements: summary of key aspects since February (André) deferred This will become eventually our first formal deliverable • Next meeting agenda Page 2 Agenda for April 27 • Summary of care plan situations (Susan) • Feedback and discussion on first storyboard: Chronic Care (Danny to circulate in advance) • Highlights from IHE Patient Centered Coordination Plan (PCCP) (Ian M.) • Coaching on Eclipse: what to install for our needs, quick start (Kevin) Page 3 Participants- Meetg of 2011-04-20 p1 Name email Country Yes Notes André Boudreau [email protected] CA Yes Co-Lead- Care Plan initiative/HL7 Patient Care WG. B.Sc.(Physics), MBA. Owner Boroan Inc. Management Consultin. Chair, Individual Care pan Canadian Standards Collaborative Working Group (SCWG). Sr project manager. HL7 EHR WG. Laura Heermann Langford [email protected] US Yes Co-Lead- Care Plan initiative/HL7 Patient Care WG. Intermountain Healthcare. RN PhD,: Nursing Informatics; Emergency Informatics Association, American Medical Informatics Association; IHE Stephen Chu [email protected] AU Yes NEHTA-National eHealth Transition Authority . RN, MD, Clinical Informatics; Clinical lead and Lead Clinical Information Architecture; co-chair HL7 Patient care WG; vice-chair HL7 NZ Peter MacIsaac [email protected] AU HP Enterprise Services. MD; Clinical Informatics Consultant; IHE Australia; Medical Practitioner General Practice Adel Ghlamallah [email protected] CA Canada Health Infoway. SME at Infoway (shared health record); past architect on EMR projects William Goossen [email protected] NL Results 4 Care B.V. RN, PhD; -chair HL7 Patient Care WG at HL7; Detailed Clinical Models ISO TC 215 WG1 and HL7 ; nursing practicioner Anneke Goossen [email protected] NL Results 4 Care B.V. RN; Consultant; Co-Chair Technical Committee EHR at HL7 Netherlands; Member at IMIA NI; Member of the Patient Care Working Group at HL7 International Ian Townsend [email protected] UK NHS Connecting for Health. Health Informatics; Senior Interoperability Developer, Data Standards and Products; HL7 Patient Care Co-Chair Rosemary Kennedy [email protected] US Thomas Jefferson University School of Nursing . RN; Informatics; Associate Professor; HL7 EHR WG; HL7 Patient care WG; terminology engine for Plan of care; Jay Lyle [email protected] US JP Systems. Informatics Consultant; Business Consultant & Sr. Project Manager Margaret Dittloff [email protected] US Audrey Dickerson [email protected] US Ian McNicoll [email protected] UK Yes Ocean Informatics . Health informatics specialist; Formal general medical practitioner; OpenEHR; Slovakia Pediatrics EMR; Sweden distributed care approach Danny Probst [email protected] US Yes Intermountain Healthcare. Data Manager Kevin Coonan [email protected] US Yes MD. Emergency medicine. HL7 Emergency care WG. Gordon Raup [email protected] US Susan Campbell [email protected] US Elayne Ayres [email protected] US Yes The CBORD Group, Inc.. RD (Registered Dietitian); Product Manager, Nutrition Service Suite; HL7 DAM project for diet/nutrition orders; American Dietetic Association HIMSS. RN, MS; Standards Initiatives at HIMSS; ISO/TC 215 Health Informatics, Secretary; US TAG for ISO/TC 215 Health Informatics, Administrator; Co-Chair of Nursing Sub-committee to IHE-Patient Care Coordination Domain. CTO, Datuit LLC (software industry). Yes PhD microbiologist. Specialist Master Consultant at Deloitte. HL7 Dynamic Care Plan Co-developer NIH National Institutes of Health. MS, RD; Deputy Chief, Laboratory for Informatics Development, NIH Clinical Center ; Project manager for BTRIS (Biomedical Translational Research Information System), a Clinical Research Data Repository Page 4 Participants- Meetg of 2011-04-20 p2 Name email Country Yes No Notes David Rowed [email protected] AU Charlie Bishop [email protected] UK Walter Suarez [email protected] US Peter Hendler [email protected] US Ray Simkus [email protected] CA Lloyd Mackenzie [email protected] CA Serafina Versaggi [email protected] US Sasha Bojicic [email protected] CA Lead architect, Blueprint 2015, Canada Health Infoway Yes LM&A Consulting Ltd. Yes Agnes Wong [email protected] CA RN, BScN, MN, CHE. Clinical Adoption - Director, Professional Practice & Clinical Informatics, Canada Health Infoway Cindy Hollister [email protected] CA RN, BHSc(N), Clinical Adoption -Clinical Leader, Canada Health Infoway Valerie Leung [email protected] CA Pharmacist. Clinical Leader, Canada Health Infoway Page 5 Preparation for WGM in Orlando in May • Try to have conf call facility during our Care Plan session to allow participation of those who will not be on site Lillian Bigham, director of meetings is responsible for logistics Stephen will contact her with that • Scheduled for Thursday Q1: 9-11h30 (time in AU will be 23h00 to 00h30) • Try swapping with another period? NO. Stephen to double check. Page 6 Care Plan Elements from KP, VA, Intermountain, Mayo, etc. • Request was sent out by Laura Some initial feedback, better to wait next week Working with these organizations. Still in process. • What are they using today in terms of contents • Try collecting policies and rules especially on the interchange of clinical info related to care plans • Different models are used for different contexts: simple coordination to catastrophic intervention (whole range of levels from non licensed person to catastrophic case with multi dimensional coverage) Susan could prepare matrix or summary Will enrich our statement of requirements Page 7 CARE PLAN – HIGH LEVEL PROCESSES Page 8 Process Models • Models are generating a lot of discussions in the US. Not discussed at this level in the past. • Linking of components is not clear, how to connect detailed plans to the master? • Patient may/should (?) be the coordinator with exceptions Make the patient owner of the CP We are not there yet, but it is a trend Patient has the last say in many actions (comply or not comply) PHR are rudimentary yet, no standards to interoperate PHR does not equal care coordination • We need to assume a coordinator, whomever he/she is Most countries have not had that concept in place, formally • Dynamism: a key concept because things happen and move • Transition on care (S&I): handoff required, need to prevent void of care • CP are complex. Aim at better outcomes from our care • Multi level dynamic care planning requires tool that may not exist • See: www.healthycircles.com www.patientsknowbest.com Page 9 Process Models cont’d • We need to scope out what kind of care plan we want to deal with • What are the priority cases? Take complex cases that are very costly Look at whole series of processes: prep, coordinate, update, assess, close Understanding the whole process to ensure that we capture the correct data in the interchange There is a ramp up before the transition of care to ensure patient safety: patient preparation, search for availability of resources for the patient care needs, awareness and readiness of receiving of organization • High volume cases: simple model • Simple or complex cases have the same contents Detailed clinical contents will vary Wrapper of care plan communication • Stephen will look at the range of situations that Susan will document • We will need to restrict ourselves to the Care Plan: structure and contents in the information exchange Page 10 IHE has more loose connections. Here assumes workflow engine that connects tightly problem, goal, task. Need distinct process to manage/communicate/update/track/close the Care Plan. See IHE. Make more explicit here. Care Plan – High Level Processes Initial Assessment Goals/Outcomes: - Optimize function - prevent/treat symptoms - improve functional capability - improve quality of life - Prevent deterioration - prevent exacerbation; and/or - prevent complications - Manage acute exacerbations - Support self management/care April 13 This is illustrative Identify problems/issues/reasons Assess impact/severity: Care orchestration referral order tests Determine Problems & Outcomes Confirm/finalize problem/concern/reason list Determine goals/intended outcomes High Level Shared Plan Problem/concern/reason 1..* Target goals/outcomes Planned intervention Assessed outcome Set outcome target date Develop Plan of Care Determine/plan appropriate interventions Care orchestration Detailed Care Plan Refer to other provider (s) Determine/assign resources healthcare providers other resources Care Plan Implementation Implement interventions Evaluation Care Plan Evaluate patient outcome Review interventions Follow-up Actions Document outcomes Revise/modify interventions OR Stephen Chu 12 April 2011 Need to study this more: Laura and Susan to work on it Close problem/issues/reason/care plan Page 11 Will need to add explanations and maybe some different scenarios Care Plan – Process-based Structure Initial Assessment Care orchestration Identify problems/issues/reasons Goals/Outcomes: - Optimize function - prevent/treat symptoms - improve functional capability - improve quality of life - Prevent deterioration - prevent exacerbation and/or - prevent complications - Manage acute exacerbations - Support self management/care Assess impact/severity: referral order tests Determine Problems & Outcomes High Level Shared Plan Problem/concern/reason 1..* Target goals/outcomes Planned intervention Assessed outcome Confirm/finalize problem/concern/reason list Determine goals/intended outcomes Set outcome target date Problem/issue/risk/reason Desired goal/outcome Outcome target date Develop Plan of Care Determine/plan appropriate interventions Care orchestration Refer to other provider (s) Determine/assign resources Planned intervention/care service Planned intervention datetime/time interval (including referrals) links to other care plan as service plan Responsible healthcare & other provider(s) healthcare providers other resources Care Plan Implementation Implement interventions Evaluation Care Plan Intervention review datetime Responsible review party/parties Evaluate patient outcome Review interventions Follow-up Actions Document outcomes Review outcome Revise/modify interventions OR Stephen Chu 12 April 2011 Review recommendation/decision Close problem/issues/reason/care plan Page 12 STORYBOARDS Page 13 Storyboard: what is it? Stephen Chu 12 April 2011 • Narrative of business (clinical; administrative) processes on domain/area of interest • Non technical (conceptual in nature) • Describes: • Activities, interactions, workflows • Participants • High level data contents feeding into or resulting from processes • Provides inputs for: • • • • Activity diagrams Interaction diagrams State transition diagrams High level class diagrams Page 14 Storyboards • 5 to 10 max See list on wiki • Identify actors and understand their roles • Understanding the care planning processes will help understand the needs for info exchange E.g. query for resource availability vs the care plan needs for patient X • 3 types of requirements Functions to be carried out, workflow, processes Static semantics: info model, glossary, vocabulary Functions to be carried out by the system: EHR FM, PHR FM, etc Interactions between systems: interoperability • Include meaningful use items that are universal in perspective Page 15 IHE Patient Plan of Care (PPOC) • Deferred Page 16 Modeling Tool to Use Includes post-meeting notes • Responses from Lloyd Mackenzie and Jean Duteau Both use Enterprise Architect (EA) • Response from Andy Stechishin, HL7 Tooling and V3 Publishing co-chair First, there is an active Tooling project (called MAX) to export information from EA using MIF, the HL7 official interchange format. Second, at the WGM in Sydney, Sparx gave each attendee a license for EA. Third, during my tenure as a co-chair of Publishing, most DAMs that have been submitted for ballot have been developed (or at least published) using EA. It seems to me that a convergence is occurring and EA seems to at least be the tool of choice for many. • Eclipse is a platform for doing many different things using specific plug-ins Recommended by HL7 Open Source but not as intuitive as Enterprise Architect (which costs some 100$ for a desktop version) However, choosing which tool and plug-in (for UML) to install is difficult for non technical folks (vs the easy-to-use EA) We would need some coaching to allow a quick start o o Adel agreed to help us there André will find a resource • The tool will be used to do: Use cases Activity and workflow diagrams Interaction diagrams Class models Page 17 ISSUE: WHAT OVERARCHING TERM TO USE? • Condition • Health concern and care Plans Page 18 Issues • What overarching term to use? Condition: favoured by Care Provision: more neutral than ‘concern’ Concern: allows for broader set of contexts for care planning, including health maintenance activities Problem: focus on ‘wrong’ things; not well applicable to pregnancy: NO Health status: ‘current’ is not a term used Health issue: many people use it. Europe uses it (e.g. Sweden) See terms proposed (Susan) Synonyms: issue, concern We need to choose, define it and map it to existing terms Wait for our storyboards and map the correct word to each Build on existing term work done by reliable sources: HL7 Care Provision, ISO/CEN concepts (Continuity of Care) Existing glossaries: HL7, CCMC (case management assoc), NLM Retain meaning of natural language where possible Use reliable sources Ian: he has done a term analysis • Note: None of these terms are in the HL7 Core Glossary. See http://www.hl7.org/v3ballot/html/welcome/environment/index.html Page 19 ‘Condition’ vs ‘Problem’: From Care Provision (Jan 2011) • …the term “Condition” is used generally in HL7 because it is less negative than “problem,” i.e. management of normal pregnancy or wellness is not considered management of a “problem.” In addition, assessing and optimizing the condition of a patient is considered central to effective healthcare by clinicians. Much of the following is shared by the generalized discussions under Condition List and Condition Tracking. Additional guidance on the use of the Condition List and Condition Tracking structures in the specific use cases of allergy and intolerance is given following the general discussions below. Source: ExplanationandGuidance.pdf document in the Care provision package v3_careprovision_2011JAN.zip Page 20 Health concern and care plan: new paradigm to define the EHRS From Kevin • Historically, the EHR was similar to the GHR (Guttenberg Health Record) that was systematically adhered to as it had since Sir. William Osler told us how to treat patients. Often it is even preGuttenberg technology dependant (hand written). • This paradigm was implemented in EHRS: PMH, CC, Social Hx, HPI, etc. etc. • This paradigm was somewhat impacted in the 1960’s by crazy Dr. Larry Weed • Every 50 years we need to re-think how we think of patients. • We use information and generate information and actions. Information used is typically current problems/medications, HPI, and ROS/PE. Actions are surgery, medical therapy, psychotherapy We translate what we know into what we do. This defines us and our profession. So lets formalize it in a model which is optimized to support this Page 21 What We Know (information) and what we do (actions) From Kevin • A Health Concern can be linked to any relevant data: labs, encounters, medications, care plan A Health Concern POV looks like a long hall way, with doors to rooms with all kinds of crap in them. You can, if you read the door name (aka Observaiton.code) query for all of the relevant data (and graph it is numeric, etc.). At any given instant, what we know is effectively what is in the health concern, and the H&P/initial nursing assessment. At a given point we have enough information to take action. This action is captured in the Care Plan. Diagnosis or identified problems/concerns then get updated. For every plan of care there better be some health concern! Page 22 From Kevin CARE PLAN AND HEALTH CONCERN Health Concern Records what Happens fCare Plan: set of ongoing and future actions GOAL • Care plans need goals, i.e. tries to cause some ObservationEvent to match it. • Care plan has intimate relationship with HealthConcern—is is the reason for the care plan • Can view things via the HealthConcern POV, CarePlan POV, the individual encounter POV, and Health Summary (extraction/view) Page 23 REQUIREMENTS Page 24 CONCLUSION Page 25 Action Items as of 2011-04-20 No. Action Items By Whom For When Status Laura (Danny) Active: Underway André Outstanding - Request made Audrey/Laura Outstanding Update new wiki page with previous meeting material. Adjust structure of wiki. André Wiki restructured 8 Draft list of deliverables for this phase André Draft prepared 9 Draft a new PSS and review with project group André Deferred 10 Initiate draft of requirements André Started 11 Prepare draft storyboard for one situation using HDF 1.5 Danny 2. Do an inventory of use cases and storyboard on hand 3. Ask William for an update (add in a diff colour to the appropriate pages) 5 Obtain and share the published version of the CEN Continuity of care P1 and P2; obtain ok from ISO 7 12 13 14 NB: Completed action items have been removed. Page 26 APPENDIX Page 27 Review of draft list/description of deliverables • See wiki: 2011-04-06 HL7_PCWG_CarePlanDeliverables-Draft-20110405a.doc Business Requirements, Scope and Vision Standards context Storyboards and Use Cases Interaction diagram Process Flow Domain Glossary Information Model Business triggers and Rules • Diagram of health concerns/problems and care plan on a timeline? State machine diagram applied to concerns?? Lifecycle? Status of acts, referrals Continuity of care timeline • Harmonization (should be in parallel to produce the above to minimize rework) Page 28 Care Plan Development - Principles 2011-04-06 • High level processes can be used to guide storyboards, use cases and care plan structure development and activity diagram and interaction diagram • Care plan should preferably be problem/issue oriented, although may need to be reason-based where problem/issue not applicable, e.g. health promotion or health maintenance as reason. Use ‘health concern’ as encompassing term? (see Care Provision, 2006-7) • Care plan should be goal/outcome oriented- to allow measurement • Interventions are goal/outcome oriented • External care plan(s) can be linked to specific intervention/care services • Goal/outcome criteria are essentially for assessment of adequacy/effectiveness of planned intervention or service • Reason for care plan is for guiding care and for communication among care participants. Need to support exchange of information. Stephen Chu 5 April 2011 Page 29 Definition of Care Plan on Wiki • The Care Plan Topic is one of the roll outs of the Care Provision Domain Message Information Model (D-MIM). The Care Plan is a specification of the Care Statement with a focus on defined Acts in a guideline, and their transformation towards an individualized plan of care in which the selected Acts are added. • The purpose of the care plan as defined upon acceptance of the DSTU materials in 2007 is: To define the management action plans for the various conditions (for example problems, diagnosis, health concerns)identified for the target of care To organize a plan for care and check for completion by all individual professions and/or (responsible parties (including the patient, caregiver or family) for decision making, communication, and continuity and coordination) To communicate explicitly by documenting and planning actions and goals To permit the monitoring, and flagging, evaluating and feedback of the status of goals, actions, and outcomes such as completed, or unperformed activities and unmet goals and/or unmet outcomes for later follow up Managing the risk related to effectuating the care plan, • Source: http://wiki.hl7.org/index.php?title=Care_Plan_Topic_project Page 30 Care Plan – High Level Processes From April 6th Initial Assessment This is based on a broad review. All converge. Identify problems/issues/reasons Assess impact/severity: referral order tests Need a concept of a master care plan with all the concerns and problems Determine Problems & Outcomes Confirm/finalize problem/issue/reason list Goals/Outcomes: - Optimize function - prevent/treat symptoms - improve functional capability - improve quality of life - Prevent deterioration - prevent exacerbation; and/or - prevent complications - Manage acute exacerbations - Support self management/care Determine goals/intended outcomes Set outcome target date Develop Plan of Care Determine/plan appropriate interventions Add care coordination activities in these activities Determine/assign resources healthcare providers other resources Care Plan Implementation Implement interventions Care Plan Evaluation Evaluate patient outcome Review interventions Follow-up Actions Document outcomes Revise/modify interventions OR Stephen Chu 5 April 2011 May need to revise goals and outcomes during the process of care. Nutrition has similar model. Also use standardized language Hierarchy or interconnected plans can apply. Every prof group has specific ways to deliver care. Here we focus on the overall coordination of care. Is there always a care coordinator? Patients could be the coordinator of their own care. They should be active participants. This diagram is about process, not Interactions and actors Close problem/issues/reason/care plan Page 31 Need to decide what tool to use for the next version Care Plan – Process-based Structure From April 6th Initial Assessment Identify problems/issues/reasons Goals/Outcomes: - Optimize function - prevent/treat symptoms - improve functional capability - improve quality of life - Prevent deterioration - prevent exacerbation and/or - prevent complications - Manage acute exacerbations - Support self management/care Assess impact/severity: referral order tests Diagnosis/problem/issue - primary - secondary … Determine Problems & Outcomes Problem/issue/risk/reason Confirm/finalize problem/issue/reason list Desired goal/outcome Outcome target date Determine goals/intended outcomes Need a master plan with linkages to sub-plans Same as the problem list 2 levels: global that everyone Can see: what by whom. Then a detail Set outcome target date Develop Plan of Care Determine/plan appropriate interventions Determine/assign resources healthcare providers other resources Care Plan Implementation Implement interventions Planned intervention/care service Planned intervention datetime/time interval (including referrals) links to other care plan as service plan Responsible healthcare & other provider(s) Intervention review datetime Responsible review party/parties Care Plan Evaluation Evaluate patient outcome Review interventions Follow-up Actions Review outcome Document outcomes Revise/modify interventions Review recommendation/decision OR Stephen Chu 5 April 2011 Close problem/issues/reason/care plan Page 32